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Magnetic Resonance Spectroscopy: This technique uses radio waves that are emitted almost continuously rather than in pulses as in conventional MRI. Magnetic resonance spectroscopy is used to detect brain disorders, such as seizure disorders, Alzheimer's disease, and brain tumors and abscesses. It can distinguish between the dead debris inside an abscess and multiplying cells inside a tumor. This technique is also used to evaluate metabolic disorders in muscles and the nervous system.
While on this anyone ever had a CT angiogram? Finding autonomic system can be vasculature in nature?
There are about 400 metabolic disorders...wonder how many lyme related? Look under L....List of ICD-9 codes for an example...click on it
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Blows my mind these things are out there are they collecting dust from our perspective....I guess the question is should they?
Those metabolic disorders can be viral related also.
I do think there are many answers to our questions.....or help but need a doc that is willing to run the show so we don't have to search. I am seeing a doctor whom seems he wants an answer for my wierd symptoms....I will ask him about this MRS when I think it time. He is a neuro with degree in biochemistry.
Do not know about these doctor on this posting but talks of MRS.....
Hubby had his own personal issues with Dr Y. But aside from that I have been communicating with a 16 year old patient who went to see him. Sadly he did not test for coinfections -- told the family it was unlikely. So far she has tested positive for WA-1 babesia with another doc and is waiting for additional tests. She had a routine SPECT which was abnormal -- but NYU does not list Lyme as one of the possible reasons for the hypoperfusion as would have been done at Columbia -- just said infection.
The family thought that since Dr Y chairs with Dr B for the NY support group he would have similar treatment philosphies -- not true. Unless something has changed it is my understanding that the only treatment Dr Y believes in is IV IgG once you have gotten your initial 30 days or so of antibiotics.
As to requiring a CDC positive Lyme test for the clinical trials -- unfortunately that is the only way to win over the IDSA types -- Fallon also had similar criteria for his long-term antibiotic study funded by the NIH.
Personally I think an MRS test might be helpful. I think it would be very interesting for a qualified group such as Columbia to do SPECT scans and MRS scans and compare the results.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Thanks....this new tech should be used but upon reading more about the MRS I found that in most cases it is investigational....as another thing I think we can benefit from HBOT.
That being said there was a woman down in FLA who had HBOT for MS and it reveresed her MS....she had to sue her insurance company and won and it was determined that not only did the insurance company have to pay for past treatments but fututre ones.
The philosophy evens varies within itself...what did Lincoln say a house divided can not stand...hmmmppp
[ 01-21-2010, 05:13 PM: Message edited by: Raymond ]
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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