posted
So, after my E.R. visit yesterday, I'm starting to feel better tonight. I continued antibiotics this morning, felt horrible, and I got some detox supplements, Epsom salt, etc from the health food store. I created my regimen with the help of "The Lyme Disease Solution" and with the help of an absolutely brilliant guy that works at the store (Saves a trip to the N.D.). I closed the book and had him shop for me after everything he recommended was written word-for-word in my book, and everything he said was completely accurate.
$140 dollars later, and after some nasty tasting green supplement, some Chlorella, Zinc, N-Acetyl Cysteine and Whey Protein (to help make Glutathione I think), and some antioxidant mixture (Containing Turmeric, Green Tea, Clove, Ginger, etc), I feel 100x better. Maybe it was just a cooincidence, but can this stuff detoxify you that quickly? I can feel my bowels moving freely and growling again. I felt scared all day since my brain wasn't functioning properly, and now I feel ok. I was even considering a psychiatric center earlier today.
Yesterday, after waking up in a worse state than I fell asleep in, I went to the E.R. with a body temp of 93 and confused to the point where I couldn't communicate what meds on was on, etc. It randomly jumped back to 98.6 a few hours later and I went from feeling cold to hot in the matter of minutes. I could think a little clearer, but my brain still wasn't functioning normal. It just felt like I was stuck in a drugged nightmare with limited control.
My doc thinks maybe thyroid caused hypothermia, and maybe he is right, but it felt like my body was temporarily shutting down because of toxic overload to me (though that's just a feeling). Everything (including CT) was pretty much normal. There is a 1 cm lesion on the front left of my skull that looks benign, and they don't think further investigation is necessary.
Thank god everything is ok, and hopefully detox will make these herxes feel more safe. I'm on a relatively low dose of abx right now too for Lyme/Bart. I was previously doing nothing (besides a healthier, low sugar diet) for detox.
Time to take a epsom salt bath and relax a bit.
Trying to stay optimistic through these random rough patches! Thanks everyone here for your support and help.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
I'm glad you're feeling better. Detoxing makes a huge difference. I never used to believe that a simple detox could help me feel better until I tried it one day. I couldn't believe how much clearer my mind was.
Did you get the hydrogen peroxide too?
-------------------- The advice I give, should not be considered medical advice. My opinion comes from years of research and experience. Posts: 233 | From Somewhere | Registered: Sep 2009
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes it can make you feel better that fast. It could also be adrenals and thyroid.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
Well, not feeling so good today. Going to stop all medications. I have a hangover like headache, and I can't live like this. Haven't detoxed today as I took my benzos, and want them to be active before taking my detox stuff (if it makes a difference). Benzos are little help it seems right now. Made sure my body wasn't hypothermic again (it's fine).
I'm not psychotic or anything, and if I were feeling ok, I wouldn't be for masking symptoms, but I am wondering if an anti-psychotic or something can help me for now. Chest hurts (been tachycardic for the last several days), head hurts, eyes hurt, muscles hurt, but what bothers me most is the fact that I can't think and feel like I'm going to die. I have much trouble going to sleep and sleeping alone. I don't think the cause is mental, but if psychoactive drugs can alleviate the fear, I'm all for it. I can't tolerate typical anti-depressants, so that's not really an option right now.
Right now, my family perceives me as looking and acting "normal", but I feel anything but normal. I feel that something is terribly wrong. It's feeling I had for a week after my first herx, but not a feeling that I feel like I can live with.
I tried to see if I can make an appointment with my psychiatrist today, but it's full. I don't know what to do, and I hate this.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
posted
Well, I had a severe feeling of doom and confusion all day (starting as soon as I woke up), and so I asked my mom drive me to a psychiatric hospital in hopes that there were drugs to mask those feelings. At 6:25, while driving, the feeling randomly and completely went away... as if someone hit a light switch. It was weird to say the least. For this reason, we ended up going home. My mom was upset with me, but that's another story and not important. She was just frustrated, but I love her, and couldn't do this without her.
I stopped all my abx: Doxy, Plaquenil, Rifampin, Nystatin. Not sure what I am going to do. Think I will see how I do for a couple weeks off abx again. If I do well, and this neuropsych stuff stops, I may try natural treatments or chinese medicine such as Dr. Z's protocol. My MD said he works with those doctors and can help me with another protocol. I simply can't tolerate antibiotics right now. I've realized the anxiety I have because of them isn't healthy for me either. I really tried to keep taking them. I really am too ill mentally and physically right now. Not sure if it is side effects of abx causing this mess, but I always try to find something to blame.
I never thought this would be so hard. Where can I find the easy fix?
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
As I'm sure you know, there is no easy fix. But, as others have said, DETOX is absolutely key! And that is true no matter what treatment you use. Probably more so with abx, but I had the same problem when I was just using natural treatments---in fact it was worse! (With Rifing that was).
But it does sound like you need to back off, detox, and then go from there. Your experience with taking the detox stuff gave you the experience of that. Plus, there are stronger (but not too strong) ways to detox, like coffee enemas, liver flushes, etc., etc.
Posts: 3792 | From around | Registered: Mar 2008
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
They make some stuff called Detox sold in
pharmacies. I think drug users use it to get a job.
But I found it works for things like chemo for my
dad. The bottles are liquid and look to be mostly B
vitamins. But it makes him feel a lot better after
chemo. So it may be a quick fix.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
I didn't sleep last night and I couldn't get any sleep today. I looked at my labs, and my potassium and sodium were low, so I picked up some products with potassium and sodium and lots of stuff for hydration. This includes peanuts, cliff drinks (contains Real Salt for electrolytes), coconut water (lots of potassium), etc. I have potassium supplements, but it makes more sense to get it from food to me.
I am 23 years old, and I often have low potassium when I go to the hospital which is "rare" according to doctors. I'm surprised my sodium was low as I add sea salt to everything I drink. It makes me feel better.
Well, I drank a liter or two of fluids, ate some salted peanuts, had a half of a potato, some fish, and my anxiety is so much better (though still not where I would like it to be). I am not feeling so toxic anymore after taking my detox stuff. I always forget to hydrate myself, and I think proper hydration alone helps a lot with my symptoms.
So, it's round 2 of trying to get some sleep. I am exhausted.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/