posted
I started back on my flagyl yesterday morning too, and by last night I already felt it. The headaches are bad, but I pushed through it. You can do it!
I hope you feel better.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I had to start in pinches and work up to 3 a day.
One pinch made me sick, had to hit the bed, but I
have been able to get there and almost done. I
agree it is some good stuff for hitting them. But I
do think it should be pulsed like some are
recommending.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'm wondering if those severe migraines from flagyl are a herx.
should we just try to muddle through?
i've never had such extreme pain.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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I am taking 250 mg daily for 12 days so far. I have a little bit of extra stiffness and increased joint pain at night but no clear herx.
I'm supposed to take it for 2 weeks, then 2 weeks off, then try 500 mg for 2 weeks.
This whole thing is so confusing. I would feel like I was actually doing something if I felt a herx.
Posts: 984 | From US | Registered: Dec 2007
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posted
It has worked for me. I have typed this before. Of all the drugs I have taken/take this is the one that I can point to that I can say for certain has given me my most obvious progress.
With that said, I have had my worst herxes from it. I only take it 2 days a month - 1000 mg a day. When I started this in February, I herxed for two weeks afterwards. Last time, only 6 days. I took it yesterday and today. We shall see how it goes this time.
Let me tell you my emotional herxes from it are beyond belief. It has made me truly suicidal at times. Some people would say it is not worth going through that. They may be right. My fiance keeps begging me not to take it as it is so tough However, the progress that I have seen makes me keep doing it.
It has worked for me.
Kathy.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I hope it works.
Dr Trevor Marshall advises against it BIG TIME.
Says the drug is basically poison. And that the bad reaction we get from it is not a herx but side effects from the drug.
I hope he's wrong. Because this is tough.
By the way, lemon water saved my arse last night. That stuff really works.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
venus,
I'm ramping up. Definitely trying to avoid big herxes.
LLMD's all across the country are backing off the mega doses of flagyl.
Take it slow is the new theme. They discussed this in detail at the conference in DC.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
I hope you don't get depressed, but I think its almost un-avoidable on flagyl.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Venus,
You only take it 2 days out of the month and you see progress? My doctor might go for that idea. he doesn't like Flagyl. He says 80% of people on long term flagyl get permanent neuropathy.
After I took Flagyl for 2 weeks, I was diagnosed with Sjogren's syndrome. I don't know if the Flagyl had anything to do with it.
Posts: 2232 | From USA | Registered: Aug 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Haley,
Permanent neuropathy?
Good lawd. I don't wanna continue this stuff.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
That happens to people that take it for long periods of time. Some people take this stuff for months in a row. That blows my mind.
Posts: 2232 | From USA | Registered: Aug 2009
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Well, it caused TEMPORARY GLOBAL AMNESIA for me!
Luckily, I was sitting down in a building at the time.
I have no idea how long I was "out" before I realized I knew nothing--not who I was, where I was, or what I was doing.
That was the LAST flagyl I ever took.
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
cass,
What was the dosage?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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That is scary! I'm glad it was temporary!
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I had the same thing happen as Cass. I had a whole day like that and then it took a few days to get back to normal. Even things that happened on the 2nd day i can not remember.. Weird
I admit I have not taken it since but miss it. Before that episode it was helping me.
Dang it.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
and oh.. I was taking 750 mg 2x a day IV.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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quote:Originally posted by springshowers: and oh.. I was taking 750 mg 2x a day IV. [/QB]
YIKES!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I took 250 mg three times per day and did fine. Got rid of my lyme disease and no side effects.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Thanks for sharing!
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I'm on 250mg/day right now
Me and txgirl
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
As for the dosage, it was many, many years ago, and I don't remember. I'd been taking it for 2-3 days, as I recall, for a different infection than Lyme.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I had been taking my dose of 750 mg 2x day IV for daily for 6 weeks before I had the reaction.
I am now wondering if it was flagyl or the combination of it and the other abx I was on??
I mean.. wouldnt it show up earlier.>> I want my doctor to give it back to me. I was helping me..
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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quote: Dr Trevor Marshall advises against it BIG TIME.
Says the drug is basically poison. And that the bad reaction we get from it is not a herx but side efgects from the drug. I hope he's wrong. Because this is tough.
Hmm every drug is poison to some degree. I haven't read anything particularly bad about flagyl frankly
quote: By the way, lemon water saved my arse last night. That stuff really works.
Do you just squeeze lemon? how many lemons?
Posts: 856 | From MA | Registered: Jul 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
colt,
I usually just squeeze one entire lemon into 12 ounces water.
When I herx real bad I do 2.
Lemon Water is a great detox and can take some relief off of your liver.
I started milk thistle recently too.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Isn't Flagyl potentially carcinogenic? I think it says that in some of the official information that goes with the drug.
It might not be in some of the scaled-back versions though. Like if you go to drugs.com, you'll see there's a version for pharmacists, a version for patients, a concise version, etc. I'm not sure which exactly it was in.
But before anyone freaks out, a lot of things are either carcinogenic or potentially carcinogenic....the exhaust from your lawnmower, chargrilled meats, etc.
But anyways, if what I said is true, that would be something that sets Flagyl apart from some of the other drugs we're taking.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Okay, I just looked it up. It is a carcinogen in rodents.
Doesn't mean it is with people though....for example, with sodium saccharin, there are theories it is only carcinogenic in rodents because they aren't equipped to handle sodium like we can.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
My daughter has been doing flagyl and amoxicillin for close to two weeks now to treat H. Pylori and
lyme. She is doing amazing...but its pretty unsettling reading how bad flagyl is.
She has not had any side effects from it..hmm
Deb G
Posts: 499 | From Malta, NY | Registered: Dec 2008
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I suck down a lemon every day. I just open up the top and sit there and squeeze it right into my mouth. I do drink gulps and gulps of water too while I am doing it.
I was thinking I better start brushing my teeth right afterward?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Tindimax is in essence Flagyl but a little less toxic.
Might be worth looking into for those of you liking flagyl.
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I take Flagyl for 1 week each month (for probably 4 months or more). I just completed my first week, and I felt like dog poop. Headaches were pretty much constant, and I was tired all the time. One very interesting thing: I had roaming knee pain that eventually settled in my right knee just before starting Flagyl. It got so bad I had to keep my right leg straight going up or down stairs. After a few doses of Flagyl, the knee pain COMPLETELY DISAPPEARED!!!! Now that I'm off of it for 3 weeks, I've felt tinges of knee pain but so far (it's been a week since I've been off of it), it hasn't completely come back. Talk about RESULTS!
Posts: 39 | From Colorado | Registered: Dec 2009
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quote:Originally posted by springshowers: I suck down a lemon every day. I just open up the top and sit there and squeeze it right into my mouth. I do drink gulps and gulps of water too while I am doing it.
I was thinking I better start brushing my teeth right afterward? [/QB]
MIGHT help. I heard a dentist on TV this week saying to NEVER suck on a lemon due to the acid.
Nellie.. those are awesome results!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I'm taking 1000 mg of Flagyl a day 3 days a week. The other 4 I take Amox and Zithromax. When I first started Flagyl, I now think I had a bad emotional herx. I felt horrible and was SO down for like 2 days. Very depressed and felt my life was over. At the time I didn't associate it with the new med, but looking back I bet it was a herx.
I've been taking it for about 4 weeks now and am not depressed anymore (well not like I was). Since starting my new regimen I've also been in more pain and having muscle cramps.
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