posted
Hello. I am new at this. not even sure I have the right place but I think so, thank you bettyg/
My doctor has taken me froom a swooping fentanyl 250mcgs to Methadone 5mg every 6 to 12 hrs., in
about two months which may seem relatively appropriate but I am not getting the pain
control anymore and I am tired of suffering. I am very, very tired of it as many are. I am
hesitant to say much because so many here are suffering in one way or another and mine is no different.
but I am angry at the disease; angry at having to defend myself, and angry because it is unnecessary to suffer like this.
Yet at the same time I am ashamed to be complaining like this. I am ashamed to exist sometimes. My husband is very supportive but it takes its toll on my marriage.
None of this isnew and we are all suffering I know.
I am used to helping others as an RN. I have been through lots of things which made me an even better listener as a psych nurse 15=17 years ago.
So one of the things that helps the most is to hear other long term chronic lyme and pain sufferers who have made it, and I've read some of your stories.
Still, I am angry. I just don't want to turn that anger on myself, or God forbid anyone else.
That's not fair. It is noone's fault. Not God's. Life happens. I know.
But why do some doctors have to be so cruel to patients who are hurting and wasting their lives in pain when it doesn't have to be that way?
My doc is a neurologist in N. La. where there are no lyme docs and everyone seems afraid of the DEA to be frank.
Of course we all know Louisiana is a most backward state; I can't move as my husband's worklife is here.
So why are we treated so poorly, us pain patients in La.? Is anyone out there from Louisiana?Well. thanks for listening. jo...
By the way I double spaced etc but if it doesn't turn out that way I will have to find out why; thanks for listening....jo
Posts: 6 | From Shreveport La | Registered: Nov 2009
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posted
jo- So sorry to read about your pain. I totally can relate, as my chronic pain is very severe and requires the strongest pain meds to make a dent in it. Bottom line for me is I cannot rest/heal if my pain isn't under some level of control. It's top priority followed by the right abx's and other supplements such as probiotics. If your doctor doesn't "get" this, I hope you can find one who can. Meanwhile some other things have helped, including muscle relaxers (Flexeril), sudafed and sleep aids (natural like melatonin). Also hot baths with epsom salt.
-------------------- m2 Posts: 13 | From Redmond, WA | Registered: Aug 2008
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posted
Dear m2, Thank you so much for your reply. I will try your suggestions and have used some in the past. It is good to hear that someone else understands the strongest meds for this pain to make a dent. I get this alot"It is not cancer pain so you don't need the strongest meds..." and of course she's right as far as I know, but that does not seem quite fair in the scheme of things. Anyway, thanks. jo
Posts: 6 | From Shreveport La | Registered: Nov 2009
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Joalice,
There is a member from LA, Geneal, who might be able to recommend a good lyme literate doctor for you in the area. I agree with m2's advice, rest is important in dealing with pain as the epsom salt baths have helped me.
Pain meds can be difficult. Hope you can feel better soon.
Posts: 2557 | From home | Registered: Aug 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I am sorry you are in so much pain. Mine got so
much better in treatment but in the beginning I did
hot epsom soaks sometimes 3 times a day. Very
exhaustive but was able to get good sleep. I would
not do this without someone there if you are
medications and I would only get it as hot as
comfortable.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I am sorry you are in so much pain. Mine got so
much better in treatment but in the beginning I did
hot epsom soaks sometimes 3 times a day. Very
exhaustive but was able to get good sleep. I would
not do this without someone there if you are
medications and I would only get it as hot as
comfortable.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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