Is there anyone out there that could explain in simple enough terms how a lyme patient would get stem cells and how that works? Also, I am most interested in if there is any research, clinical or otherwise that shows improvement in late stage neuro folks like myself (sick since 2000 and tested positive for all co-infections)? Thanks so much for your time!!
Happy New Year!!
Posts: 1 | From CA | Registered: Feb 2009
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posted
The thing I would like to know here is the doctor in India I believe uses embryonic stem cells.....taboo in US???
There are other forms of this autologus (self stem cells) which are used in a terrible disease like P.O.E.M.S. along with allogenic....others stem cells..I wonder if these would work like the embryonic stem cells...
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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posted
My understanding is the stem cells used by the doctor in India are from a miscarried (not aborted) fetus. The doctor clones the stem cells, so no ongoing source is needed. The original ones were donated by the parents who lost the baby.
I don't know whether stem cells are stem cells are stem cells .... seems like they would be.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
yeah I wonder that myself especially in the neurogenesis and cellular brain repair with neural progenitors, precursors and stem cells ....wonder...wonder...if
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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sparkle7
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I don't see how they could help unless you get rid of the Lyme Bb & co-infections prior.
Wouldn't the infection/pathogen that caused the illness to begin with just come back after the procedure?
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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don't have an answer but there is a disease out there called P.O.E.M.S. deadly. There is a story on the net that she received autologus stem cell transplant....her symptoms and story are here...why did her stem cells work....when her body had the disease? Some of the symptoms are quite a bit like lyme if you look up the symptoms...flushing etc....effects organs in the body.....
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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sparkle7
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It seems P.O.E.M.S. is very different than Lyme. I think stem cell therapy can really be worthwhile but it depends on the illness.
With something that's a bacteria like Lyme or the co-infections - you really need to treat the source. I've read some descriptions of Lyme that suggest that it may be a parasite.
Seems best to try to irradiate it as much as possible by other means than stem cells. Stem cells may help to boost the immune system or repair other problems originating from Lyme.
Just an educated guess...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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GloriaP
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I asked my hubs' colleague at university--autologous means from your OWN body
is that what that India Dr is doing?taking cells from patient and making stem cells to inject back?
I thought stem cells ( when NOT from your body) cant be from just one embryo especially if aborted--has to be from test tube- hubs' bud says "nonsense" and laughed when I asked if the stories can be true.
I read on another webiste that the India Dr is suspect by her own colleagues for not using what she says.
who knows when money is to be made and sick people are desperate--a sad mess can happen I guess
local newspaper story last summer had someone dying after stem cell injections--cant it be dangerous???
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In any disease it would be nice to know of the viral/bacterial/infectious/environmental agent that can cause disease. It would be a perfect world...huh....I agree...but we do not have that...I know medicine is not an exact thing..wish it were....
there is a computer actually enough that has been developed that they think will actually help in tracing many diseases....and help with a possible cure if not a link to how a disease morphs...
autologus yes self...allogenic from others....
sick people are desparate....we only can hope we find doctors that have integrity...not only outside of the lyme world but inside also
yes stem cell therapy can cause death...I wish I had an easy answer for you on that...what will end the suffering is what I think of...treatment..I would probably risk it...not easy to say..
Sparkle I agree stem cells a cure or can they rejuvenate.....I hopefully will be under a neuro who has is into Adult neurogenesis and cellular brain repair with neural progenitors, precursors and stem cells...I await his direction
POEMS or lyme....below you decide neuropathy,papilledema,thrombosis,vascular endothelial growth factor (VEGF) levels have been noted, proinflammatory cytokines, loss of myelinated fibers etc...seems like lyme huh?
Anyway what can I say....take what little from this you want.....but I hope we never loose the tenacity we need to endure...and boy that is the toughest thing...
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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sparkle7
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There's a case where someone was *cured* from AIDS & leukemia on Bloomberg news about a month or so ago. It seems that there are some people who have natural immunities to AIDS.
Stem cells from a person who had immunities were injected into the guy who was ill. He's been cured for 3 years now. The doctor was from Germany.
AIDS is often from a retrovirus - so, the sick man's body may have been able to adapt the immunity from the stem cells. With an illness from a bacteria, it may be different. There has been tons of money going into AIDS research. It's not the same with Lyme & company.
It seems good in theory but I don't think the research or experience for Lyme are there. Each case is individual.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Well I'll just say KUDOS to the doc in India...and Germany...wonder if that was expieremental?
if it is different how come some exposed do not develop the symptoms and some do? Shouldn't everyone exposed to lyme and company come down with it? so to some degree and in some it must be able to be controlled within a person's immune system...no?
Gotta be a reason...maybe she hit on something? The girl that went to see her had a LLMD I believe who is from CA...Doc H...maybe wrong...he was impressed upon visiting the doc in India.....isn't he highly regardrd in the lyme world?
lyme can mimic the immune sytem...maybe that's why embryonic is needed...don't know...but I will not discount her theory...not now anyway
but we are not answering the question that was posed.....which to me seems positive when a reality....?
posted
I understand the majority of Lyme patients who try it are helped. This from discussion with people here who went to India. They went a couple times.
Posts: 13116 | From San Francisco | Registered: May 2006
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CD57
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But still...better the get the load down and then go? Or does the stem cell treatment help you get the load down? Not cheap...
Posts: 3528 | From US | Registered: Apr 2007
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From what I understand, the stem cell treatment IS a strong treatment. Tremendous improvement in the couple patients who had previously tried several other treatments. And yes, it is not cheap.
Posts: 13116 | From San Francisco | Registered: May 2006
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troutscout
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Try STemtech....great supplement.
enhances stem cell production on the body...its expensive...but it hit my brain big time
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Funny last night I was watching the movie Philadelphia with Tom Hanks...made me think why are some exposed to HIV and do not get aids while others do? or is that the other way around?
[ 01-22-2010, 02:38 PM: Message edited by: Raymond ]
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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Tracy9
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Embryonic stem cells....an area Fin24 studied extensively in.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Search on Cheney (famous CFS Doc)- he is using stem cel treatment- go to his website. This is a US based company who is treating out of Panama/Costa Rica using stem cells from patients fat as well as placenta/cord blood cells. This company has produced some positive results with some MS patients as well. Still no data on long term effects/success/ risk-but worth looking at. This is less costly (although probably not as effective as embryonic stem cell approach in India)............
I for one believe stem cell treatment will play a critical role in all chronic degenerative diseases- I hope this technology advances quickly for all of us.
Posts: 200 | From New England | Registered: Dec 2009
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