posted
I AM VERY confuse, i have lyme 41kd band, plus
i have cfs, cmv, ebv, mycobactrium, ,
the question is WHO do i see, do i see a llmd. first, or do i see a CHRONIC FATIGUE SYNDROM DR. I NEED ANY SUGESTION ON WHAT TO DO.HELP ME PLEAS.........THANKS
posted
sorry to hear you're feeling so bad but most LLMDs are also dealing with cfs and fibro. in my case my LLMD is part of an integrative practice-naturpath-homeopath etc. i feel i'm getting it covered on all sides. hope it goes well for you.
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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posted
Best to see an LLMD with the kind of symptoms you're describing. Did the folks here send you a doctor list? Other doctors don't know very much about Lyme.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
yes i have the list of llmd drs. but i have an appt. with cfs dr., i found a Dr. M, he want 750, ill call again and see what he covers, if he slso covers cmv. lyme, mycobactriuum, hhv6, cfs....i areally, really need to see a dr...
the cfs dr sees cfs pstients with hhv6, cmv hhv6 ebv, but im not sue of lyme, ill call today and find out. thy want 650, to do tests. 150 consultantion, and 250 each for some rcho summagam and caridi. i will tell them i need to be put on valcyte and monitor, i took 2of these last night, i dont know if they are working, not feeling to bd today yet...im really cofused bout where to give my money too.
i am waiting for an infectious desiease dr to get back to me, up to now they havent, call call later this morning, i really want to continue taking the valcyte that i have multiple in my home, but noone to moniter me. to checj my lab work weekly, i told i need that
posted
Hey there, i was mis-diagnosed with Chronic Fatigue Syndrome when i really was lab-positive IgM at IgeneX. The CFS-Infectious Disease Doc said there was nothing to treat altho he ordered a bunch of unneccesary tests like Spinal Taps to rule out other brain infections.
Infectious Disease Docs dont take Lyme seriously and object that the symptoms you are having are Lyme-related.
And accordingly, i don't think there is treatment for Chronic Fatigue in allopathic medicine. For me, detoxing at home, sauna, taking my antibiotics and acupuncture has really made life a lot better.
The one good thing about my CFS diagnosis is that I got the Infect. Disease Doc to sign forms for my employer that will allow me intermittent sick leave for the next year.
I didnt want my LLMD signing it as he is out of state and i wanted to protect his privacy.
P.S. I found a LLMD that doesnt believe in all the extra testing. It's saved me a ton of $$$ although he does blood work and liver function tests to see how my body is handling the Abx.
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
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It's just my opinion, but I think you should not spend your $750 on the CFS doc. Spend the money on an LLMD.
The LLMDs treat fibro, epstein bar, CFS and all whereas the CFS doc will only focus on CFS - for which "there is no cure."
I think everyone on lymenet here would agree, get yourself to an LLMD and do that FIRST before suffering unnecessary costly tests that will not address the possible infectious diseases that could be the cause of all your symptoms.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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