Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sores from pulling these white semi hard cysts out
that have at least one almost microscopic black spot in them. This
started when I started new meds. Anyone else have
these? I know what Morgellons looks like. This is
not them. I only have 3 on my arms, one on my leg
and 15 on my face so you can imagine what I look
like. I have dug 4 out of one hole.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Carol in PA
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Member # 5338
posted
Blocked pores improved alot for me when I began taking fish oil. The Omega 3's seem to liquify the solid pores.
Also, if you can use an LED light therapy unit on them, they will heal much faster.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Thanks, I am doing 1000 E instead of fish oil. But it might
help whatever it is come to the surface.
Sometimes its only little grits of crystal like
material. Heat seems
to help the most. Esp. with the cold/dead feeling
on my nose, cheeks and eyes. I have this rash on my
back for several months now not going away. I
suspect Toxo. but would like to talk to someone
who has had it. And which meds worked.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
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Member # 16270
posted
I have these very small hard white cyst like places on my face, which have increased since getting on doxy. They sort of have a hole in the middle, the ones that are big enough to tell.
I would be interested to know what this is. I am also taking vitamin E to try and push them out.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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I'm not sure if what I had was the same thing, but I used metrogel, which is a topical anti inflammatory for lesions, bumps and blemishes. It worked!
The product is actually metronidazole. As soon as I started taking tindamaz, didn't need it any longer.
Also, I was treated for toxoplasmosis, and did not have a rash on my back. The drugs were daraprim (pyrimethamine) and zithromax or clindamycin. There are a few variations to the protocol, but since I am allergic to sulfa, had some limitations.
Posts: 964 | From san diego | Registered: Oct 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
You may want to try a good clay mask or bathe in it. It really pulls out the toxins.
This lady from Hawaii sells clay you can use to bathe in. It comes with directions, etc. Or you can get some from a health food store.
I started breaking out last month which was weird for me. It may be a hormonal imbalance. The clay helped & I started taking some hormone balancing herbs.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
i have had my skin go in the tank too. for vit E i changed to Unique E brand. better brand to use and can be hard to find. avail. online.
if u look at that brand is better and has done some serious "pulling" of things out...including 3 different "bulls eye" rashes.. 2 on left knee which is where pain started few yr back.
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
I'll bet an infrared sauna would help here.
It draws out everything for me!
Posts: 1761 | From USA | Registered: May 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I would take an epsom salt bath and use a face cloth to compress your face.
I have toxo, and I was told mepron treats it.
Posts: 3905 | From USA | Registered: May 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Haven't done that one yet. Supposed to start Q and next. Thanks. Soak at least once a week now. Did 3 times a week for pain now for skin. Did you have a rash with the toxo?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I have the same skin issue and saw my dermatologist -- AGAIN -- today.
I took him 4 little skin plugs that I had placed on scotch tape and put in a baggie. I just knew it was scabies because of the biting sensation and crawly feeling I get a lot.
My case is severe. Worse on my face but also on my shoulders, chest, legs, hips, and behind my ears.
Doc put the samples under the microscope and said it looked like skin filament of some type. I guess I always pictured filament as stringy looking but mine looked more like tiny size rice. Some places feel blistery and when I scratch it open it always has a small amount of clear fluid and a plug.
Talk about mind-boggling?? I have only seen 6 dermo's and of course all said it was adult acne and OCD. The itching would make anyone go OCD.
My dermo also gave me a script to Stromectol (pills) to take that will kill any type of parasite, bug, etc., as a second defense. Also Doxepin at night to help with the itching. This would take care of anything in case it could be contagious.
My husband asked him to biopsy one of the places on my chest/neck area. Have a few stitches and will get results in a few days.
He said it could be Morgellon's, wasn't impossible but didn't act like he knew how to treat Morgellon's.
I am sorry everyone else is having to go thru this torture. It's enough to drive one bonkers plus everything else we go thru with lyme.
Posts: 245 | From Texas | Registered: Jul 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
ladyjenie - If it's Morgellon's, I'm sorry. Most doctors find it hard enough to deal with Lyme or Fibromyalgia. Many think people with those illnesses are psychos.
I'd hate to see what you'd have to go through if it is Morgellon's. You are not crazy. Many others have it. Don't let them make you feel like you have a mental issue.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I spoke to my daughter last night after posting on the forum.
She has lyme and the same skin issue but not nearly as severe. She thought hers was skin yeast so she tried oral Nystatin and it is almost gone.
Maybe my dermo doesn't know what skin yeast looks like, if he doesn't he surely won't know how to treat Morgellon's.
Sparkle7, I no longer get offended when a doc asks me to see a psychiatrist. I simply say I can't afford to add another doctor to the mix.
How is Morgellon's treated anyway, is there a treatment for it other than parasite treatment?
I didn't want to take the Stromectol pills until all other efforts had failed.
Posts: 245 | From Texas | Registered: Jul 2009
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
My husband with lyme has had these all over his body excessively for a couple of years. OUr llmd said he had never seen anything so bad....ever.
WE tried the topical antibiotics, ....and he of course was on high dose oral antibiotics and still getting this.
The only thing that helped was high dose oral cleocin. Cleocin is an excellent lyme drug, intracellular I believe, gets into the bones, and is good for penetrating the skin.
Cleocin/diflucan faithfully keeps the nasty things at bay.
Sometimes he would itch so badly he would run to the shower and scratch his skin off. It would break my heart.
But it is under control now. When it starts to break out, I know he has slacked off the meds.
Hope that helps, and I'm so sorry you are suffering this way.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
Thank you, Mary, I can sympathize with your husband as well. My skin will never be the same, have lots of small scars but luckily my face hasn't scarred as much as my arms, chest, etc.
I started oral Nystatin today, a teaspoon twice a day. Have to swish it around in my mouth a couple minutes, then swallow. Not too bad, just overly sweet. Will do this 2 weeks and if no improvement I can ask about the Cleocin.
The sores make me feel yucky, takes almost half a bottle of makeup to cover them and they still show thru the foundation. Estee Lauder double-wear covers better than other foundations I have tried.
Maybe the Nystatin will kill whatever it is.
Posts: 245 | From Texas | Registered: Jul 2009
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Yes, I have tried every foundation on the market, and Estee Lauder double-wear or double-matt are the best for coverage. That is also what I use.
I'm so sorry for your suffering. I can imagine how miserable that is.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
The Nystatin is helping the itching but been in bed today so can't say for sure if my face is clearing enough to get excited yet.
Saw my lyme doc yesterday and he did a test where I looked at this setup much like an eye chart. He could tell my body would not detox on its own and started me on a script called Welchol.
As I just finished 28 days of IM Clafaron and in immense pain he said the Welchol will eventually help the pain but to continue the liquid Zeolite and Detoxamin for detox.
I'm to stop all ABX for now and we're to have a phoneversation in 2 weeks to discuss how the Welchol is working.
He did mention my skin problem could be Morgellon's and was kind enough to give me a lady's name and phone # that has my exact symptoms and has suffered the same way. She is in remission now.
I need IV Rocephin but can't get it since my LLMD is in LA. Since I have seen Dr. W in Denton my LLMD is going to contact him to see if he will help me with the PICC line, med, and home health stuff. I am praying this works out.
Posts: 245 | From Texas | Registered: Jul 2009
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posted
Wow, its strange to hear so many others with Lyme that have the same skine problems.
I was just about to post a question about this topic when all of the sudden someone else did!
I also have these tiny hard white heads. They seem to be mostly on my face.
They drive me nuts because they look like a zit, and when I try to squeeze them a little nothing happens.
If it was a typical zit the fluid would come out, but not these.
They are stuck in there like little rocks.
They seemed to appear when my symptoms first began, however, they seem to be getting worse not that I started antibiotics.
I'll try the fish oil to see if it helps.
I also have these bumps on the back side of my arms. And I also get a strange itchy rash on the top of my back. I think it is apart of the detox.
Posts: 151 | From california | Registered: Dec 2009
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posted
Tiffagoo, this sounds awful but the only way I know how to get the thingamajigs out and ease the itching is to scratch them out.
When an episode begins, which is usually at PM when I am on the computer or go to bed, I start itching non-stop.
The bumps cannot be drained or squeezed like a pimple, they must be scratched open and pulled out and sometimes a tiny hole is left. Mine bleed quite a bit afterwards and are always in the same location and as soon as they finally heal, another episode starts, usually with 3-5 days.
I think the excretion looks like a tiny clear unborn larvae but the dermatologist assured me it was skin filament (from his observation under the microscope) and nothing living.
If I am doing something and feel the biting sensation, say like on my thigh, my fingers will go directly to the bump without fail.
My husband stays on me all the time about the scratching, I know he means well but I want to duct tape his mouth shut so I won't have to hear his nagging all the time. If I knew what would stop the itching and make this go away this would be a non-issue now.
Posts: 245 | From Texas | Registered: Jul 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I have found coconut oil will dry it up within a day. But if the cysts are not all out it as
ladyjenie describes it will continue but till they are gone but seems to help pull them up for
removal. It is as if these sites have a deep well for something to exit. I even had 4 red spots on
my hands to fester up and dry to a coating that came off. I have had these for over 2 years so I
know it done something to them. So if you can, try the coconut oil and see if it works the same
for you. I am also putting it on my spine rash, but it does not seem to be effecting it the same
way. It must be something else.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Pine, where is your spine rash? I have 4-5 places on my lower spine area that are similar to the ones on my face. When I scratch open the places they sting like wildfire and usually the itching sensation goes away for a couple weeks and all returns.
I will most definitely try the coconut oil. If nothing else it will help my dry skin.
My husband wanted the dermatologist to biopsy one of the places but he only took an area off my upper chest. Results still not back.
The Nystatin mouth gel is helping my face a little but I'm in the bed so much I'm only using it once a day. It is not stopping them from re-occuring, though.
As if the pain isn't enough????
Posts: 245 | From Texas | Registered: Jul 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Between shoulder blades. About the size of a hand
on the spine. I have just started clinda combo and
it is hitting my shoulders and back hard. Thank God
I found something that will. I can actually feel
this working, but my gut is rolling.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Between shoulder blades. About the size of a hand
on the spine. I have just started clinda combo and
it is hitting my shoulders and back hard. Thank God
I found something that will. I can actually feel
this working, but my gut is rolling.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I just finished 28 days IM Clafaron and hoping I can get IV Rocephin started within a few weeks.
I am really suffering now. My LLMD said my body isn't detoxing so he put me on Whelchol. Can't take the proper dose, I'm in the bed so much and not eating. He said take it with a meal.
I take Oxymorphone for pain and have smaller dose for breakthrough pain. Not much relief.
Posts: 245 | From Texas | Registered: Jul 2009
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