posted
Hi All, This morning I woke up and had the usual aches, pains and difficulty walking. This day my legs aren't "waking up". I am finding it very difficult to walk. Has this happened to any others? Thanks. Blessings, Marblenose
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes, many times my legs feel so heavy that walking any distance is a nightmare. I hat to sit inside 4 straight days due to this. I felt like I'd collapse if I walked anywhere.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Is it spasticity? This is when the muscles feel tight, uncooperative, and just plain freaky.
I get it all the time. I have an MS dx as well as Lyme, not sure which came first. (If I do indeed have both.)
Posts: 374 | From United States | Registered: Nov 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes, I believe it is spasticity though Baclofen is of little help for my issues during bad times.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
They feel like they are being squeezed too tight by something outside if that makes any sense. The pain is substantial when I stand or walk. My hips hurt as well. This is new and frightening. Blessings, Marblenose
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter had that when she first got sick. It improved with treatment pretty quickly (as compared to other symptoms)
I knew something was seriously wrong when she woke up in the morning and couldn't go to school because her legs hurt so bad.
It took two years to find out why. So sad for the days I forced her to go to school for fear of getting dropped.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
That sounds like spasticity. It is a CNS issue; the signal is malfuntioning to your legs.
Posts: 374 | From United States | Registered: Nov 2008
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posted
LLMD says we have to get into much stronger anbx when I see him Friday. I guess it's IV again...oh goodie. Blessings, Marblenose
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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posted
Jan, this happened to me over Thanksgiving, 4 days of hell, first time it was ever this bad.
I had to take the whole week off from work. It got better with a new combo of ABX.
It was VERY scary to say the least. Hope you feel better soon.....Rich
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
JustJan-
Have you seen a physical therapist yet? I have alot of problems with stamina and stiffness in my legs, in particular, and physical therapy has helped. IMHO, the muscles tighten-up becomes of overstimulation of the nerves (and the immune system). My PT does something called "joint mobilization" along my spine where she literally pulls the muscles off my spine...it feels like heaven!!!!
I also use a TENS unit (which is covered by Medicare as is the PT) which helps mix up the nerve signals....this also helps my legs from feeling "overworked" from the constant nerve impulses and twitching....
I also use plastic bands to stretch my legs...
I assume you're on some sort of anti-inflammatory...If not, I would discuss this with your doc...
Hope this helps...
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
Thanks gang, I am not on an anti-inflammatory. I guess my LLMD wants to ramp up the anbx. i would love a massage right now. I do something called zero balancing which stretches out everything and makes me feel taller and leaner. More will be revealed. Blessings, just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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