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» LymeNet Flash » Questions and Discussion » Medical Questions » IV Rocephin and massive anxiety, anyone else? do?

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Author Topic: IV Rocephin and massive anxiety, anyone else? do?
netslacker
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Member # 13893

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I'm posting on behalf of my wife who is on her 14th week of IV Rocephin. Since about 3 weeks into the IV she started to get anxious. It continued to get worse and now it is very debilitating for her.

She's been given every anxiety drug under the sun, some of them make her vomit - so those are no good - while others (Xanax) work only for a short while. Her anxiety is constant, never goes away and has been getting worse the last few days.

She is currently taking Klonopin and then supplements with Xanax, but this combo seems to be losing it's edge. Her psych tried to get her on zoloft for a more stable anxiety control but that's one that didn't agree with her and she was throwing up the next morning.

Occassionally she gets strong waves of anxiety that come on suddenly (on top of her constant anxiety level). When this occurs she feels nautious and there's really not much that works for her.

Help! What are others doing in this situation? We're really open to any suggestions at this point.

Thanks,
Rob

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supportive spouse of Lyme suferer.

Posts: 14 | From UT | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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Hey net..

Sorry to hear about the raging anxiety being out of control.

It would be very difficult to come up with a solution if the docs haven't been able to at this point in time.

Not knowing her full history, etc.. or much of anything about her.... and not being a doctor myself...

BUT... knowing what I know and what I have been through and watched others go through....

When nothing else helps... you might ask the docs if you should take a break from the Rocephin until she levels out some.

Her body is telling her something isn't right. I encourage people to listen to that message... it can save lives.

Another off the wall thought- Is it possible this is an allergic reaction? They can come at any time and remembering back I was on IV Rocephin for several weeks (my second go around).. and anxiety hit me one day and I felt like I was going insane and was totally out of control with anxiety.

This lasted a while then the hives hit.

Again, I am not a doctor... and this is all that I can come up with right now. Wish it were more and I do hope it calms down for her ... and YOU... real soon.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
smiles132002
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I don't have anxiety like that often. Infact I am not sure that I ever had-but I have to hide everything about me being sick to my work. I am doing iv rocephin as well and i have axienty about carring around this huge secret.

When I am not feeling well. When I feel like I am at my breaking point. I stop meds. Even if it's for a day or a week. Pulsing has been proven to be effective, but it also gives our bodies a chance to re-coop. It also helps our spirit. I am not a doctor but I would say if she's at her breaking point perhaps her body can't process all these toxins and she needs a break.

Also for me infusing with 500-1000 cc's of saline REALLY helps. I don't feel as tired after infusions and the saline helps to keep my electrolites balenced which can affect your mood.

Good luck

Posts: 484 | From Burlingame, Ca | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
netslacker
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Thanks for the replies. We discussed giving her a recephin vacation, maybe once the current batch runs out (time sensitive stuff). Seems that may be the answer, and if the iv vacation happens over Christmas that may be just as well.

She is also taking 1000cc of saline daily. She claims it helps but I believe its minimal.

Many of her other symptoms have been clearing since on the Rocephin. So we have hope that this treatment will finally do it for her and get her feeling better overall. Is that the general experience with people that do IV rocephin?

Thanks again.

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supportive spouse of Lyme suferer.

Posts: 14 | From UT | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Truesun
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HI, I recently went through this again when starting the Bicillin shots. I have tried every anti-anxiety drug under the sun. My very best help has always been knocking down the fungus which grows like crazy when on high dose antibiotics.

The saline did help me some also. My best friend to this day is Diflucan. As long as I have that I don't need anti-anxiety meds.

Dr. K says it acts as an immune modulator. The neuro toxins the yeast releases is what causes my anxiety.

I am not a Dr. so talk to your wife's and good luck to you. Truesun

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Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful.

Posts: 144 | From Ohio Valley | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
   

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