posted
Hi, I posted on here a few months ago. I thought I might have lyme being in an epedemic area although my reg dr thought I may have Lupus.I really didn't have many symptoms of lupus so I asked her to run lyme tests. I also had very low ferritin levels (5)and thought that it may be contributing to my problems. I started taking extra iron 2 months ago. My labcorp results showed 41 as the only positive band. My ID dr put me on 4 weeks of doxy to start and is running a lot of other blood work. He thinks it is very possible I have lyme. Anyway, my joints seem a little worse but most of my other symptoms such as restless legs, shooting pains in legs, numbness and sciatica seem to have gone away. However I was walking 3 miles a day at the time. I recently got a job. Today I went on a walk and immediately afterwards I started getting some numbness in toes and sciatica. This happened once before about a month ago when I walked for a day after not walking or having these symptoms for a week or so. Now I am wondering if I really have lyme. Could moderate exercise cause these issues and so soon after exercising? I've heard people say not to do aerobic exercise but this is just plain walking. Thanks Posts: 22 | From Pennsylvania | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Chollay,
As many here have nystagus (spasming eyes) and neurolyme (making it harder to separate out new paragraph topics without white space between), I'm breaking up your text so more can read and reply. If your future posts are 2-4 lines per paragraph, you will get more replies. ------------
From chollay:
Hi,
I posted on here a few months ago. I thought I might have lyme being in an epedemic area although my reg dr thought I may have Lupus.
I really didn't have many symptoms of lupus so I asked her to run lyme tests.
I also had very low ferritin levels (5) and thought that it may be contributing to my problems. I started taking extra iron 2 months ago.
My labcorp results showed 41 as the only positive band. My ID dr put me on 4 weeks of doxy to start and is running a lot of other blood work. He thinks it is very possible I have lyme.
Anyway, my joints seem a little worse but most of my other symptoms such as restless legs, shooting pains in legs, numbness and sciatica seem to have gone away. However I was walking 3 miles a day at the time. I recently got a job.
Today I went on a walk and immediately afterwards I started getting some numbness in toes and sciatica. This happened once before about a month ago when I walked for a day after not walking or having these symptoms for a week or so.
Now I am wondering if I really have lyme. Could moderate exercise cause these issues and so soon after exercising?
I've heard people say not to do aerobic exercise but this is just plain walking. Thanks
chollay -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Were you given steroids (prednisone, etc.) with the lupus diagnosis? (Steroids can make lyme much worse.)
Others will be around with more help. Leaf blowers have just invaded my apt. complex and I have to go hide under the bed for a few hours.
Sad that you are having health problems, however, you are at good place to find the information. I hope, all together (and with a good LLMD) that you get the details you need - at every step. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks for the reply...Sorry, I will change my formatting from now on. I didn't know this, thanks for fixing for me. I was never given anything for Lupus. My idiot dr told me that my ana was positive and dsdna showed a slight positive for Lupus and suggested a rheumatologist. I didn't really have any major symptoms of Lupus so I didn't follow through. I google searched Lupus and found this forum which is a wealth of info. I found an excellent ID dr whose office was filled with lyme patients when I was there. He is the reason I have the doxy as my reg dr dismissed the possibility of lyme. Thanks again
Posts: 22 | From Pennsylvania | Registered: Dec 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Beware of most ID docs. Chances are he won't treat long enough.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Thanks, I think this one is good. I met patients in his office who have been treated with IV antibiotics for extended periods of time. He believes in chronic lyme
Posts: 22 | From Pennsylvania | Registered: Dec 2009
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