posted
Ok, now that this has been established does this also mean I can apply for disability to help with income and Dr. bills?
Who reports it to the CDC Igenx?
-------------------- bugbite's BITE! Posts: 51 | From USA | Registered: Oct 2009
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WildCondor
Unregistered
posted
Lyme is a clinical diagnosis and you do not need testing to prove anything. The CDC is the one who made it a clinical diagnosis. Educate yourself please.
Apply for disability indeed, and list every misdiagnosis and symptom in your paperwork.
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posted
Thats a good idea to list how many doctors and misdiagnosis I have had. I didn't know you could do that. Plus I thought you had to have a positive test to prove it.
I am trying to educate myself, it is all very confusing.
I look up what I can by a cell phone, I hope to have a computer soon.
Thanks for your help!
-------------------- bugbite's BITE! Posts: 51 | From USA | Registered: Oct 2009
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WildCondor
Unregistered
posted
You do NOT need a positive test, Lyme is a clinical diagnosis. Many people on here talk about tests endlessly, and even put misleading western blot results in signature lines. It tends to be very misleading and confusing. Don't be fooled or mis-led.
Many LLMD's do use testing as a supportive means to the clinical diagnosis, and usually this is done to appease insurance companies. Insurance companies love to deny Lyme patients treatment, and instead wish to pay corrupt doctors to say that chronic Lyme does not exist, it is more economical to them.
When I say list your misdiagnoses, if you have say for example, chronic fatigue, then list CFS on the paperwork. Disability recognizes CFS as legit, whereas Lyme they tend to balk at due to the political nightmare surrounding this disease. If you have been told you have Fibromyalgia, CFS, MS, blah blah...list them all on your forms.
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posted
Thanks WC, I have one more question please. I have been Dx with CHF (congested heart failure) no CFS or Fibro, will this help even though it is not one of which you mentioned?
I apologise for sounding so stupid, I have been ill for so long and have been told so many times nothing is wrong with me.
Just this last year a name is being placed on my illness.
CHF, Lyme and chronic uveitus.
I lost my job, my Cobra runs out in one year unless a disability extends it.
I pray I now have enough to qualify me for disability.
TUTU am I lucky having a positive for insurance purposes? I don't feel so lucky.
-------------------- bugbite's BITE! Posts: 51 | From USA | Registered: Oct 2009
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posted
CHF should help you get disability. Go to General Support and look for minoucat's link on disability. I'll go look right now to be sure it is there.
You will have to fight hard for disability. Get a lawyer if you can. Most will work for you and then get paid when you qualify.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Having Lyme certainly doesn't make a disability company consider you disabled even if CDC positive. You're disabled by what you can't do, not by a labeled diagnosis.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
PAIN mainly keeps me from doing what I use to do, unrelenting fatigue keeps me in a bed days at a time, sometimes weeks.
Uveits is steeling my eyesight, seems as though white blood cells are going to my eyes to fight an infection that isn't there. They are misdirected by the autoimmune systen my eye doc say's.
There is inflamation alright, all thru my body. I can't go anywhere without sunglasses. In the stores I always feel like such a goof ball because I have to wear them all the time.
This last year has been hell to say the least.
If this last year has taken so many doctors and so many treatments I can only guess what the next year will be like.
Thanks TuTu for the link on Disability. I have to start somwhere.
-------------------- bugbite's BITE! Posts: 51 | From USA | Registered: Oct 2009
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You're disabled by what you can't do, not by a labeled diagnosis.
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