posted
I had a large deer tick attached to me last summer, and this spring I got a load of mulch loaded with deer ticks and picked 12 crawling off of me but don't know if I missed any.
In June I had a Lyme test just in case with EIA Reflex test being equivocal and the IGG showing positive in the 41 and 30 bands. IGM negative.
Over the 9 months I have been running a low grade fever(99-100), constant headaches on right side moving from behind eye to forward to side. Within the last month, I started getting light headed when getting up for lunch and then when driving. Ended up in the ER with a bunch of tests with nothing wrong. I had chest pain and numbness tingling in lower two fingers of left hand. Also difficulty concentrating and some depersonalization.
I went to see local doctor and had second Lyme test. The C6 Peptide came back as 3.63 with >1.10 positive. The western blot positive bands weren't shown since 5 of 10 aren't positive. IGM negative.
I insisted on antibiotics just in case and got Doryx 200 mg/day for 21 days. I have been on them for 10 days with the results that the headaches have improved some.
Sorry for the rambling, what are some opinions?
Posts: 10 | From Catlett, VA | Registered: Dec 2009
| IP: Logged |
posted
Sounds Lymey to me. Lyme testing is unfortunately very unreliable. Your WB not showing positive a second time is sort of meaningless, especially since they only list if 5 or more bands are positive and exclude the vaccine bands (I assume).
If you haven't already, also ask to get tested for co-infections (local labs should be fine) -- two strains of ehrlichiosis, two strains of bartonella, and babesia. Probably worth doing a spotted fever antibody test too. Not sure if there are other tick diseases to test for, but those are the basics.
I suggest looking for an ILADS doctor in your area and making an appointment with him/her.
Posts: 584 | From NY | Registered: Feb 2009
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Quote: went to see local doctor and had second Lyme test. The C6 Peptide came back as 3.63 with >1.10 positive. The western blot positive bands weren't shown since 5 of 10 aren't positive. IGM negative.
I agree with others here. Igenex is the best. And
a LLMD is best to treat. And I would not wait to
get an appointment. You can find one close by
posting in Seeking s LLMD over in Seeking Dr.
Section. I cannot believe they gave you no bands
identified. I would get copies of all labs to
retain for your records and always get pics of
any rashes you have. It could come in very handy
later. Prayers.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
Thanks to everyone who replied. I am seeking a LLMD to do a full evaluation.
With the symptoms I've experienced on the antibiotics, I'm pretty sure that I have Lyme.
Posts: 10 | From Catlett, VA | Registered: Dec 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic