posted
Ok, i am waiting for an appointment for a Lyme Specialist on Dec. 21.
here is the thing...the dr who told me i didnt have LD i had Lyme Exposure put me on 3 weeks of antibiotic. That was about 2 months ago.
i have been slowly but steadily getting issues again.
today is really bad with subtle involuntary jerking. i even feel a very, very slight twitch on my face - altho it happened only a couple times.
my hands are tremoring so bad it is obnoxious.
It is making me a little worried. Is it ok to be untreated until my appointment in december?
i dont know what to do. my primary doesnt say much about it. the rheummy who dx didnt respond to my call.
do i ask for antibiotics from my primary if i have no idea anything about Lyme or treatment of it?
Posts: 11 | From New Jersey | Registered: Oct 2009
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
up for imput
Posts: 2675 | From ct, usa | Registered: Jan 2004
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To quote from the transcript of Dr. S in there, regarding standard Testing:
"The two tier testing system endorsed by the centers for disease control has a high specificity 99 percent and yields few false positives
but the test have a uniformly miserable sensitivity 56 percent....
sensitivity is far below the 95 percent cutoff required for an accurate diagnostic test and much worse than the 99.5 percent sensitivity of commercial HIV testing..."
Others can add....
Posts: 571 | From Massachusetts | Registered: Oct 2008
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*Patient preference exists whenever there is more than one acceptable treatment approach.
Hence, the American Medical Association requires that the physician disclose and discuss with the patient not only the risks and benefits of the
proposed treatment, but also the risks and benefits of available alternative treatments.
*The legal doctrine of informed consent also requires that patients be advised of material treatment options.
Treatment choices involve trade-offs between the risks and benefits of treatment options that
only patients-who know the kinds of risks they are willing to run and the types of quality of life outcomes that matter to them-are uniquely suited to make.
*Respect for the basic autonomy of the patient is a fundamental principle of medical ethics.
Without adequate information about treatment options, their probable outcomes, and the risks and benefits associated with each, patients cannot act autonomously.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This thread list some actions to consider while you wait for your appointment. You can call the LLMD whom you plan to see and ask their advice after you find something here that resonates with you:
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The
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