posted
I am in need of feedback for my 21 yr old son. Has been treated since spring of '06 by a llmd, one of the best. He has shown great physical improvements, pain gone, able to exercise. Has always had a pretty clear cycle of herxing with clear times of improvement. We even thought that he might have been close to finished until last April when a challenge of zithro and mepron sent his brain to La La Land. He has been there ever since even through a number of changes in antibiotics. The latest, moxatag seemed to have the slightest bit of improvement for about a week and then back to Total La La land. He hasn't driven in months, he needs coaching to accomplish anything. This is perhaps the longest , hardest herxing ever or what??? We are seeing dr tomorrow. It has been a lonely 4 years for my son. He needs to find his brain enough to have some kind of life. I go back and forth: Stay the course, go back to square one, go off of everything??? What to do?
Posts: 28 | From ri | Registered: Oct 2009
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posted
Moxatag is relatively new. It is a slow release amoxacillin. Clindamycin and quinine have not been mentioned, but I will check it out with dr. He did react strongly the first time he had mepron. I guess the assumption was that it wasn't time to end treatment because it raised such a flair.
Posts: 28 | From ri | Registered: Oct 2009
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posted
Somehow I missed the line where the crystal ball was handed out. Does anyone have a spare?
Posts: 28 | From ri | Registered: Oct 2009
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WildCondor
Unregistered
posted
I would not bother with clindamycin/quinine it is an extremely outdated protocol and much better and safer options are available now.
stopping treatment because of a flare= illogical. WHY! Keep going so you can kill the bacteria. Ugh.
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posted
Thank you Wild Condor, It was a restless night and I hoped on before leaving for the big Conn. drive. These last few months have seemed so persistently brain involved that my fears have overrun my logic.
Posts: 28 | From ri | Registered: Oct 2009
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posted
I see that I "hoped" on the computer this morning. I was thinking Hopped on but really it was hope that was motivating me. thanks again
Posts: 28 | From ri | Registered: Oct 2009
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