posted
Whatever I have has gotten to the point that I am miserable. 4 years ago, I was tested for Lyme and Ms, as well as other things, because I was miserably sick and weak. My Lyme test came back with the Lyme AB screen at 1.02, equivocal. My western blot only showed the 41 kd as reactive. It was left at that- and I was diagnosed with Fibro by my GP, which last year the Rheumy told me he doesn't think I have.
Now, 4 years later, still weak and tired, but now have I have facial pain, numbness, etc. All of my MRI's, MRA's, CT scans come back normal. Should I request retest for Lyme? I don't know where to go at this point. Thanks for your time!
Posts: 10 | From michigan | Registered: Feb 2010
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posted
I would suggest you find an LLMD (Lyme literate MD) and get testing done.
Not all docs are created equal, and many non-LLMDs do not believe in Lyme, nor do they know how to find it and treat it. It is a clinical diagnosis, so you need a good clinician familiar with the disease, to do the diagnosing for you.
Go to seeking a doctor section and post; someone will send you some names of LLMDs in your area.
GOOD LUCK!
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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posted
thank you- I actually did post for a doctor. I am just really frustrated with my health and need some answers!!!
Posts: 10 | From michigan | Registered: Feb 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
So sorry you are ill!
Lyme Disease is a "clinical diagnosis". Only a good LLMD can make that diagnosis. The test for LD are very inaccurate and are used only to back up the clinical diagnosis.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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