posted
Most of my symptoms are Periphial neuropathies in my legs; weakness, drop foot, butt cramps, crawling up stairs. The nerve study says its in my upper areas also just not that bad. I have both motor and sensory nerve problems. Doc says nerve study looks like ALS except opposed by sensory, deep tendon reflexes, and new nerve regeneration shown by high amplitude waves. His final diag was that he did not know - see him in 3 months. He said it looks more like I had (past tense) West Nile but came on over winter (no sceeters) and it doesn't look like lyme. he also threw out alergic reation, infection, or autoimmune. My question is can lyme affect sensory to the point where I have a patch numb skin on my thigh??? The nerve study found it all over.
John
-------------------- JJG Posts: 33 | From Scranton, PA | Registered: Sep 2009
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey JJ...
First of all... sorry you had to go through that test! YULK! For me it was a nightmare... but some do ok with it. Hopefully you did ok.
Second, it sounds as if the doc is about one sandwich short of a picnic.
Looks like they fed you the typical statements most of us hear at some point or another...
"I don't know what it is, but it can't be Lyme."
I call that being diagnosed with A.B.L.S. (Anything But Lyme Syndrome). We have to put up with that total nonsense all the time.
Numb (and tingling painful) skin has been a constant on/off problem with me over the years. I had a patch about the size of my hand laid out flat on my left thigh for years on end, non-stop.
I'd actually stare at it trying to figure out WHY it was doing that. It LOOKED normal, but boy was it uncomfortable!
And I had the drop foot, bad reflexes, etc too. Most problems were in the lower body but also had some in the upper torso too.
Then one magical day the right thigh got a numb patch. Later it was the left thigh again. (This was happening over a period of years)...
And sometimes both thighs had the nasty num nums. Ouch on that.
But treatment did make it better. Not sure if it was all Lyme related or if it had something to do with being coinfected with Babesia too?
Now my right knee and thigh are doing the numb waltz across Texas again. My theory is, it is the babesia kicking me this time.. but not positive.
As for getting some relief and help... while or before being treated...
A chiropractor was the best thing that helped me. Getting the nerve pathways unblocked actually helped a good deal.
posted
Thanks Tincup, A.B.L.S. It seems funny that with an "I don't know" you would think he would have ordered a battery of tests. My Visit with him was last week and he was happy with a blood test from July. I was expecting a new blood test with neuro panel, spinal fluid tap, brain scan, urin test, hair analysis for toxic stuff, and nerve biopsy????
If all my nerves are affected is my heart okay (EKG)?
-------------------- JJG Posts: 33 | From Scranton, PA | Registered: Sep 2009
| IP: Logged |
posted
Just a thought....Have you had a MRI for herniated disk(s) in lower back?
I have the numb area, palm size on the side above my knee but that was from a herniated L-2/3 disk herniation. Also the butt pain and groin pain.
L-5 will cause drop foot.
Ah....spent many a good time at the Lithuanian club in Providence Square in Scranton. Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
| IP: Logged |
posted
Elain, Back in July my family doc said it was all my back and my pain was referred. I got an MRI that said my back was bad with commpressed nerves. I wasted the whole summer waiting for an appointment with a back surgon. He looked at the MRI and said I have a bad back but my symptoms don't match, I should be only having radicular pain. My symptoms match a gunshot victom, besides my back never hurt and my symptoms cme on slow like a disease. Two neurologists agreed. The first nerve study was Abnormal with a lot going on and was sent to a specialist at Penn in Philly. The first back surgen said get every thing cleared up and if anything is left he may still need to fix something.+
-------------------- JJG Posts: 33 | From Scranton, PA | Registered: Sep 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[lol]](graemlins/lol.gif)
![[Big Grin]](biggrin.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic