Then find a physiatrist (pain doctor). Get your GP to recommend one. PAIN IS THE PHYSIATRIST'S SPECIALTY. (didn't I suggest this many topics ago?).
Now, there are some who are morons, like the one that said my brother's pain was because he needed to "calm the fire" inside him. He recommended yoga. ( I was surprised my brother didn't shoot him).
But the next one he saw was on the ball and tried different meds. He was able to manage the pain. The Dr actually rx methadone, that was the first time I had ever heard someone getting it for pain.
Right now you want to kill yourself to stop the pain. If your GP won't address it, tell him your kin will sue him for malpractice once you've offed yourself.
Good luck, man. It really upsets me to know you're dealing with this.
James
Posts: 872 | From New York City | Registered: Jun 2008
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richedie
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Man it hurts to type! UGH
I hate my GP and will not go back. Maybe I'll have to find a new one.
Calm the fire? I would have shown him what the fire was all about!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
Rich, I'd like to go into more detail if I had the time but I'll try and get back later...
You need competent physicians to help diagnose and treat your underlying conditions, whatever they may be. That will come. Immediately though, it seems you need pain control
Look around for physicians noted as pain management specialists. They are often anesthesiologists who have taken a fellowship in pain management. They will provide pain relief for people who are suffering, and are usually not judgmental. If you PM me and tell me which Maryland LLMD you see, I might be able to give you a pain management practice close by.
One thing that frustrates me about most LLMDs and those that treat associated chronic illness, is to carry on about how you are treating the patient with a holistic approach, without regarding their pain either by handling the pain control themselves, or referring to a pain specialist.
Posts: 691 | From East coast, USA | Registered: Jun 2006
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richedie
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I just got back from the Orthopedist. He said it seems like a tear based on my symptoms as hw moved my shoulder around to gauge the pain, strength, etc.
He is sending me for an MRI, possibly this week.
So, it is either just Lyme or another infection causing the pain and the MRI will show nothing...maybe some inflammation. Or, I over did it in the weight room when I started feeling better.
Saved10, do you have stabbing pain in your shoulde? I found others that do have this.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
On and off, I have pain in the shoulder, elbo and wrist...seeing my LLMD on the 28th to talk about the pain and inflammation.
I had an MRI on my elbo a few years ago, showed nothing but inflammation. I was told I had PD before I had test done for Lyme. I've only been in treatment for 8 month, sick for 5 years.
I was doing really well when I was on flagyl, making a great deal of progress. I feel like I have back slid some. Hoping to get Med's adjusted this month.
Hang in their!!!!
Posts: 200 | From Nevada | Registered: Dec 2008
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posted
JamesNYC, interesting about your old injury flaring up....during the worst of my Lyme, an old scar started hurting that is almost 20 years old. I noticed some other areas of previous injuries also aching. I assumed it was my auto immune system working overtime, but have read much on this forum about Lyme attacking connective tissue as well, so who knows?
Richedie, I hope you find answers soon.
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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posted
I sure hope you see results soon. It took me one yr to see ANY progress...two years before I thought I might actually get well.
Finished treatment in 4 yrs. Hang in there!!
PS.. I just edited out the reference to an MRI.. I didn't read all the way down! I am so glad you are going to get one. Sure could be something that needs to be repaired.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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we are on a similar schedule with shoulders. i go to orthopod tomorrow. hope i can get an mri the same day.
would a tear cause weakness?
Posts: 830 | From Colorado | Registered: Mar 2005
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richedie
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aliyalex, A tear would cause weakness in that it would stop you from being able to do much due to pain. Sound like you? Do you have stanning pains?
I am trying Dr. Singleton's Inflammation diet to see if it helps.....but no change after three days.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Haven't you torn muscles before in your life? Has that EVER given you pain like that? Unrelenting to the point you want to kill yourself?
I find that a very unlikely dx. Plus, if you tore a muscle THAT badly, you sure as HECK would have felt it at the time!
Is your pain in your muscle, the bone, or undeterminable?
Someone mentioned bart to me as a possible cause of that kind of pain.
I don't know a whole lot about bart, but it might be worth exploring.
Did you get any painkillers?
James
Posts: 872 | From New York City | Registered: Jun 2008
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richedie
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Never ever torn muscles, tendons, anything. Pain was just deep in the joint, then I could feel pain in the muscle, the deltoid muscle. Really hard to determine. I will say, if I try to lif something out to my side...I get a STAB!
I won't be on Bart meds for a while I see my doc tomorrow.
I am trying the Dr. S. Inflammation Diet but I have my doubts. I don't feel food is making a difference one way or another for me. Plus, I am really not eating now because his phase one is dreadful. How much brown rice and veggies can i eat.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Pinelady
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-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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richedie
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I saw my massage thrapist/trigger point specialist today who thinks it could be frozen shoulder since I have been limiting use of this arm since my forearm and wrist hurt. The chiropractor felt this could also be the case.
I can't get in to have the MRI till December 21st! Yikes!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
Great news!!! I was doing the same thing...limiting my use as well.
I have long way to go to work things out...but I'm working on it!!!
Hang in There!!!
Posts: 200 | From Nevada | Registered: Dec 2008
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richedie
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But, one thing that stands out in my head is I had ulnar entrapment surgery two years ago on my left arm. Two weeks after surgery I started having my tingling in hands and feet, plus other things.....the onset of Lyme. The doctor who moved the ulnar nerve said he could not believe all the inflammation in the joint.
Can you say Lyme? I wondered if the pressure from inflammation or something was irritating the nerve, hence the mimicking of the ulnar nerve entrapment.
Either way......I started having the wrist pain about a month after the surgery......two years later...the entire arm hurts like hell!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
I read some where when you have Lyme it can be difficult on the healing progress after having surgery. Don't know wheather that is true or not...However
I had surgery on my foot about 4 years ago. I still can not walk without that foot cramping.
I've been to a lot of foot Dr's and they could not figure out why my foot would cramp. I've been sick for 5 years!
When my LLMD put me on Flagyl I was able to walk on that foot better, I was shocked. I did not have any inflammation in my foot.... Once the Dr took me off Flagyl my foot started cramping again and the inflammation started up!!!!
Good thing I see him in a couple of weeks!
Posts: 200 | From Nevada | Registered: Dec 2008
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richedie
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Well, I got a prescription for ER Ultran today.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
my orth said i have frozen shoulder. duhhhh. i didn't want to tell him that my female chiropractor already told me that.
and the mri (hideous) was today. i kept spasming and he had to redo many times. TG my medicare came thru tuesday.
The hotshot orthp from Vail told me i should have a steroid shot. he said that it was only oral steroids that exascerbate lyme, not an injection. i just didnt go into it. what do you say to that? i was too tired to deal with the blank stare.
Posts: 830 | From Colorado | Registered: Mar 2005
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richedie
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You can thaw a frozen shoulder with conservative measures. If that is what I have....I will do it that way! I get my MRI in two weeks. It is an Arthrogram.
You were spasming? What do you mean? Your shoulder? Did they give you a shot of die. I think that is essentially an arthrogram. I wonder, does it contain anything toxic like Mercury! I just had a mercury filling removed, so I don;t want to add more back into my body.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
Rich, I agree with James. Get thee to a Pain Doc!!! I was on methadone for years and had IV lidocaine 2xweek for terrible pain.
My husband asked the hospital pharmacist who frequently wrote tripliket prescriptions (hard narcotics for pain). That's how he found my pain doc.
Now I no longer need the methadone, morphine, etc. She had and continues to have wonderful meds and ideas to help the pain. If you want me to email you my current pain regimen just PM me.
I am so very sorry to hear your sorrow and frustration. I guess we have all been there. I've been at this for 21 years. But I did have great luck with IV antibiotics....just didn't stay on them long enough. So I know there is a light at the end of the tunnel. Just one tiny step at a time and you'll get there.
I am a different person now and probably a better one. Before I was so active, driven almost. Now I am more compassionate, much wiser and I think a better person. My marriage is certainly much stronger now than before my illness.
Things happen for a reason....even lousy things. I try to find the opportunities for growth in everything that comes my way. I hope I am setting a good example for my children and grandchildren. I might add that I have also learned to swear most creatively!
Good luck and PM me if you want to chat.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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