Topic: Just started the CORE. What should i expect?
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Good info Ping. Thanks
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Ping,
So sorry you are feeling so DARK about my truthful post and are not experiencing the good effects that I am experiencing. I never expect others to respond exactly like me on the therapy...and did not know others were upset that I have had a great response as well as my daughter.
Since you used my words, and wanted to address me ....I will respond.
I have always been honest with you Ping in all you have asked of me over the year.
Why make fun of me and my post now, after all this time? I have been your friend.
Instead of giving response from what you believe others are experiencing and heresay...tell your personal poor experiences with it. Tell us what Dr. K has told you. That would be much more believable and beneficial rather than heresay...or what if's...writing negetive thoughts and emotions.
I am the one posting MINOR issues that came and went, so others will know how to compare and what possible things to expect. None of the odd symptoms I posted were permanent or so bad at all. They were all old things I actually experienced in my medical past. They were just noticeable...and very easy to deal with!
Those more ill, or still on ABX or other therapies have other issues to deal with and have a different experience. Let's all speak for ourselves on this forum please for truth.
Since I give to you...I would have appreciated to know your MAJOR issues, as that would be respected if you really want to help others, and not just take.
Cane, I do not believe I have been vague to you in my several lenghtly PM's as suggested by Ping. I actually thought I went to excess in my explanations to your sincere questions and have been kind to you. PM me again if you need more from me.
I spend so much time replying to multiple PM's and emails each day...that I give freely from my heart, that most are grateful for my time from lymenet. I do this as others have done this for me. Without them, I would still be very ill...so I hope to give back.
And please Ping and all, go yourself to Dr. K., if his response matters to you and he will tell you what you need to know about him personally...if you really need to know.
I doubt he goes on lymenet...and would have no need to post for you here, especially about his personal medical issues...this would give him a chuckle!
It shouldn't matter to anyone if Dr. K does this or not...especially as most are not even his patients! This is silly.
Anyone can pay to see him as their MD versus getting the knowledge so freely given here by his paying patients or those who have flown to his seminars and freely give his wisdom to those who could not afford to go or travel!
I say, be grateful for the gifts you have been given, rather than throwing them back in the givers face in a negative manner.
Obviously you are trying to accomplish something from your attack on my words...but your best response to Cane...is to tell Cane what you personally experience, not attack my truthful experiences to make me look false. You can PM him that and have avoided letting me know your feeling about my posts.
And ping..PSP therapy is said to be permanent...you may re-acquire the same toxins from new things you are exposed to...but you wont get back exactly what you got rid of...it is gone.
That being said, all of us doing the PSP should know it is a personal experiment for each of us with different issues. I have used the word pioneers in previous posts. Don't understand why now, people dont really understand it, and want the "cookie cutter "cure and reactions with this.
That does not exist.
And more truth, YOU can get lyme again too if you get bit again! It happens sometimes...the same with PSP...at some time you may want to retest and take the therapy again if you show newly acquired toxins and have new symptoms arise in the future...
"The light shines through the darkness and the darkness will not overcome it."
posted
there is no question to me that struggling the way we do to learn whatever we can, to experiment as we do in this process of healing, can all be very frustrating and downright painful and freightening.
i know for me it takes me to the edge of what i can possibly endure and then throws me over the edge. many times i have had to then decide if i can go any further. this is what i had to face before i chose to return to seattle. i told dr k this and he got my despair and he got my courage. in his caring way, he gave me the best most generous tools in his toolbox.
we all have our own version of facing our illness and/or our loved ones suffering. our frustration can eek out on others. when i do that, it just causes more suffering.
let us remember that we are all on the same side. we want to see people heal. and we want to heal. it is easy to get derailed by the suffering. then we can bring ourselves back to what is true for us.
we are all still here. none of us have thrown ourselves off the edge permanently. let's keep moving forward.
Posts: 830 | From Colorado | Registered: Mar 2005
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