Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
If you do take ketek, do you take it with other abx? If so, which ones?
thanks
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I took it over a year ago as my second treatment to attack lyme. I took it alone but it would probably be better to use with another drug so that you are attacking the lyme in all of it's forms. I only took it for about 3 months altogether because it gave me headaches but it was one of the most effective abx I have ever used . You have to be careful and have your liver tested while on it. I have read it is also useful to flush out bartonella from the cells so that something else can kill it. It is best to have an LLMD help you with putting the various drugs together so you are covering all the bases. I had to use a GP taking him Dr. B's guidelines. We kind of went around in circles, me with brain fog trying to determine the best form of treatment and him agreeing to whatever I wanted without any interest of his own in getting it right. I am still in the that position as the nearest LLMD is 500 miles but having seen at least one LLMD I have a little bit more knowledge of what I am doing by what his initial recommendations were.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Thanks Nef,
I am also doing bicillin shots, so that should cover spirochetes.
Yeah, my Doc told me we would have to watch my liver carefully.
My LLMD is almost 400 miles away, so I know how you feel. I don't have a GP, they don't want me when they find out when the meds I take
My housemate, who has generously gave me a room to live in, is from Montana, more like the middle.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I took Ketek on and off for about a year - the first year of my TBD treatment.
Huge herxes, huge response - and lots of progress while on it. Good med.
Keep up with checking your liver, definitely.
I took it in combo with Mepron a lot of the time I was on it, usually adding in one more abx - like doxy or omnnicef (I think omnicef was one).
Hope it works well for you!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
thanks, anyone else?
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
| IP: Logged |
Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
anyone else?
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
| IP: Logged |
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Took it several years ago for a few months, was very effective. But after a while my gut couldn't tolerate it anymore.
I can't remember if I was another abx while on Ketek, a few years ago now.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
| IP: Logged |
posted
Hi, I took Ketek for a long time, just can't remember how many years. It was the BEST med I have ever taken! You have to have monthly liver tests just to keep an eye on your liver but don't let that scare you. I was able to stop taking it for a year and so happy! My symptoms returned in May last year and the Ketek just couldn't kick it this time. I firmly believe it is because I am fighting a Bartonella infection instead of Lyme. Don't hesitate though. It worked VERY well!
Posts: 5 | From CT | Registered: Jan 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic