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» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme Bell's Palsy Treatment?

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Author Topic: Lyme Bell's Palsy Treatment?
Natalie in TX
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Hello All,

Has anyone had any luck getting rid of long-term Bell Palsy associated with Lyme Disease?

I first developed Bell's Palsy about 7 years ago. Looking back, I had many Lyme symptoms at the time but was never tested.

My Physician in AZ prescribed the wrong thing- prednisone, as well as acyclovir. Of course, the steroids made it worse.

My paralysis improved a little bit after several months but I am still left with noticeable drooping and facial pain and tingling.

Fast forwarding to April 2009, my diagnosis of Lyme Disease and I've found a LLMD here in north TX. I tested negative for coinfections, although my LLMD does think I show signs of Bartonella.

I've been on oral doxycycline, azythromycin, plaquenil, ceftin, and now am on a pulse course of Flagyl too.

Many of my symptoms have improved, however, I still have most of my Bell's Palsy symptoms.

Does anyone have any ideas after several years of allowing this bug to penetrate my nervous symptom and cause this Palsy?

I took four months of B12 shots but am tapering off now to sublingual B12.

I also take a multivitamin, magnesium, extra B vitamins, several immune boosting herbs, omega 3's, and CoQ10.

Does anyone know of any herbal treatments or homeopathic remedies that have worked on stubborn cases of Bell's Palsy?

I'm willing to go to the next level of focused treatment to try to improve this palsy. I've resigned myself to living with it for the rest of my life but that doesn't mean I stop looking for treatment.

Any suggestion are so appreciated!

Love and light to all,

Natalie

Posts: 9 | From Dallas, TX | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
f13girl
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I've read that wood betony and also st johns wort are good for bell's palsy. You may want to pose question bo Buhner on planet thrive website.
Posts: 200 | From New England | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
TF
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I had bilateral bell's palsy that lasted for 3 1/2 years, all during the time I had undiagnosed lyme disease.

Then, I woke up one day and it was gone!!

This was totally without any treatment at all. Later I was diagnosed and treated for lyme, babs, and bart.

It was only once I learned a lot about lyme disease that I realized my terrible facial drooping was Bell's Palsy.

So, all that to say that I really do believe you could wake up one day and this thing is gone. I love the idea of doing all you can for your nerves--sublingual B12, etc.

Nerves heal, but it is a slow healing. I learned that after having my hand chopped up in a meat cuber at work. Each year, the pain and tingling reduce, and the sensitivity (to cold, touch, etc.) and normal sensation returns. Thank God for the body's ability to heal nerves.

If you have not yet prayed to have the facial nerves heal speedily, I suggest you do that. And, I will pray that for you now. I know what this condition is like, and my heart goes out to you. I was thrilled the day I returned to normal. I would love to hear you post that this happened to you too!!!

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Lymetoo
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TF.. what an encouraging post!

Natalie... just keep on treating and see what happens! You may one day find yourself without it!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
f13girl
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one more thought-- maybe get some st. johnswort oil (supposed to be good for neuropathy) and rub that on your face..............can't hurt!
Posts: 200 | From New England | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Natalie in TX
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Thank you everyone for your comments and suggestions.

I will try the St. John's Wort, both topically and ingested. I've also read about Stephania Root and Resveratrol (Japanese Knotweed) to restore neuropathic conditions.

Has anyone tried those or heard of success with those two herbs?

And TF.....strangely I haven't prayed about my nerve recovery yet. I will now, and continue to do so. Thank you for your prayers.

Posts: 9 | From Dallas, TX | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Natalie, Sometimes we forget to pray for ourselves, don't we!?!

I just added you to my list!

Wonder what neurontin would do??? Anything?? It is used to help nerve pain.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lynnic86
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Just a quick note on St. Johns Wort... when I took it my blood pressure dropped so fast I had to stop immediately..

good luck

Posts: 215 | From PA | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
Cass A
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I wouldn't try neurontin.

The company paid docs and their own staff $$$$$$$$$$$$$$$$ to promote it for everything possible, violating Federal rules. The company then pleaded guilty in court, paid a big fine, but the prescriptions keep rolling along.

These psychotropic drugs can have horrific adverse effects, also.

You've gotten some great advice here on herbal remedies. Why not try them out first?

Best,

Cass A

Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Natalie in TX
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I actually did try Neurontin about 5 years ago and it didn't seem to help much so I quit taking it in the first month. Glad I did.

And I really do hate taking Pharmaceuticals on a daily basis, especially those that have such negative histories.

The pain that I have isn't bad enough to warrant risking the rest of my health.

My pain feels like a cold, tingling sensation on the right side of my face and through my ear. It's bearable enough, unless I'm having a really bad pain day, then I reach for Vicodin.

Plus, my feeling is that drugs like Neurontin are only covering up the pain, not healing it. The herbs and natural remedies seem to work to heal and if they don't heal, they at least don't often harm.

I'll be weary about my blood pressure with the St. John's Wort.

Thanks everyone!

Posts: 9 | From Dallas, TX | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
   

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