posted
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Posts: 124 | From Toronto | Registered: Aug 2009
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julielynne4
Unregistered
posted
Ok, I know this doesn't exactly go along with the discussion but.....(I am not sure if knobs is still reading this, as I noted the dramatic period in the last post but...
Knobs, I really was shocked to read that you are on day 5 of going off Effexor cold turkey with no mental instability! WOW that is awesome...
I was on Effexor about 10 years ago and started to wean off it, then just stopped. I thought I was dying - it was hell. I had to stay home from work for 5 days due to the INSANE mental issues. It was a total nightmare.
It scares me just thinking about it. I am glad that you did not experience these Sermptoms! Phew! I wish you continued health and wellness! julie
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If you are still reading this I wanted to say that I am glad that you are feeling better no matter what the cause of your illness was/is. Because in the end all that really matters is getting well again. I do hope that continues for you.
I do also want to say though that I am a bit concerned that you seem to be making major medical and life decisions while under the influence of marijuana. Making these sorts of decisions while under the influence of drugs does not seem like a good idea.
People do not think clearly when they are high or intoxicated (even if they think they are). From reading your posts you do not sound clear headed in my opinion.
I agree that people need to keep an open mind. And there very well may be people here who don't actually have lyme. BUT I think keeping an open mind works both ways. I hope that you will also keep an open mind when it comes to lyme disease.
I hope that you continue to get well BUT if you find that you are not progressing anymore or that you are getting worse please consider that you still could have lyme disease.
From reading your current posts and your past posts I do think it could be possible for you to have lyme disease.
As others pointed out...there are symptoms that you experienced that don't seem to fit if your illness was due to depression or emotional problems.
Also you had a very strong response to abx which seems to be consistent with lyme disease. I am no doctor so I can't say for sure but it seems that your reaction to abx would be more than just side effects. But as I said I am not a doctor so this is speculation on my part.
In reading your past posts you seemed to have legitimate reasons why you felt that your illness was NOT being caused by depression so keep that in mind as well.
I saw your test results and you had a lot of IND bands show up. I just wanted to share with you my own experience.
I tested CDC positive for lyme disease through Quest AND Igenex. And some of the bands that were absolute positives on Quest were IND on Igenex. So I know that in MY case those IND on Igenex were positives. So it is my personal opinion that IND can mean that you are positive for those bands. Just keep that in mind.
Just a suggestion...maybe you could quit smoking pot for a while and see how you feel. See if you still feel well or if you feel ill again. And see if you still have the same thoughts about all of this. It just concerns me that you are making such important decisions when your judgment could be clouded.
Also keep in mind what other people here said. Like they said...there could be many reasons that pot may be helping you.
It could be that you have lyme and pot is having antibacterial effects on you or that it is working as a pain reliever (or both). There are many people that do have lyme disease that see benefits from marijuana so the fact that it seems to help you does not rule out lyme disease.
OR it could be that you don't have lyme and pot is having antidepressant effects on you.
OR it could just be that you feel better because you are high.
So just keep in mind that there could be a number of reasons why you see some benefits from pot.
Lyme Disease can cause depression as well as many other emotional problems so please be absolutely sure that the depression you were experiencing was actually the cause of your illness and not just a symptom of lyme disease or some other illness.
Oh and please get the black stool issue checked out. As someone else mentioned that can be very serious. That can indicate internal bleeding of some sort so PLEASE get that checked.
Anyhow...I really hope that you have found the key to your illness and continue to get well.
BUT in time if you still find that you are ill please remain open minded to lyme disease (as well as other illnesses). Don't just ignore lingering or worsening symptoms if they do happen.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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As you all read above I definitely have lyme disease and tested CDC positive with both Quest and Igenex. I have been treating for almost a year now and am not even close to being well again. It is a long process and can take a long time to treat.
So lack of improvement does NOT necessarily mean that you don't have lyme and should quit treatment.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
Wow Pam. Some weird advice that you're giving me.
"if you find that you are ill please remain open minded to lyme disease (as well as other illnesses)"
Still making improvements everyday. My life is very rich.
I'll say it again. I don't now, nor did I ever have Lyme disease.
Chronic Illness is that 'culprit' in my opinion. Chronic Illness manifests itself into REAL, physical and mental scarring.
What is the cause of your 'chronic illness'? I don't know, but dig deep and you'll probably find the answers in your emotional scarring.
I'm still off effexor without any problems.
I get really tired of coming on here to 'preach', but feel it's still worth it if I reach anyone.
Posts: 124 | From Toronto | Registered: Aug 2009
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Metallic Blue, you are AMAZING!!!! Can I send you to my future LLMD appts. in my place? You can be my proxy.
Wild Condor, your short and to the point posts were EXACTLY what I needed to read this morning. Thank you so much!!!
I may have to keep rereading them every day until my next LLMD appt..
Knobs, I am glad you are doing so much better.
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Knobs it is very hard to discuss things here as it always turns into a bashing session. You are feeling good and yet some posters have chosen to discount it because it is pot.
It is not a gateway drug as is usually argued all the time, it is usually the drug of choice. Many people who smoke pot are teetotalers because they do not like there judgment impaired.
G-d gave us a wonderful substance that is very helpful in the natural state. No processing or fermenting involved.
Arnold Schwarzenegger smoked in "Pumping Iron" and was seen enjoying it very much. Thanks to his legislation you can now grow it in your homes. To Arnold marijuana "isn't a drug, its a leaf."
Famous Pot smokers off the top of my head...
President Barack Obama Linda McCartney Paul McCartney Mayor Michael Bloomberg Sir Richard Branson Bing Crosby Bob Hope Chrissie Hynde Richard Feynman Carl Sagen Newt Gingrich Michael Phelps Stephen King Ted Turner Montel Williams Whoopi Goldberg Queen Latifah Art Garfunkel Norman Mailer Jack London Victor Hugo Carl Sagen
The list is endless...... Knobs if pot works for you - use it.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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posted
I will be honest, I'm all for people using whatever works for them to get well. Just keep in mind the same things don't work for everyone.
I actually got my first panic attack that was the real clue to my relapse WHILE high. Not to mention, with all the smoking I've done in the past 15 or more years, it 9 times out 10 made me groggy, sleepy, and the opposite of clear headed. ALL drugs and chemicals affect people differently. My fiance feels great on it, which is good for him. For me, it is not a drug in which I function well at all and it is not because I haven't come to terms with past demons.
As for emotional healing, thats an important aprt of anyone's life and should be taken seriously and people should use whatever helps them to do such. I have felt at my best with no chemicals in my body except the infrequent .5mg klonopin dose. For some, pot works. Whatever floats your boat as long as your health (that means mental and physical since you can't have one without the other) is your primary focus. I do better facing my demons drug free and trust me it has nothing do with not letting the pot work the way it is supposed to. Its a drug, end of story, some will feel great with it, others won't.
Posts: 594 | From NJ/NY | Registered: Jun 2006
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posted
Still feeling great. Working again, pursuing creative endeavors and indulging in some sweet food along the way.
Posts: 124 | From Toronto | Registered: Aug 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Great!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Glad to hear things continue to go well.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Are you saying stop listening to LLMD's and their diagnoses?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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julielynne4
Unregistered
posted
I saw this thread pop up again and was wondering how you were doing, knobs. I am happy to read that you continue to feel good!!
Not so sure I agree with the Buddha quote, though....actually, 100% certain I don't....but I appreciate and admire your passion!
posted
intesting... i worried that my problems were mental as well, but all 3 psychologist that i saw believed that i actually had a physical problem that was not stemming from my emotional state. i WISH it would have been about dealing with my problems... i'd be feeling a heck of a lot better now!
Posts: 220 | From Kansas | Registered: Mar 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Update Knobs? How are you doing bud?
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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