LymeNet Flash: newbie with questions...

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»	LymeNet Flash » Questions and Discussion » Medical Questions » newbie with questions...

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Topic: newbie with questions...

pas
Member
Member # 22416

posted

Hi everyone,

I'm pretty new here. Nice to meet all of you! I'll try to keep this brief.

I have Lyme, HME, Bartonella, and active HHV-6 and mycoplasma pneumoniae infections. Also several other serious health problems.

Right now I'm on IV Rocephin. I take Transfer Factor, Samento, and OLE. Not sure what to do next and could use your collective wisdom!

I'd rather not use Levaquin for Bart. Has anyone here used Zithro (IV or PO) for Bartonella?

Has anyone used Valtrex or Valcyte (IV or PO) for HHV-6?

Has anyone used Zithro or Levaquin for Mycoplasma?

Interested in your experiences and advice. Thank you in advance!!

Leigh

Posts: 95 | From Maryland | Registered: Sep 2009 | IP: Logged |

lymemomtb
Member
Member # 23993

posted

Leigh, I used Zithro (PO) and did not tolerate it as it can cause an increase in GI motility and there is nothing you can do but stop the drug when this happens. I have a friend on Zithro though and it works great for her with minimal side effects compared to some of the other 'heavy hitters'. Good luck.

Posts: 24 | From Connecticut | Registered: Jan 2010 | IP: Logged |

pas
Member
Member # 22416

posted

Thanks for letting me know. I would be using the IV form (I have atrophic gastritis and malabsorption and have to take lots of meds for other problems), so fortunately for me the GI effects would be minimized.

Were you using the Zithro for Bart, or as combo therapy for Lyme/mycoplasma? Just wondering....thanks again.

Posts: 95 | From Maryland | Registered: Sep 2009 | IP: Logged |

timaca
Frequent Contributor (1K+ posts)
Member # 6911

posted

Leigh I have used valcyte. My story can be found here: http://hhv6foundation.proboards.com/index.cgi?board=antiviral&action=display&thread=39

You will need to sign in to read the posts. Others have posted in that thread and other threads.

Best, Timaca

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005 | IP: Logged |

pas
Member
Member # 22416

posted

Hi Timaca,

Thank you so much for pointing me in the right direction. The hhv6foundation site is amazing. So much to learn - thanks again. Hope you're doing well.

Leigh

Posts: 95 | From Maryland | Registered: Sep 2009 | IP: Logged |

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