richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Since having Lyme, Babs and Bart I have had more and more....scary chest pain right in the region of the heart. It is bad today and I am going to mention this to my doctor when I see her next Thursday.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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richedie
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Member # 14689
posted
I have also noticed my left thumb is going numb. Has been for days now.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Magnesium + Co Q10
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I can't have Co Q10 due to taking Mepron. It can interfere......but I eat foods that contain it. I take Magnesium.
What would a doctor do to check my heart out if I went to the hospital?
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Yes, TBD's cause inflammation throughout the body and the heart / arteries are no exception. If your chest is bothering you that severely, I wouldn't waste more time, I'd go to the ER and let them know. They'll likely do a stress test (chemical), ECG and other items.
Let us know, okay!?
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
I went to the ER several times with chest pains and short of breath. They did a ct scan for me, and said I was fine, to follow up with a cardio. Then my cardio did an echo as well which showed nothing.
You probably should get checked out though!
I know this is so scary, and I feel for you. Some times I get tingling in my pinky, and I just think its lyme.
Is your arm/shoulder doing any better?
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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richedie
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Member # 14689
posted
No, shoulder and arm hurt like hell. They have for months on end! My left thumb, the tip is going numb! Has been for days!
I had the EKG and all that, last year and was fine except an EKG block and slight murmur? I forget. I am afraid to go to the ER because if they use a catheter into my arm to get to the heart....I'll pass out.
I similar stabbing chest pains around Thanksgiving but it went away.
I found these symptoms and they always mention pain in the center of the chest. Mine is always over the heart.
Pain, pressure, fullness, discomfort or squeezing in the center of the chest Shortness of breath or difficulty breathing Stabbing chest pain Radiating pain to shoulder(s), neck, back, arm(s) or jaw Pounding heartbeats (palpitations) or feeling extra heartbeats Upper abdominal pain Nausea, vomiting or severe indigestion Sweating for no apparent reason Dizziness with weakness Sudden extreme fatigue Panic with feeling of impending doom
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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btmb03
Unregistered
posted
richdie - I'd get to an ER asap if I were you *regardless* of how afraid you are of a cardiac cath or anything else. You can pass out all you want..you'll be in a hospital.
I've had exactly the same symptoms..and occ they've subsided and other times..well I've gone straight to the ER. The words "chest pain" will get you seen asap..even if you're not sure if it's 'only Lyme' or 'something else'.
Your life is too precious to play guessing games with. Please look after yourself and give us an update??
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richedie
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Member # 14689
posted
Honestly sometimes I just don't want to live with this hell anymore and whatever happens, happens. :-(
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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I'm so sorry your arm is not any better either. Have you always had the chest pain and air hunger, or is this new?
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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btmb03
Unregistered
posted
richedie - I hear 'ya!! I'm also waaaaay over this crap!! Take care!
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momintexas
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Member # 23391
posted
I'm so sorry to hear what an awful time you are having and also fully agree that you should go to an ER immediately.
I had something similar happen to me on numerous occasions and went for test after test only to find nothing. I had a lot of the same symptoms and thought for sure I was having a heart attack. It ended up being my gallbladder and having lodged gallstones.
You never should take any chances with chest pains, but has your gallbladder been considered at all?
Posts: 1408 | From Tx | Registered: Nov 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I had this for awhile. Don't waste your time going to the ER.
I dropped 500 dollars and got laughed out the door. The basically said I was having heartburn.
Reality is these buggers attack the heart. Keep treating lyme and hope you contain them or kill em.
And magnesium!!
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Yes, I have had off/on chest pain, air hunger for a long time with this. I know they will find nothing and send me packing. If I do not go, I will have my Lyme doc run some tests next week. She is fully set up for that.
****es me off because I have a friend or two who do nothing but eat McDonalds and Burger King all week and I am the one with chest pain? Being an exercise enthusiast, health nut, don't drink, never smoked, and this is the thanks I get.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
richedie - I have every symptom right now on your lyme heart attack list and have been scared silly for days. Waiting and waiting for days for LLMD to call me back.
I have had a heart cath and been told there is nothing wrong. Last time I went to ER for chest pain was 6 months ago and it wasn't this bad.
LLMDs nurse called back yesterday and suggested I make an appointment with a cardiologist but didn't suggest ER. Told me I could cancel the appointment after she talked to LLMD if he didn't feel it was necessary.
Cardiologist won't make an appointment without a referral since it's been more than a year since he saw me and two since the heart cath. They said they'd call me back sometime next week to see about setting up an appointment sometime in January if I could get the referral.
Also having frightening episodes waking up with racing heart, chest pain, jaw pain into my teeth, left arm numb or hurting, freezing cold/shaking, chest pressure, hard to breathe, blood pressure all over the place, etc.
The don't seem to be taking it very seriously at LLMD's office and told me they would try to have LLMD spare 5 minutes tomorrow to call me.
I can't take the expense of going to the ER again but frankly I'm to the point that I might go.
Posts: 237 | From WV | Registered: Mar 2007
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posted
I have had these pains and symptoms, too. Do you have a blood pressure cuff? I have one for my wrist that keeps a record of pressures. It's a good idea to do that regularly so everyone knows what's happening.
Also I take blood pressure medicine. I used to take Toprol but it made me even more tired. Now I take Bystolic and it's keeping my heart rate down without making me as tired.
But I do have a cardiologist and I get checked regularly by him. This is nothing to fool around with!!!
My jaw pain is from the darned clenching. I broke a tooth off at the base of it! I also clench my left fist. Weird, huh? I think a lot of this is just the miserable disease. But you do have to keep a close watch on that heart!
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Well, I read form some Lyme docs the no Co Q10 and Alpha Lypoic acid thing is not true and makes little sense so i might ask my doc if I can start taking it. I believe I get a good amount of dietary Q10 through Cod Liver oil, organic chicken, spinach, brocolli, whole grains, peanuts. I eat seriously well.
My blood pressure is always low.
My doctor just said wait till next week's appt and we'll check it all out with an EKG and an echo.
How about aspirin for blood thinning?
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
richedie - You'll get all sorts of comments on aspirin, but I like aspirin. If you think it'll hurt your stomach, just crush it up into powder first, put it on your tongue and knock it back w/H2O.
I think aspirin can be very beneficial. Just IMO.
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
I don't have the energy to read the wonderful responses, so apologize if this is redundant....the vegas nerve can be effected... the sensation can feel like a heart attack. You must always rule a heart attack out, but this is not uncommon among lyme patients. You're description reminds me of me. Hang in there and stay vigilant, as I can see you are. It is the most scary symptom that I have had. I have had echos and holters and many emergency calls to my dr. I have found that dealing with the anxiety that comes with my symptoms (which by the way are greatly reduced and after so many years I NEVER thought I'd say that so don't lose hope). Yogic breathing. Guided Imagery. Meditation. Anxiety has been my toughest opponent after lyme.
-------------------- Look for the moments you are glad you got to have each day... I call these Butterfly Kisses, and the more you see... the more you see. Posts: 30 | From Northeast PA | Registered: Feb 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Thanks, all......but I know I can not live the rest of my life like this. I have to get through this. I can't live like this.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I've never heard of a Lyme patients having a heart attack, which is odd to me.
However, I have heard of "tons" of patients who had symptoms of a heart attack -- thought they were having one -- and went to the doctors or ER only to be told their heart was fine after having scanning and a variety of tests done.
What does this tell me? It's the nervous system and muscles surrounding the area that are likely sending out pain signals. It can be a shooting pain, stabbing, numbness, harsh aching etc.
I have thought I was having one too, but of course the same thing happened to me. Nothing was wrong with my heart.
At any rate, you always need to have it evaluated, but take solace in what I've said so that you don't go into full blown panic until you do get evaluated.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Richie.....I have the same exact stuff going on as you do. My chest hurts in the upper left over my heart & "boob".
It always tightens up after I eat, then I get anxiety and have to take an ativan or two (lately 2). The DULL CONSTANT chest pain is the worst. Feels like my heart muscle is dying.
IT SUCKS, ya don't know whether or not you're going to have a heart attack this time or not. Yesterday I was laying on the couch watching the tv, I got up and walked into the kitchen, my heart rate went up to about 135 for 3 minutes.
I could feel the beating in my head, neck and chect, I thought, wow this is extreme, after about 5 minutes, heart went back down to my normal 96 at rest. This is my LYME normal, not my normal rest which was around 68 before Lyme.
So, I FEEL for you brother. I say to myself once or twice a day, I'm going to the F%^$ING hospital this time, but never do. I feel as if Lyme is destroying my heart slowly and that one day, I will suddenly disappear from this forum and no one will ever know...
So much for my skiing, mountain biking, hobbies, I can barely walk around anymore with the shortness of breath crap.
Keep the chin up Rich, I'm right there with ya.....Rich
Oh yeah and the thumbs....in my nail beds under the thumb nails, the nerves are dying. My left nail turned white, it is growing back normal now though, go figure, all fingers and toes have some sort of numbness
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