posted
My daughter had lyme colonize the eurethra: major bladder issues. She had pain, burning, frequency, inability to hold it and general discomfort- all symptoms made MUCH worse by eating sugar.
These issues resolved completely with treatment. She also had a coinfection of babesia which I thought might have caused the stabbing eye pains.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
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posted
catskillmamala- which abx do you think helped with the bladder symptoms? Is she able to eat sugar again.
My bladder symptoms are better after I went to physical therapy for the pelvic floor muscles, but if I eat anything overly acidic or my bladder trigger foods I am in a flare.
Johnny just curious how can you tell it is indeed the bladder causing the pain?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
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pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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nefferdun
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I went to the doctor because I thought I had a bladder infection but it was just related to bart. I had bladder pain and the urge to go. It is the one symptom that has not yet returned in this relapse.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I have frequent bladder infections and IC. I, fort. or unfort., have nerve damage so don't feel the pain but every now and then. Rarely, I get the stabbing.
I do get bladder irritabily often, although Elmiron and atarax has made a great improvement. The funny thing is most of my pain was in my urethra.
Cantgiveup, have you tried taking Prelief before eating acidic foods? My uro recommends it. It really helped me.
posted
I've had the same pain/soarness in my urethra for about the last 5 years. Doesn't matter whether I'm using the restroom or not. Also have problems emptying. It seems to run down into the prostate (with all the nerves down there it's hard to pinpoint the exact source but it seems most intense at the tip).
It's done nothing but get worse, am about to switch LLMD's and am hoping a more comprehensive treatment protocol might make a dent in this. My first LLMD is convinced it's Lyme or Bart...hopefully he's right.
Visits to urologist and treatment in that direction prior to being diagnosed with lyme went no where.
As for he stabbing pains I do seem to get those about 1 to 2 times a month and they just last for a few seconds and then disappear.
Not fun Johnny, hope you find some relief.
Posts: 101 | From Living in the Now | Registered: Mar 2009
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cantgiveupyet
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J-Liz yup, prelief is a lifesaver for me...it allows me to eat many foods I once could not...and just got me out of a holiday flare I was in. It doesnt work all the time, but most of the time it does.
Have you had your pelvic floor muscles evaluated? It turned out my urethral burning was coming from the tight muscles.
quote:Originally posted by j_liz: I have frequent bladder infections and IC. I, fort. or unfort., have nerve damage so don't feel the pain but every now and then. Rarely, I get the stabbing.
I do get bladder irritabily often, although Elmiron and atarax has made a great improvement. The funny thing is most of my pain was in my urethra.
Cantgiveup, have you tried taking Prelief before eating acidic foods? My uro recommends it. It really helped me.
liz
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
My uro had suggested pelvic floor therapy a few yrs. ago and then recently my gyn did, because of vulvodynia. I just can't, it's too personal.
The PT who does my lymphatic drainage said she would learn it thinking that would make me more comfortable (her doing it instead of a stranger). But I just can't.
My symptoms are pretty well managed. One thing that was weird was that part of the vulvodynia was feeling like it was a bladder thing going on. As soon as I used the topical gabapentin/lidocaine that stopped.
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