posted
In my non-medical opinion, stay on the doxy. It's a good Lyme med.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I would stay on the doxy. Cancel the appointment with the ID doc and just wait til the appointment with the llmd.
In my experience, ID doctors are a waste of time and $$.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Have you read about the Jarishe-Herxheimer reaction?
This might be why you're feeling worse on the Doxy.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Keep asking questions and ignore or call out any negativity! You need and deserve answers and you just might ask a question that someone else might not be brave enough to ask. That's the way I look at asking lots of questions. I've always been a big asker myself.
Doxy really made me herx and I felt crappy from it but I think it knocked back alot of bugs.
I agree with others, I'd go to the LLMD not the ID doc. The ID profession has a very narrow view of tick-borne infections. My local ID doc told me that I couldn't possibly have had Babeosis even though he was holding my positive blood tests in his hand.
He said that it must be a false positive test because ticks in our area don't carry babs. He was recently proved wrong by a scientific survey of local tick populations- but how many people did he deny the correct treatment for?
This ID doc was reading 15 year old literature that said babeosis was found in Shelter Island and he took that to mean it's only there. But meanwhile, birds fly, deer run and vacationers with babesia go home and move around. So he was wrong!
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I too think you need the LLMD. But you have some
serious viral entities that need addressed. He may
choose to treat the lyme first and see how that
effects it or together, depending on your
symptoms. You probably have parasites of one kind
or another too. I agree with cat. You take care
of you and don't worry about negative posters.
Many people who finally find they have Lyme don't
even know where they are much less questions they
ask. just go for it, you will get better.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Street,
You said: " . . .im trying to learn from THIS board, but some people are making it hard for me to ask questions here. . . ." end quote.
-- Others assume there is negativity directed at you. I went back to all your active threads and please do not interpret that as negativity. A lot of people are trying to make this work for you.
It's not that anyone is trying to make it hard for you but with at least 14 active threads of yours on page one yesterday, attention was split as to which questions still needed answers and which had been addressed in other threads of yours. It seemed as if you were not able to read the answer someone posted at one thread and then started another one or more with the same question.
Some of those people here take so much energy and time to give all they have to help - when they are ill, too.
Well, they were just kindly pointing out that the repeat questions and multiple threads had become overwhelming to keep track of and questions seemed to be duplicated and not even get to you.
If you could copy all your threads to a word file to keep track of your questions and answers, you will usually find answers or links to books or articles that explain in detail.
You had said the links don't help much but links are gold in that you can see the source of the answer, not just someone's opinion or one person's experience. While each answer can be good, getting a link gives an answer more credibility and you can see WHY such and such is suggested.
Also, remember that often posting a link is all a poster CAN do - due to fatigue or hurting hands.
Of course, questions are good and people here do bend over backward to help. I think one poster did suggest that unless it's an entire new topic, building onto an existing thread, asking new questions that arise is easier than starting a new thread for each question.
That way everyone can see what the series of questions entail and what answers have been given, - then new questions, new answers - and it can build from there so that either a new or previous poster can have the background needed to best address the questions.
I do hope you find what you need to become healthy again. Everything about lyme is VERY, VERY complex. Start with the key: the best doctor you can find to assess whatever is going on whether lyme or another infection/condition with similar symptoms.
Have you gotten the Singleton Book yet? "THe Lyme Disease Solution" is very good and explains so much - much more than there is space or energy for here.
Also, often, you can search at Google with a term or cross search with two key words and find many links to good articles that will explain something.
A good term to substitute for lyme when you search is "borrelia"
=============================
Here is a basic starter list of articles or books that will serve you well and answer many questions. You might copy and paste to your file for quick reference:
This explains WHY you need an ILADS-educated or ILADS-member LLMD to determine in lyme is connected to your symptoms and to assess for coinfections, too:
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
[ 12-26-2009, 01:46 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- About the film, if funds are tight, see if your local support group or your library has it. The library could also order on inter-library loan from another library anywhere in the U.S. - however, the waiting list can be very long.
About the books: also some support groups can loan out - or see if your library has them or will order them.
First, though, if you have an appt. soon with a LLMD, I'd just read up on the self-care "rules" & supplement suggestions and get going on those and then let the LLMD sort this all out. I had forgotten to include that in the above set, so here you go.
As you will see, lyme treatment is NOT the same for the viruses you have. However, if you have lyme, that needs to be on the tip top of the list to treat. Most LLMDs also know how to treat the other things you mentioned, but be sure of that when you schedule with the LLMD.
The self-care and supplement sections are good for everyone regardless.
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
Nutritional Supplements in Disseminated Lyme Disease
J.J. Burrascano, Jr., MD (2008)
Four pages
====================== ======================
Excerpts from Burrascano's work regarding self-care:
From page 27:
CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:
1. Not allowed to get behind in sleep, or become overtired.
2. No caffeine or other stimulants that may affect depth or duration of sleep, or reduce or eliminate naps.
3. Absolutely no alcohol!
4. No smoking at all.
5. Aggressive exercises are required and should be initiated as soon as possible. [Note: NO aerobic exercise, though. See below.]
6. Diet must contain generous quantities of high quality protein and be high in fiber and low in fat and
carbohydrates- no simple carbohydrates are allowed. Instead, use those with low glycemic index.
7. Certain key nutritional supplements should be added.
8. COMPLIANCE! -------------
and also on pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.
No aerobics are allowed but other suggestions are included.
===================
More great suggestions regarding nutrition are in the Singleton book. Especially, avoid ALL artificial sweeteners. Aspartame/Nutratsweet/Equal or MSG (Google for all its names) are very toxic to the brain can create many of the same symptoms as lyme itself.
As well, a gluten-free diet can help not just the stomach pain but also body pain and brain fog. You can learn more about that at www.celiac.com You might be able to see a difference in even a week's time by eliminating wheat, rye and barley.
This sounds like a lot of work but the benefits can be huge. -
[ 12-26-2009, 02:44 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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