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I am seeing a LLMD whose office is 4 hours away from me. He has given me a clinical diagnosis of Bartonella. He has prescribed an in home IV therapy for me. Since he is out of my area I had to bring his IV prescription to my primary care provider. PCP was supposed to set up an initial visit to get the 1st test dose in a hospital and than set up the home therapy. He was unwilling to set up the 1st IV saying my LLMD needs to do that. It's clear he was not going to cooperate so I switched to another PCP. This new PCP looked at the scripts and my medical history and since she saw no definite positive test anywhere she sent me to a "Infectious Disease" doc. Before he could see me he looked at my records as well and determined that he would not treat me or see me without more proof. I had my LLMD send over all his notes and records and I am awaiting to see if the additional notes will sway him but I am very skeptical that will happen and I will have to move on once again. My LLMD does not have anyone in the area they could reccomend so I am at a loss as to where I should go next. I am looking for some advice on how some of you were able to get the IV therapy. If it helps I am in the south florida area and I have blue cross blue shield which seems covers a lot of doctors.
-------------------- Neuro symptoms since 1995. Dx'd Bart in 10-09. Biaxin/Tindamax 10-10 thru 2-11 Factive 3-11 thru 5-11 Factive/ Rifampin 9-11 thru 11-11 IV Rocephin/ Tindamaz. 11-11 thru 1-12/ IV Rocephin/ Flagyl / Factive 1-12 thru present Posts: 69 | From Florida | Registered: Dec 2009
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posted
We have been around this block a time or two. We live in Illinois and our llmd is in Ct.
My husband needed IV badly, and we could not find an md to help here. Finally we resolved to basically "move" him to Ct so his llmd could order his IV. Luckily we have a traditional medical plan that had no problem with covering services in Ct as long as we stayed in their Blue Cross/Blue Shield network of providers (for in home infusion services).
My husband rented a hotel room, got the IV line in and started meds. In about a month he had had enough of being in Ct, so he came back to Illinois, with the line in his arm, made an appt. to see our PCP and she agreed to continue his treatment here in Illinois as long as the llmd sent a treatment plan and he went back to Ct every 2-3 weeks for checkup with llmd.
I think a couple things were important this time around. 1. He already had the line in. 2. He was compelling when explaining just how much better he felt 3. The llmd wrote a great letter explaining everything in detail and we also had a letter from a neuro recommending IV. 4. We were lucky!!!
This PCP is now so supportive that she even ordered a PICC line placement at our local hospital when my husband's initial mid-line formed a clot in his vein......
I wish you luck and empathize with your situation.
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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