posted
I would love to keep my doctor. She has alot of insight into lyme. She does treat alot of other things as well.Might like to at least talk to someone who focuses more specifically on Lyme and related co infections. I did take a Western Blot at Igenex thru my current doctor. I got a total between the two parts of the test of 3 positive and 2 indefinite bands. I am undiagnosed with anything as of yet. Started with a stiff neck adn then progressed to a swollen unidentified mass under my left arm which started an underlying shivering that spread for almost 3 weeks from that point all over the back of my body and when I get flares this is the point of origin.It did not show up on CT scan or MRI as anything abnormal.Blood test after blood test show little or nothing. Neurologic tests show nothing alarming. Allergy testing has yielded little in the way of results so far. Gastrointestinal doctor shows a few minor things internally. Organix urine test showed low aminos and vitamin D as well as overgrowth of internal bacterium including clostridium. I feel like my nerves are on fire when this flares up and my muscles go rigid and my chest and ribs hurt. Feels like a heart attack , there is a small nodule under my left arm where most of the shivering,nerve issues seemed to start and emanate from whenever there is a flare up. CT showed no abnormalities there and nothing showed on a full body MRI. Seem to have poor circulation and insomnia alot of times. Am on a restricted diet for the last month or so. Seems to help but doesnt stop flares. Taking herbal mixtures from a Lyme knowledgeable holistic doctor. Just started taking doxycyclene and Azithromycin a couple days ago. I have a few other rather large nodules beneath the skin in my arms that are as yet unidentified. No color to them and I know at least one of them is not recent. I have experienced little to no fevers. Some night sweating, alot of flares create rigid feeling muscles and almost a cramping sensation. Pressure in my head and abdominal area as well when sitting in certain positions. Pain in the soles of my feet and a wobbly sensation of rocking on standing for any length of time.Feel like I have terrible circulation and get numbness and tingling in normal body positions occasionally and muscle weakness in my arms mainly. Nodule or swollen lymph node right in the middle of my breastbone on the right side has been a rather recent development. All Autoimmune markers are negative and no signs of cancers. Monocytes are slightly high but within error rangs. Spleen was swollen when full body MRI was taken and minor neck arthritis showed up as well. I am 34 years old and was working out 5 days a week prior to these symptoms.Could be Lyme and at least one co-infection. God blesses me with more strength every day. I pray he does the same for all those that read this.Any help is truly appreciated.God bless.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
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posted
CD57 came back at 188. Praise God. That doesn't mean there is no infection or co-infection.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Adam,
You have symptoms of Lyme, bartonella and babesia.
My best advice is to find a Lyme literate MD on the Seeking a Dr board and get an appt asap.
The longer you have these infections the harder they can be to treat and you will just get worse.
Don't take this lightly. I was undiagnosed for 21 years.
I would bet that your + and IND bands on your western blot included at least one Lyme specific band.
99% of Dr's do not understand Lyme and coinfections enough to diagnose or treat them properly enough for you to recover.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Breaking this up for easier reading. Posted by "adamtedder"
I would love to keep my doctor. She has alot of insight into lyme. She does treat alot of other things as well.
Might like to at least talk to someone who focuses more specifically on Lyme and related co infections. I did take a Western Blot at Igenex thru my current doctor.
I got a total between the two parts of the test of 3 positive and 2 indefinite bands. I am undiagnosed with anything as of yet.
Started with a stiff neck adn then progressed to a swollen unidentified mass under my left arm which started an underlying shivering that spread for almost 3 weeks
from that point all over the back of my body and when I get flares this is the point of origin.It did not show up on CT scan or MRI as anything abnormal.
Blood test after blood test show little or nothing. Neurologic tests show nothing alarming. Allergy testing has yielded little in the way of results so far.
Gastrointestinal doctor shows a few minor things internally. Organix urine test showed low aminos and vitamin D as well as overgrowth of internal bacterium including clostridium. I feel like my nerves are on fire when this flares up and my muscles go rigid and my chest and ribs hurt.
Feels like a heart attack , there is a small nodule under my left arm where most of the shivering,nerve issues seemed to start and emanate from whenever there is a flare up.
CT showed no abnormalities there and nothing showed on a full body MRI. Seem to have poor circulation and insomnia alot of times. Am on a restricted diet for the last month or so.
Seems to help but doesnt stop flares. Taking herbal mixtures from a Lyme knowledgeable holistic doctor. Just started taking doxycyclene and Azithromycin a couple days ago.
I have a few other rather large nodules beneath the skin in my arms that are as yet unidentified. No color to them and I know at least one of them is not recent.
I have experienced little to no fevers. Some night sweating, alot of flares create rigid feeling muscles and almost a cramping sensation. Pressure in my head and abdominal area as well when sitting in certain positions.
Pain in the soles of my feet and a wobbly sensation of rocking on standing for any length of time.Feel like I have terrible circulation and get numbness and tingling in normal body positions occasionally and muscle weakness in my arms mainly.
Nodule or swollen lymph node right in the middle of my breastbone on the right side has been a rather recent development. All Autoimmune markers are negative and no signs of cancers.
Monocytes are slightly high but within error rangs. Spleen was swollen when full body MRI was taken and minor neck arthritis showed up as well.
I am 34 years old and was working out 5 days a week prior to these symptoms.Could be Lyme and at least one co-infection. God blesses me with more strength every day.
I pray he does the same for all those that read this.Any help is truly appreciated.God bless.
++++++++++++++++++++++++
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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It does sound like Lyme and possible bartonella. Go to Seeking a Doctor to find a good Lyme specialist.
WELCOME!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
The rocking boat is usually caused by vitamin D
deficiency. The pain in hands and feet, bloated
feeling could be low thyroid. All of which are
caused by Borrelia.
I think you should seek a LLMD over in seeking a
LLMD section for help with your diagnosis and
treatment. If you have been sick with lyme very
long you could be full of organisms that went
undetected by the immune system. Prayers for a easy road.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I do have a Lyme literate doctor. She is great. Tends to lean towards her naturopathic doctorate more then her medical doctorate, but she does include antibiotics in her treatments. She knows what lab to send testing too and has been patient and listened to all my symptoms. She has me on supplements due to really low Vitamin D levels and low amino acid levels as well as clostridium overgrowth. I held off on the antibiotics for a while to see how the herbal treatments another doctor of mine was going to turn out. He turned the volume down on alot of the symptoms and each week for a few weeks we started moving symptoms around with the standard accupuncture and herbal treatments very successfully. Flares now come at pretty regular intervals of 8-10 days or so, with no similar circumstances to blame them on. They last anywhere from a day or two to this one of almost a week. God bless all you for helping.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
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posted
Oh and if I didnt mention it. My CD57 test came back 188. Which from what I read is pretty high and a farely normal level. Thyroid is pretty normal and have tested that 2 or 3 times in the last few months. White blood cell count is 5300 or so. Monocytes are slightly elevated but within error range.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome. Glad to see you already have some replies. If you can break up your future posts into shorter paragraphs, you'll get more replies. Many here can't read large block of text with no "breathing room" for our eyes.
Somewhere here the mention if a rocking boat jumped out at me. In addition to Pinelady's suggestion of the vitamin D connection, Inner ear symptoms are frequent with lyme and coinfections.
The rocking boat can also be mal de embarquement syndrome - when the inner ear thinks it's on a boat. Again, frequent with lyme.
Glad you have a LL doctor and one who is holistic. I really can't read much right now as I am constantly dizzy. But you might also ask your doctor about Pinellia for vertigo/nausea.
GINGER capsules may be very helpful as they are stronger than ginger tea. There is much more below - but more for your reference file if you need more information about the ears and what else can help. While symptom relief is nice, be sure you are adequately addressing infections and good liver support as that is vital for the ears, too. More in links to follow. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- All about EARS: ------------------
For those who are sensitive or pained by even normal or soft sounds (sounds not even at noise level):
posted
Thank you for all the replies and information. Not sure what to test for next. Baffling and frustrating.God bless you all with patience and healing.Amen and Amen.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
You can also do a lot to prevent yeasts now. If you
feel like you are getting worse I would not wait on
starting antibiotic protocols. I got a lot worse
when I replaced D without antibiotics. But it was
at prescription loaded dosage. So just keep your
head up and be aware it may or may not get worse. Prayers for the best.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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