LymeNet Flash: Test results - need help to interpret

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Test results - need help to interpret

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Author

Topic: Test results - need help to interpret

kmj
Member
Member # 18400

posted

I just got my 2nd round of test results. My first

ones done a year ago were -ve on IGM and +ve on

IGG.

This time, same thing except the IGG shows

stronger +ve. Had borderline +ve last time.

I had Babs FSH test done a year ago too and was

treated for Babs - Mepron/Azithro combo for 3

mths. Recent FSH for Babs is -ve.

So my question is this. Do you think the results

are really indicative of long standing lyme

infection. I've come to a dead end everywhere

else.

I have a LOT of neuro problems - tremor,

weakness,

twitching, sensory problems, headaches,

muscle pain, mouth/throat/tongue issues - pain,

tingling etc, some muscle wasting, on and off

swallowing

problems and speech problems, vision probs in

right eye. Been going on now

for 3.5yrs with no dx for neurologists.

I am drained mentally and physically. I asked thE

LLMD if Lyme could really cause all this stuff

and he said "with Lyme, anything is possible".

Would LOVE to know what any of you think? I feel

beaten. I just don't know

if I am barking up the wrong tree so to speak.

Thanks for reading.

Here are the results:-

18 kDA ++
31 kDA IND
34 kDA ++
41 kDA ++

On the IGG, I had 3 IND bands. 31, 41 and 83-93.

Anyone? Thanks again.

Posts: 42 | From new york | Registered: Dec 2008 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

You are on the right track. 83-93 is the DNA of

borrelia. If you have been treating for over a year

it may be time to consider IV? But I don't know

how you have been treated so maybe more could offer

other ideas?

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

Those are positive Lyme bands, plus so are your symptoms.

How have you been treating the Lyme?

I just put a post on Radha's thread about eyes - how I am successfully treating eye symptoms, if you'd like to go see.

Posts: 13171 | From San Francisco | Registered: May 2006 | IP: Logged |

kmj
Member
Member # 18400

posted

Thanks for your replies. I have not been treated

for Lyme yet, only Babs. I started the babs

treatment in Spring this year. Did it for 3 mths

and then quit when I had bronchitis (sp?) and had

to take yet more drugs. It was all too much.

I did not start again. Had to wait 4 months to

get back in to see the LLMD at which point he

repeated the bloods. The results are the ones I

just posted.

If I do indeed have Lyme, I think I got it in 2000.

I was upstate NY working on a tv commercial and

we were shooting in long grass. I felt something

bite me - but it looked like a spider bite not a

tick. I have had a ton of tick bites as a child,

literally pulling them off myself weekly - grew up in the country.

Back to the bite, there were 2 very clear holes in my ankle. It swelled and

tracked red all the way up to my knee - was like

that for at least a week. I got steroid shots in

hospital.

After that, I started having seemingly unrelated

health problems. Got dxd with a brain cyst of

unknown etiology after having weird dizzy spells. No-one has been able to tell me

how/where it came from. Size of a golf ball but

stable. I began feeling disoriented.

Then 01, dx'd with SVT - tachycardia. Faint/light headed.

02, miscarriage. Later that year, chest pain dxd as pericarditis.

03, bone pain in legs, saw doctor, tested for

Lyme (-ve) and all other tests _ve. Disappeared

on its own.

04. Dx'd Chronic sinus disease. Have had sinus

problems ever since. I get very congested, pain

pressure in head etc.

By 06 the neuro problems had started. I now have

a lot of ALS symptoms but thank god, so far no dx.

LLMD says that he is not convinced my problem is

Lyme. He thinks it may be part of the picture. I

want it to be the answer of course. I am desperate

and afraid that after all this time of neuros

saying they don't know what it is, they will give

me the ALS dx. Terrifying for anyone but I have 2

very young children.

Anyway, I got off track here. It is just good to have someone to "talk" to who understands.

Re the eye thing, I went to an eye doc. He tested

my vision and said I needed reading glasses - which I bought.

Helps but my vision in that eye is all over the place.

Some days it feels fine, others it is so blurred for close up or distance.

Both eyes take a long time to adjust to light/dark.

Eg if I open the fridge door at night and the little light goes on, my eye can adjust but when

I close the door and am back in the dark, it is

totally blurred. Who knows what that is.

LLMD didn't give me much hope for recovery. He also said that Lyme is an "opportunisitic infection"

so it thrives where there is already an

underlying medical problem.

I don't know what to think anymore but I am

hanging all my hopes on this 4 week treatment.

BTW, he said that if I do not see any change on

the meds (better or worse) we can assume it is

not Lyme. : (

Sorry this is so long. I need to feel I have a fighting chance here.

Posts: 42 | From new york | Registered: Dec 2008 | IP: Logged |

carly
LymeNet Contributor
Member # 14810

posted

k,

You said...

quote:

So my question is this. Do you think the results

are really indicative of long standing lyme

infection. I've come to a dead end everywhere

else.

and...

quote:

I asked thE

LLMD if Lyme could really cause all this stuff

and he said "with Lyme, anything is possible".

mine would've said simply "yes".

You also gave your test results...

quote:

Here are the results:-

18 kDA ++
31 kDA IND
34 kDA ++
41 kDA ++

On the IGG, I had 3 IND bands. 31, 41 and 83-93

Check out the Western Blot explanation. It's at the top of "Medical" under "Quick Links to Poluar Topics".

My question to you...

Are you sure you're seeing a real llmd?

Good luck, it sounds like you need treatment.

Posts: 797 | From New York | Registered: Feb 2008 | IP: Logged |

kmj
Member
Member # 18400

posted

Well I got him from the Lyme yahoo groups. There

were 3 recommended.

I also don't know if my post was clear. The results

are for the IGG. There were no +ves on IGM, just 3 bands of IND.

Maybe I do this 4 wks and if nothing changes,

then try a new LLMD?

Posts: 42 | From new york | Registered: Dec 2008 | IP: Logged |

carly
LymeNet Contributor
Member # 14810

posted

It takes alot longer than 4 wks to get rid of an infection (or multiple infections) that have been invading your body and causing all that damage for all those years.

I've been told the avg treatment time is 1-4 years.

I get confused by IgM and IgG; I know IND is a weak pos. I'm not the one to give specific answers about test results.

I absolutely, positively KNOW that you will not get rid of it in 4 wks.

**I also know that many people test negative and it's a clinical diagnosis**

Look at your symptoms. There's also a "Symptoms List" in "Quick Links to Popular Topics"

Go to "Seeking a Doctor", some with more knowledge than me about these llmd's will chime in with their advice.

Posts: 797 | From New York | Registered: Feb 2008 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

Lyme Disease is a clinical diagnosis.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

They are right. If this has been going on for as

long as you suspect. It may take over a year of

treatment. Don't be discouraged. This is a winning

game by playing the smart game. Not the fast game.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

kmj
Member
Member # 18400

posted

I just need hope. I need to feel like I do have a chance. I am so low with this. : (
Pinelady, since your dx is neuroborreliosis, are your symptoms mostly neuro? Are there many neuro lymies on here? Anyone else with signs of MND/ALS who has actually had lyme and has some success with treatment.
I have only ever heard of one. Dr Martz I think his name was. Had bulbar onset ALS and recovered with lyme treatment. But is this real or an urban myth. I cannot find any real info about this person.

Posts: 42 | From new york | Registered: Dec 2008 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

The Movie Under Our Skin describes many patients

who were diagnosed with MS/ALS symptoms.

I had MS symptoms. Getting a lot better than it

was. I was almost in a wheelchair. And I thought I

was dying. So yes it is very likely.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

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