Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I've always done 500 mg per day, but I've heard of people doing 1000 mg per day.
I did 1,000/day on accident for a week once, and it upset my GI.
Posts: 4590 | From Midwest | Registered: Jun 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I've been on a 1,000 mg daily. It's 1/2 what my doc ordered initially.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
My 7 yr old takes zith 250mg once a day, (he also takes omnicef 300mg once a day). Considering he only weighs 68lbs, it seems like a lot to me...
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I took 500mg twice a day for about six months.
I took it with doxy, probenecid and bicillin.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I took 500mg a day for the first month. At that point my body was saturated and went to 250mg a day. No pulsing, I took it everyday. I was also on Flagyl 500mg the first month as well. And Diflucan, but don't remember the dosage on that.
Zithromax stays in your body for up to 5 days, so it will build up until you have a very large amount in there all the time.
Medications should be dispensed according to your weight. So we all would not all be on the same exact dosage.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I take 500 mg once a day and 600 mg rifampin once a day. I was supposed to add diflucan (made me dizzy - I need to try it again) or plaquenil.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Sounds like many of you are taking just as much as I am and even more in some cases.
I don't understand why I haven't herxed?
Seems like if anything I'm feeling better.
I have had some bad lower abdominal cramps and acid like bowel's so laid off a couple of days and just started back slowly with 500 a day to start with.
I take diflucan with the Zithro, are the wild cramps a side effect of the abx or the killing off of Lyme in my lower gut?
Have any of you had this?
-------------------- bugbite's BITE! Posts: 51 | From USA | Registered: Oct 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Most abx can cause diarrhea - it is killing the beneficial flora in your intestines. I have had some stomach pains while taking this combination. Be sure to use probiotics. It is good you are feeling better.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
I took 600 mg a day for close to a year. If I didn't take it with a LARGE meal it would tear my stomach up. Also, it's not uncommon to feel better at first. I'm betting you'll be hit with a good herx pretty soon.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I found that when I begin a really effective treatment, there is a one week "honeymoom" before the big herx knocks me off my feet.
The greater the honeymoon, the greater the impending herx.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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posted
When i first started Lyme treatment, i didnt herx until my 14th day. Now i herx by my 4th day with each new abx.
It's hard to say, but if it's not causing you to crap 10-12 times per day, problem swallowing, air hunger, nausea...than keep up with it! I had to quit after a month.
It's a great thing--no real problems with meds.
But i understand your worry if it is working. This one will work---very powerful.
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I've been on 250 mg twice daily for a year. Trying to switch it up, my insurance just denied Moxatag, dammit. Don't know what my LLD will use instead. I've been at this for 5 1/2 years. I also take Plaquenil and have been on many other abx along with them, this is the least I've ever been on.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Tracy, after 5 1/2 years does your LLMD still think things will turn around? I recall the other Dx you recently had that may be the reason behind some symptoms. I wondered how long a doc will treat TBDs with no big improvement. You're tenacious for sure! I really hope the IVIG helps you big time.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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-------------------- dar Posts: 95 | From michigan | Registered: Sep 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Yes, I just got approved for IVIG. Certainly the Lyme is the lesser of the issues now; my CD57 was 32 last year and is 120 now.
My symptoms almost all fit under small fiber neuropathy. I am just waiting for the Cancer Center to finish up all the approvals for my first dose to be done there, and the home nursing agency has already obtained approval for me to get the next six months done at home.
The home nurses are convinced this is going to turn my life around. They say they have seen sooo many people like me who have just been bedridden, fatigued and absolutely incapacitated who have regained thier functioning on IVIG.
I do still have to treat the Lyme and Bartonella though, as one of them caused this. I'm anxious to start the IVIG as soon as possbile after the holidays, for sure!!!!
Meanwhile all Im on now is Zith, need to find out what's up with the Plaqunil because my pain is through the roof, and I hate to take pain meds. I usually rarely need them. Not sure if insurance denied it or what. And I start Rifampin in one week.
Missed appt with doc who prescribes my IV abx, just as well, don't want to start too many new things at once. I'd rather get the IVIG going. I see him Jan 15. Not too many options left for me, maybe IV Doxy?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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