this new dr. will send me my bloodwork through the mail with a letter.....this is so wrong....
the letter states my lab work is OK except for my elevated sedimentation rate.. i should see a rheumatologist,
but what i dont get is.. the last blood work that i did with him, it was HIGH then too and he didnt mention anything about it, he just wrote ..."why are you not taking your medication for your high cholesterol?
on this lab report it states that i am positive for ANTI-NUCLEAR AB W/RFX...ANA (HEP-2)anybody knows what this means ..until i fax this over to my LLMD.
It also shows anti-nuclear B titer at 1.80 its HIGH ..... in range should be 1.40
the ANA PATTERN shows Speckled*....anybody knows what these three things means...im scared...help..What can i take to correct this..i dont know what none of this means.
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
NO. I do believe Lyme can do this also. ANa is a common finding in Lyme patients and your titer s still considered low.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Wait a minute. You said Igenex only called you today to clear up a clerical question. So your new LL PA does not yet have your test results.
Is this an old question then, based on old tests from before you saw your new LL PA?
No, you do not need to see your rheumatologist for a high sed rate (every one with lyme has a high sed rate as it's a basic test that says there is inflammation somewhere in the body).
Rheumatologists do not treat lyme. An elevated ANA does not equal lupus. And, if you were to have signs of lupus, your LL PA is equipped to guide you there, too.
I've had very high ANA and Speckled ones, too. It's very common with lyme. Just relax and wait until your LL PA gets in the last set of tests. Then you will have more details and he can look at all the data together.
You are in good hands. I hope you can enjoy spending time doing something totally enjoyable (yet safe) until you have to move on the next step of the decision process. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
No, you don't have Lupus. I had a positive ANA as well (speckled pattern.. and had myself scared half out of my wits thinking I had scleroderma)
My LLMD told me to not worry at all about it. Said most people with Lyme get positive ANA and then it goes away later after treatment.
You're alright
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I also had a positive ANA with a speckled pattern due to lyme.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
WHAT WOULD I DO WITHOUT YOU guys..sorry for yelling..
each day i get more different stuff that is going on in my tired body...
yes they call me today, and i also had a PCP dr before i found my llmd..
i have hip medicaid, and he takes my insurance, i needed my cholesterol checked i started taken my lipitor and he did it before and it was high,
since i had him and i dont have to pay, i went to him on the 25 of january..to do my cholesterol again to see if i have improved, i did improved, but got this new ana nuclear stuff...its a good thing i went, so i can tell my llmd...
i know im all over the place...
keebler..can i live with you ...only till i get better..i promise to always be on my best behavior.
quote:Originally posted by Keebler: - Wait a minute. You said Igenex only called you today to clear up a clerical question. So your new LL PA does not yet have your test results.
Is this an old question then, based on old tests from before you saw your new LL PA?
I'm still confused!
No, you do not need to see your rheumatologist for a high sed rate (every one with lyme has a high sed rate as it's a basic test that says there is inflammation somewhere in the body).
Many lyme patients like myself have LOW sed rates. Some drs think it's because we have hypercoagulation.
---------
I've had very high ANA and Speckled ones, too. It's very common with lyme.
Me too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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WildCondor
Unregistered
posted
Hey...try to keep your posts on the same exact thing to one post...we already answered the other one.
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posted
i also had a speckled pattern ANA back in 2003 when i had some weird symptoms (which were probably lyme). I was diagnosed with lyme in 2007 and I just recently read an article a few months ago (have no idea what/where that actually stated that if someone has a speckled ANA to consider lyme- seriously.... I remember telling my husband about it and how it was not even investigated back then..... actually a rheumatologist told me that I probably had CREST or lupus (we would have to see how they it played out is what he said) and sent me on my way with a script for prednisone.... thank God I did not believe him or take the prednisone....
please, please, PLEASE do not think it is Lupus or something else.... Lyme causes the positive ANA and for me even resulted in a positive RF at one point.... was all negative when re-tested. it was all lyme for me....
Posts: 871 | From NJ | Registered: Mar 2007
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posted
My ANA was high and speckled before LD diagnosis and treatment.
I've been treating LD for a long time...
The good news is my ANA has been normal for at least 2-3 yrs.
Posts: 300 | From Northeast | Registered: Dec 2006
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
uh... anyways...
Yes, I think you will get better street. You're at the right place for asking questions. People here helped me when i came here, scared out of my mind about the muscle twitches and the ANA and everything else. This is a good place to start slowly learning. You can PM me anytime if you want to talk. I've been in your shoes with that fear you are holding onto. It gets better. Do your very best to remain calm and not try to interpret things (DONT GOOGLE!!! lol) It serves no purpose, is often wrong and only causes your anxiety to get much worse. I learned that the hard way
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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