LymeNet Flash: anyone been diagnosed with Wilson's Temperature Syndrome?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » anyone been diagnosed with Wilson's Temperature Syndrome?

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Topic: anyone been diagnosed with Wilson's Temperature Syndrome?

lymers
LymeNet Contributor
Member # 21512

posted

Hi everybody,

My hair has been thinnning for almost a year now. My acne has worsened, too. I'm wondering if this could be from something called Wilson's Temperature Syndrome. My thyroid blood tests have been normal. I do have hashimoto's thyroiditis, though.

Anyone familiar with this syndrome?

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009 | IP: Logged |

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

hmm, this is a new one for me. maybe somebody here can help tho. but yeah, my hair is thinning too and i've never colored, bleached or permed. used to have marvelous thick hair, no more....sigh

[ 12-20-2009, 03:09 PM: Message edited by: randibear ]

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

pamyla
Member
Member # 8575

posted

I was diagnosed and treated with this many years ago, before I knew I had lyme. My temperature was always a few degrees below 98.6 and I was always cold and fatigued. The treatment lasted only a few months and it did make me feel better. If I recall there was a blood test for one of the reverse thyroid hormones that they don't usually look at. I had other doctors at the time who I remember didn't put much faith in this treatment, but I can't deny that it did give me more energy.
Pam

Posts: 60 | From Northern Va | Registered: Jan 2006 | IP: Logged |

Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

posted

It would be hard to get that dx unless one were seeing an alternative medicine doc. It is generally not recognized by most endocrinologists.

There have been posts about it recently:
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/88785?#000001

Many people, at least anecdotally, have improved using T3 only though. There has been one small uncontrolled study attesting to its benefits...see the post I listed.

I've been trying to get on this protocol. I believe that there is some truth behind it...

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"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008 | IP: Logged |

lymers
LymeNet Contributor
Member # 21512

posted

Thanks everyone. If anyone else has information about this syndrome, I would be interested in whatever you know.

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009 | IP: Logged |

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