LymeNet Flash: what is valcyte good for

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » what is valcyte good for

UBBFriend: Email this page to someone!

Author

Topic: what is valcyte good for

street129
LymeNet Contributor
Member # 23472

posted

i have a bottle of valcyte for over a month in my cabinet, havnttouch the stuff, can anyone tell me does this treat.....thanks, and if i start to take it, 1 2x a day, will i hex

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

StephenC
LymeNet Contributor
Member # 15171

posted

Valcyte is thought to be effective against HHV6, CMV, and EBV. In order for it to be effective, however, you need to complete a six month treatment without stopping once.

You need to be VERY CAREFUL while on Valcyte and get your blood checked (CBC & CMP) WEEKLY otherwise you can risk death.

For chronic fatigue, the EXPERIMENTAL (see Dr. Montoya's research: http://www.drpodell.org/chronic_fatigue_syndrome_hhv6.shtml) dosage is two 450mg tablets taken twice per day for three weeks. Then, one 450mg tablet twice per day for the remaining 6 months.

Please don't take the drug without supervision from a doctor.

--------------------
Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks.
Lyme WB Bands Positive: 31, 41, 58, 66
HHV6, EBV, CMV, & Mycoplasma IGG positive.
Chronically Low CD4 count.

Posts: 106 | From Texas | Registered: Apr 2008 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

Valcyte costs a fortune. Who just has a bottle lying around? [Smile]

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

StephenC
LymeNet Contributor
Member # 15171

posted

It used to cost $35/mo. but with my new insurance it's now $100/mo :/

--------------------
Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks.
Lyme WB Bands Positive: 31, 41, 58, 66
HHV6, EBV, CMV, & Mycoplasma IGG positive.
Chronically Low CD4 count.

Posts: 106 | From Texas | Registered: Apr 2008 | IP: Logged |

street129
LymeNet Contributor
Member # 23472

posted

I HAVE MEDICAID, IM COVERED...I PAY NOTHING OUT OF POCKET.3 REFILL

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

street129
LymeNet Contributor
Member # 23472

posted

StephenC PAGE NOT FOUND ...I TOOK 1 EARLIER TODAY, I WILL NOT TAKE ANYMORE.YOU SAID DEATH.........OH MY

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

street129
LymeNet Contributor
Member # 23472

posted

I DO HAVE CMV, EBV, HHV6, AND OTHERS

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

They may be needed, but you need a doc tracking your vitals.

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

street129
LymeNet Contributor
Member # 23472

posted

I REALIZE I NEED A DOC. I DONT HAVE A CFS DR. OR A LYME DR.I NEED TO BE SEEN BY ONE OF THESE DRS.

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

ladyjenie
LymeNet Contributor
Member # 21098

posted

My doc gave Valcyte to me for skin lesions that were resistent to Ivermectin, Nystatin, etc.

My husband wouldn't let me take it because it is so dangerous and we aren't familiar with anyone who takes it.

Can anyone attest to its' effectiveness towards helping lyme lesions (severe case of the itchy, tormenting kind that never heals)?

My 2 daughters put me in a Pysch hospital because I was itching so bad I was having anxiety which made everything worse + hubby put me in a local Pysch ward that was worse than the first.

The Pysch doctor's couldn't brainwash me to stop the itching, that reaction is ridgid in my brain, and the meds were unsuccessful, too.

My 2 daughters and husband put it off on my being sick for a long time. My husband even went so far as to convince my friends and family that it was impossible to get some of the stuff I was getting out of my pores so that justified me as crazy.

The boomerang will come back.

Posts: 245 | From Texas | Registered: Jul 2009 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

I took valcyte for 8 months.

Just have to go in for blood tests.

My neighbor has been on valcyte for over 1 year.

If you don't have a doc, how did you get a Rx for valcyte?

BTW, if you didn't have insurance.....the cost of one 60 pill bottle is around $4000.00. [Eek!]

I did have a type of herx on valcyte initially.

It wasn't too bad at all.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

SEREN J WEED
LymeNet Contributor
Member # 7280

posted

Yikes! I was on this (generic) for about 5 months for herpes. No blood test before or during. Just kept getting it refilled. Also, no change good or bad while on it. Where does one pick up info on this? Online maybe?

--------------------
SEREN WEED

Posts: 116 | From LOS ANGELES | Registered: May 2005 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

Street, as far as trying something, I think it's a good idea to open a capsule or break a tablet that's ok to break open (not one that should remain whole) and try a small amount to see how you do and go up from there.

Posts: 13117 | From San Francisco | Registered: May 2006 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/