cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Oh my goodness yes, I have been there. Questioned my diagnosis and my sanity many times in the past. In time I accepted the diagnosis.
Many times I felt overwhelmed and confused. I spent so much time trying to search for the cure that I about drove myself nuts.
Anyway, after 20 months in treatment and almost 4 years being sick, I have finally calmed down. The one positive I guess from having LD is that you learn what PATIENCE is. You've gotta have it to get through it.
So sorry you are ill. Have you seen a LLMD yet?
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I was scared and depressed also. It was too much...and I hadn't started treatment. Now Im 4 month in treatment, and things are calming down. I don't think about death everyday, but I think the zoloft helps with that. Samento might make you herx, and depression and anxiety can be part of a herx. Try an antdepressant, or a natural approach with SAMI.(Dont remember how to spell it)
posted
Thanks for the responses- yes ihave gotten in to an LLMD and he is running a bunch of tests-very thorough- i should be glad but i haven't started abx yet
thought i'd give samento a try but now i'm thinking i should have just taken the drugs- i'll probably call on monday and tell him i think i want the drugs
it just feels like so much- nerve twitching, low blood pressure, head spinning, parasites... and on top of all that we are extemely financially limited- 28,000 a year for 4 people- YEP thats it.
only good thing going is the insurance, and a roof over our heads that we are not paying for.
how much crap can you have going on in your body and still live? i'm even drinking bottled water and lord knows how much crap is in that.
How do you do this with such little income??? i feel like we need a miracle.
yea, i haven't taken the samento today or the parsley- probably will later- but i'm also at that special "time" of the month- so it makes it all worse. even though in general i've been a mess emotionally.
Posts: 116 | From Texas | Registered: Dec 2009
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yes, I question my diagnosis all the time even though I've been treating this for almost three years (mainly because my lyme and co-infection diagnosis is a clinical one and not due to actual blood results, as the blood tests are always negative).
I also feel like I'm going crazy all the time because I have symptoms that some people don't have at all so it makes me really scared and confused and anxious a LOT.
I get extreme depression when my heart issues get bad. Sometimes it puts me in a deep depression that I can't get out of for a month or so until the heart issues let up a little.
I know how you feel.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
thank you disturbedme. thank you for hanging in there- depression is such a big thing to get through with all of this.
i wonder can i even think straight to do treatment- i'm afraid anything i try will be too much for my overwhelmed body- humaworm was too much for crying out loud.
now i have nerve twitching thanks to not drinking enough water while i was on it.
there must be a way out of this... bottled water and all!
Posts: 116 | From Texas | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- learning,
you still have lots of tests ordered by the LLMD four hours away whom you just saw days ago.
First, I'd wait for the test results. then you can either go in in person to discuss a new protocol or schedule a phone consult if your doctor will do that.
If you decide to do abx, it's a very careful protocol so be sure to take the time and get all your questions answered by the doctor.
If you have not yet scheduled, you might go ahead and set up your next appointment with him now for a time after the blood work will be completed.
OR - as you also have a local LLMD scheduled for Jan. 16 (correct ??) . . . take in the lab results to the local LLMD and see if her style and experience will match your needs.
Then you can decide which LLMD to go with and then schedule appointment for set times to get on the schedule.
In the meantime, the Samento (starting low and slow - like one drop) might help but yes, it can cause some upset. As you are dealing with your period or PMS now, magnesium and fish oil are your two very best helper.
Magnesium and Fish Oil are the first line of defense against depression but as suggested above, some do okay with SAMe - it's just that it can be stimulating.
Adrenal support such as cordyceps might be a good start.
Some VERY dark chocolate, too, at a high number: over 72%. Just ONE ounce after a meal or with nuts. This can be a life saver and while, generally, no sugar is allowed once on abx, you are not yet on abx and the higher the number, the less sugar.
We all feel overwhelmed. It took me years to realize that my body is much like someone from outer space. I'm not in Kansas anymore but life will get better.
Step by Step. Breathe. and take care. Nurture and Nourish yourself. The rest will come together. It is a process and normal for this to toss anyone off the tracks.
There are many transitions but remember, though each transition, total change or shift in plans, you are still you - try to have some normalcy as best you can even with just one aspect of life. Demand and claim something that makes you feel connected or grounded.
Sometimes it was all I could do to be comforted knowing that the sun still rises in the east and sets in the west, that plants and trees still grow and that, at night, the moon is there to calm our senses.
This will get easier one transition at a time. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Keebler, you really are from Magic Forest aren't you?
There is something about the way you talk...type..that is really great. okay enough mushy stuff
the last part- quote: "sometimes it was i could do to be comforted knowing that the sun still rises in the east and sets in the west..."
that was helpful in so many ways-it gave me an idea to focus on-it gave me something to remember-how true it is-the sun will always rise and set
keebler, i stood in the kitchen for all of ten minutes okay maybe a bit longer and then when i came back to my bed i felt so fatigued and dizzy-blood pressure, heart?
i hope this is normal- i tried to do some gentle leg lifts earlier and maybe that was too much
i'm only 21 i should not be tired from standing in the ktichen.
I think i will print out or save your message to look at later- seriously- just to see it written is comforting b/c there is nobody here to remind me of that-
Okay, God is, but i'm still asking Him to make his voice audible.
I will be so thankful if this isn't my heart but if it is i will be thankful if it is correctable
fish oil- i have it but i'm wondering how good my brand is- it's "nature's way" i think- says mercury free- most of my supplements right now are from HEB or vitmain shoppe
not the high quality stuff from pharmanex or wherever- is it necessary to use those top end brands??
the appt with the doc here in houston is Jan 13- don't know if all the bloodwork will be back but i will let her know everything he is checking
I will go to have it drawn when my cycle ends but seeing as i'm still getting dizzy and fatigued i'm wondering if i should get my heart checked out before that...
this is all so much- it scares me that i could not stand in the ktichen that long-a stress test seems an unlikely thing to get through- maybe just an echo...
do you remember times of feeling that fatigued or dizzy?
Posts: 116 | From Texas | Registered: Dec 2009
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posted
I was just reading your message again Brandamic, and Sutherngrl, thank you for posting- my doc did prescribe an anti depressent but at least 5 people have told me not so good things about it
I'm glad that you all have come to a better place, street- hopefully we both will when we start treatment.
Posts: 116 | From Texas | Registered: Dec 2009
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