posted
This is my story , I wrote this so that people realize that the Flouroquinilone ABX's are much more dangerous than simply tendon damage and urge people to visit the site and forums of the people that have been injured. www.fqresearch.org And I write this to share with you all where I am coming from.
August 07 thru June 08 We had experienced huge increase in stress due to problems with working with health insurance and selling of our home out in the country. Physically I seemed to be OK without noticing any real significant symptoms. June 08 I started having bloating and distension of abdomen especially after eating, intermittent diarrhea and constipation. The bloating did not normalize much between meals. July 08 - 20 , 2008 My gut problem continues and I started noticing discomfort in right testicle, a swollen sensation. Mild pain July 21, 2008 -Monday evening Being a chiropractor my job is somewhat physical but, I felt unusually fatigued after work and had a weird cool weak sensation, tingling in both forearms into my hands. July 22, 2008 I woke with the same fatigue/weakness and weird sensations in my arms, went to urgent care, emergency M.D did rectal exam.....exam was painful from what I now know is a hemorrhoid , but he said he thought it was prostititus. He prescribed Cipro 500mg 2x/day for seven days, he did not do a urine culture. July 23-28 08 (went to visit Mom and Dad on vacation) While on the Cipro I began having weird symptoms, neck pain headache, violent nightmares, almost passing out from weakness, abdomen began to become painful especially left upper quad, diarrhea, low grade fever. Called MD said to discontinue Cipro and go to hospital I may be having an adverse reaction to Cipro.
July 29-31 08 I was admitted to the hospital in Maine with significant abdomen pain. CAT scan showed abdomen inflammation , said I had Diverticulitis, was put on Flagyl and another antibiotic I.V. , and a liquid diet, pain subsided in two days, I had extreme diarrhea and lost 10 lbs. the pain in my guts became minimal and I was feeling better until I tried solid food. After eating the food I became very weak and had difficulty walking. It was the end of our vacation and even though I wasn't well we needed to get home to take care of our office so I asked to be discharged so we could get back home. I was discharged with oral Avelox (anther Quinilone) and Flagyl rx and was told to see a gastroenterologist. July 31-Aug 3 2008 The night I took the Avelox (anther Quinilone)for the first time... within an hour, I became extremely anxious and didn't sleep much. The next day I woke having extreme fatigue, nausea, depression, anxiety, leg/arm muscle weakness, confusion, can't eat food. We called the attending Doctor at the hospital and was told to stay on a liquid diet continue meds and get to a Gastroenterologist as soon as possible. We traveled back to New York and stayed in Vermont felt the same second travel day. My wife had to drive the whole way. Aug 4 2008--- Monday I got in to see a Colo-rectal Surgeon at the Hospital. Took a brief history with no exam . Said I felt bad because I was getting over diverticulitis, I didn't agree, he told me to discontinue meds and make an appointment in 2 months for a Colonoscopy. How could I have gone from 95% health to 10% in a matter of days.
Aug 6, 2008 Wednesday ``CRASH'' Woke with extreme fatigue, slurred speech, could barely open my eyes, muscles all weak, could barely move around, as if I was having a Diabetic shock, I called them ``crashes''. Wife took me back to emergency at Community General , another CAT scan revealed no inflammation this time, did blood tests, x-rays, all tests negative. Surgeon admitted me and put me back on Cipro I.V. for 2 days, then released me on Aug 9 for lack of ``medical necessity''.Still very weak and sick and food /drink seemed to make me worse.
Aug 9 thru Mid September 08 ...Multiple symptoms Appeared After leaving the hospital for the second time.We shut down our Chiropractic office due to my inexplicable illness, and was still was experiencing major ``crashes'' everyday for 2-6 hrs/day, always worse in the A.M., and then gradually getting a little better by the evening. I began researching the Fluoroquinilone Antibiotics and found that thousands of people have had similar adverse reactions so much so that websites where created to help people and educate them of the dangers. Some of these people were Medical Doctors who helped create the websites. I started an all organic diet and vitamins per a lay person that I met, who had suffered from ``QUINOLONE TOXICITY SYNDROME''. After about 1-2 weeks on this diet I stopped crashing so bad. However for the next 4-6 months I experienced intermittent daily weird symptoms of : intermittent daily nausea, muscle weakness and deterioration, numbness & tingling in arms mostly but sometimes into legs, muscle twitching and jerking, metal taste in my mouth, sour/foul armpit perspiration, muscle cramping and pain including diaphragm , twitching/fluttering under ribs especially around heart and bladder, frequent urination, tremors, brain fog, extreme fatigue that would come in waves and last 20 minutes to a couple of hours, concentration and decision making problems. I continued to lose weight, a total of 27 lbs now since July. Noticed muscle wasting especially in legs and back, neck cracking and popping, and back pain. Muscles would burn with little exertion, facial twitching, tension under ribs and low grade burning sensation after meals in my guts ( like someone rubbed Ben Gay on my insides), always seem to be more comfortable standing. I also became very intolerant to chemicals of any kind. I truly felt like I had been poisoned. I couldn't leave our apartment for months because I felt so sick. I saw numerous M.D.'s and was tested for M.S., ALS, I had blood tests, EEG's and MRI's and all results said that I was the picture of perfect health. My internist told me that I should see a Psychiatrist next, he thought that it was all in my head. THEY ALL DISMISSED THE POSSIBILTY THAT I COULD HAVE HAD AN ADVERSE REACTION TO FLUOROQUINILONE ANTIBIOTICS. The above symptoms continued to become somewhat less intense as time went by. I went back to work in the office in mid September and tried to resume our previous work schedule, but we soon realized that I was not able to keep up physically /mentally and in October we took our office hours down to half time with everyday being a major struggle. My level of wellness was on average was 10-30% or less for the months following until now. We decided we needed to close our practice and transitioned it to another Chiropractor in May 2009. I saw Dr. S.B. ( Lyme literate doctor) October 23-Dec 15, but stopped due to expense, no improvement, and not convinced that I had Lyme disease. I continued to believe I was so sick due to my bad reaction to the original possibility of Toxicity from the Quinolone antibiotics. I was told by multiple lay people that had similar experiences that the toxicity had many of the same symptoms of Lyme, MS, ALS, and other autoimmune diseases. So, since then I worked with a Nutritionist/Sales Rep from Metagenics, who was also a Biochemist. Her approach was based on addressing the damage the antibiotics may have caused to my guts treating the ``increased permeability'' or ``leaky gut syndrome'' possibility, by recommending supplements and homeopathy. I had also been receiving 2000mg of Glutathione I.V. every 2 wks, which has helped some people with their adverse reactions to the Quinolone Antibiotics. I have experienced some improvement in digesting and the extreme spells of weakness but remain pretty sick more so in AM. Also during all this time and different doctors I have been tested for Lyme 3-4 times through blood work and have done 30 PCR urine testes over a 15 week period back in Feb-April. All other blood work has remained normal except I was told by the Integrative MD/Dentist that my cholesterol was too low contributing to, if not causing, the depression. I had all of my mercury/silver fillings removed in May 2009 after hearing about people experiencing similar symptoms from Mercury Toxicity. I have also read that treatment for Lyme disease is more effective without mercury in your mouth, so having them removed made sense to me in case this is truly Lyme. I did notice some improvement in my symptoms for a couple of weeks after the fillings were removed, but then relapsed after about 3-4 weeks. During this recent period of feeling better after the removal, I was experiencing some days of 50-60% wellness, but now back to 30-40%. I do not handle stress well at all now, and often experience more weakness after conflict. The dentist had me taking 50mg DSMA every other day to slowly chelate the mercury. Presently I have discontinued all supplements/chelators to see how I feel. I am still taking Magnesium (keeps me regular) Vit D 1000-2000/day, and Flax seed oil. Many people that have been toxified by the FQ Antibiotics react to most chemicals and even supplements so I thought I would discontinue all to see how I felt. I haven't realized any change from doing this.....I may be a little weaker. I am very scared about trying antibiotics again considering my history with the Fluoroquinilone antibiotics and the possibility that this truly is from this family of antibiotics. People that have this condition have gone into long term relapses with other medications especially antibiotics. Dec 09 thru Feb 2010 Diagnosed with Lyme WB band 41++, 31, 34, 39 IND and + Erlichia Dec2009. Also Diagnosed Hemochromatosis Iron Loading Disease By LLMD Western , Pa Took one Doxy 100mg and an hour later became extremely sick and lasted 4 days, discontinued assuming adverse reaction and not a herx (too quick) Reaction is typical of Fluoroquinilone Toxicity ``Floxed'' person. I have purchased an EMEM5 and will have Axis to A Doug Coil machine. I have experienced pretty intense Herx three days after using Rife. This has happened 3 times in the past 4 weeks. I am planning on trying also the Salt/VitC protocol along with detoxing. I am assuming since I herxed I do have Lyme and may pulse using only Natural antimicrobials a I get further into this. I have heard from many of you who have given me hope when I beginning to believe I would die from this. I now look forward to getting well and my faith is returning.
Summary: Present State Of Health as of Feb 2010 Presently, My wife and I are unemployed living in my mother-in-law's home. My mental state is poor since I have always been very active and enjoyed country living and now live in an ugly city with no real function other than trying to get well which has been torture. My present condition is better than I was twelve months ago, but I still experience significant fatigue every day, always worse the first half of the day, lack of mental and physical endurance, digestion is better but far from normal I still don't have consistent bowel movements with intermittent constipation and diarrhea. I still have muscle twitching and some jerking but not as intense, and mostly in the evening. I can tolerate exercise somewhat and exertion but usually pay for it. I typically only feel about 30-50% of what I was a little over two years ago. I have occasional fluttering under my ribs especially near my heart, my bladder seems somewhat normal now. My skin still feels like it is ``crawling'' at night off/on. I am always very weak in the a.m. and usually improve thru the day. I have tremors in my arms, more so in my right arm. My arms often feel swollen and stiff, but don't look swollen, and I still have some tingling in my forearms, hands. My neck is stiff and crunchy and often sore on a daily basis. I do have moderate to severe disc degeneration C5-T1 that has gotten much worse since this started. My right shoulder became very crunchy and often sore which has been more pronounced since this all started, as has my left knee (surgery 1988 for cartilage damage). I wake with extreme anxiety most mornings and if my gut discomfort and overall weakness is present in the a.m., then my symptoms usually spiral into depression mostly in AM to late afternoon/evening. The depression usually, but not always, reduces as the day progresses. My facial twitching is slight and mostly at night lately, I cannot tolerate alcohol o r caffeine, and my coordination although much better than it was is still not what it used to be. Sleep is light and doesn't seem to refresh me, and my collection of symptoms are always worse in the first half of the day. Since this started I have been sick every day and have not had one good day in over twenty-two months. I do have days you might consider fair. I have always been extremely healthy and have been able to work and play with intensity that would tire most 20 year olds, until this all started over a year ago. I am now 52 years old and in a matter of one week I went from feeling in my mid thirties to mid nineties and this has been going on for 22 months. I am not looking for sympathy, I just wanted to share my story in hopes of helping others and letting you know where I am coming from when I post or answer threads. I have much to learn and I hope to share my journey. I pray for all of you and ask we all be blessed as we find our ways back to health. Sincerely, Dr.Dave
Posts: 41 | From Pa | Registered: Jan 2010
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However, I am still of the opinion that the antibiotic is not your problem.
And yes, you can herx or whatever you want to call it after one dose of an antibiotic. Hubby used to react to every single dose of every antibiotic with increased seizure-like activity and nausea/dry heaves. This continued for the first 4 years or so of treatment. Didn't matter if the antibiotic was IV or oral.
Whatever the antibiotic was if I looked up the half life and/or time to peak dose that is when he would have his reaction. Sometimes I didn't research the meds until he had been on them for a week or two so it could not have been a placebo or programmed response.
Eventually after he healed his G.I. and after we think he got rid of the babesia he has been able to tolerate multiple meds for the first time. And he only reacts for the most part to changes in meds or increasing doses.
He also used to react to herbs as well -- the killing ones. He was so dizzy after just one resveratrol (Japanese knotweed source) that I waited a week to retry that herb. Now he can take 6 or 12 a day with no problems.
When hubby first got sick the only thing that could be diagnosed was chronic gastritis. The doc's camera was not working so we don't have pictures. But the report said that his stomach was uniformly inflamed from top to bottom -- the G.I. doc could not explain it. Very unuusual to have that type of gastritis rather than just splotchy patches of inflammation. Hubby initially lost 30 pounds in 4 or 6 months. I think this was due to a bartonella infection.
Your symptoms sound like classic bart and Lyme to me.
If you can afford it then I would suggest a bloodslide from either the F lab or Clongen or wait for the new Galaxy Lab to open in a few months.
You need to remember that the doxy would treat both ehrlichia and lyme. And if you have it, it would also help some with bart. And that is why I think that med made you so sick.
As to the fluroquinolones -- if you have bart or mycoplasma then again I would say that is what got stirred up with those meds. Hubby could not tolerate IV cipro -- was tried in a hospital once. But oral Levaquin was a miracle drug for him. Greatly helped heal his G.I. But we started with 250 mg once per day for 2 months before increasing the med to 500 mg.
And with Rifampin he started at 50 mg and took 8 months or so to get to the full 600 mg.
I personally don't have a lot of confidence in Rife as a treatment but hubby has not tried it.
In your situation I would approach things either one of two ways -- find the best Chinese herbalist you can find or try the Buhner herbal protocol on your own or under a Western herbalist. Once you stabilize then you can move on to antibiotics. I personally do not think herbs alone are enough -- especially when dealing with multiple infections.
Not really sure how serious your ehrlichia infection is as to whether that needs more aggressive treatment first. Supposedly that is one of the easier infections to treat.
Hubby is now 54 and has been on disability for 8 years. He was not diagnosed and had no treatment other than for G.I. parasites for the first 2 1/2 years. So I can definitely relate to where you are coming from. I do think you can recover, but think it could take a couple of years or more.
We have had to stop treatment at different points for financial reasons etc and to be honest, we didn't know until the last couple of years that the bartonella or BLO or mycoplasma was the key to hubby's worst symptoms. There is so much more new info and new drugs and new herbs available than there was even 5 years ago. But it becomes even more important to find a doc who knows these infections.
I think nutrition is about 50% of the battle as well. Sometimes it requires a 2nd doc who is into alternative things to help with adrenal funtion or liver detox.
Best wishes.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Typical herx. My god, everyone herxes on many antibiotics here. I could say the same about my experience with Doxy, Flagyl or any other antibiotic. I suffered extreme herxing where I thought I was dying from just 200mgs of Doxy daily. BUT I stuck it out and recovered most of my function within 2 yrs.
Lyme recovery is not easy. The antibiotics cause an intense cytokine storm and you need to take moppers to get them out of you (i.e. cholestrymine, charcoal etc). Do this and you will have a much easier ride.
Be well.
Posts: 770 | From USA | Registered: Jul 2006
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Wow, I'm sorry to hear what you went through. How long were you on the quine type drug?
Your scaring the (%(@^(^!$#$! out of me because I am suppose to start Levaquin.
This is a long journey. That which doesn't kill us only makes us stronger.
Posts: 2232 | From USA | Registered: Aug 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Bea,
I tried sending you a PM but your box is full. Maybe I'll ask a few questions here.
Hi Bea,
You seem so knowledgeable. How did you come to the conclusion that your Hubbies main problem is Bart? I have seen one LLMD that seems to think this may be my main problem. I have Levaquin but I am so afraid to take it. I know that my one doctor will tell me not to take it. I tried Rifampin for 2 weeks and almost ended up in ER due to extremely elevated BP and chest pain. Otherwise I have not really treated Bart. Do you have any other suggestions other than the Levaquin?
What types of improvements has your hubby had with the Bart drugs? Most of my stuff is brain related. I can't think straight.
Which supplements do you think help most?
Sorry about all of the questions.
Posts: 2232 | From USA | Registered: Aug 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
DocDave,
Thanks for sharing your story! I am on Levaquin now and have experienced many of your symptoms...
and ironically, my symptoms are worse in the a.m. but as the day goes on they become more tolerable.....
I am sticking with the Levaquin. Like Bea, I believe that it is hitting my Bartonella, BLO or whatever you'd like to call it. If I stopped now, i will have gained nothing.
The sx that you list are all sx of a TBI...now, should my tendons start snapping, I'm outta here.
I think that if you had undiagnosed TBI's starting an antibiotic...any antibiotic could cause your symptoms.
As an aside, a course of Flagyl for an unrelated condition started my awful headaches and other sx to go crazy...was dx'ed with Lyme a few months later.....
So yeah, a short and insufficient course of abx COULD be the cause of your symptoms and not having been 'floxed'.
that said, you know your body best! And listen to your doctor, who is hopefully a LLMD!
Best to you, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I previously said I thought I was "floxed" on Cipro. I changed my opinion only recently.
After trying numerous things that target bartonella, I would end up with the same symptoms or worse. First I tried Cipro. I was on it 1.5 months but went off it because I could not tolerate my G.I. symptoms and I thought the Cipro was frying my brain as I felt cognitively altered. The first several weeks I had probably 2 to 3 panic attacks a day where my hands would go freezing cold and I thought I was going to die.
After starting Rifampin I ended up in the hospital. I had anxiety (crawling out of my skin), irratibility, psychotic like behavior, and hypothermia. The previous night was bad, but I woke up feeling toxified and like I was on another planet. Once again, I blamed it on the drug. I thought convinced I was either allergic, or had a porphyric reaction to the drug.
It wasn't until I started an herb called HH, started developing fevers, and had skin manifestations of bartonella. Guess what? I am now having THE SAME reactions to this herb as to Rifampin and Cipro. I've recently been to the E.R., and I was on a total of 8 mg of sedatives for the anxiety/panic. I tried to drive myself to the E.R. but had to pull to the side of the road and have a stranger take me because my mind was in no mode to safely operate a motor vehicle and the SVTs I was experiencing was beating through my throat. I had a 4 mg push of Ativan through my arm. I was told by the nurse get ready because I would probably fall asleep, and after all this I wasn't close to sleeping. My brain calmed within a couple hours, but my heart rate stayed well above 100 bpm. Averaging between 110-120. I asked for medication for the chest pain and G.I. pain, but they either gave me something ineffective or they infused me with saline fluid thinking I was a pain med addict. The doc said my heart was fine, but I needed to follow-up with my cardiologist again. I am on a beta blocker now. I chose to go off of them before since I am 23 years old and I saw it as old people's medication.
I had some serious panic attacks after becoming ill, but they usually stopped with 1-2 mg of sedatives. Treatment makes my life living hell, and I'm trying to figure out how to navigate through this hell to get better.
I am CDC+ for Lyme disease, but this bartonella is the bigger beast it seems.
By the way, as much as I would like to blame it on Cipro and Rifampin, doxy was actually the first med to knock me off my feet from the Bartonella. It has anti-bart effects. Though in my case, it took 4 days or so. I don't think it's unreasonable by any means to have a response to doxy from the first dose.
Don't get me wrong, this comes with a tremendous amount of pain as well, but the brain herxes is what feels like is going to kill me.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
Myco I resent that you call a reaction to a drug a 22 month herx. And when i took the Doxy one pill wouldn't have enough time to kill that many bugs in one hour to make me sick for three days.
I do know a little about the human body having more hours studying it than MD's. I'm not saying everone will get floxed from these drugs, but it's an awful chance to take now that you've been informed. I am not anti-drug, I have taken ABXs in the past with no problem and our dog is on Doxy right now for lyme.
I'm not looking for advice, I know what I must do and knowing what I know I must warn people based on my experience and those that have been injured.
Put your money where your mouth is, if you don't beleive me then visit the website and connect with some of the forums and talk to the hundreds that have lost livelyhoods and loved ones to these reactions. I guess they all have Lyme are are in a longterm continous HERX.
I have personally spoken to two people that now have permanent brain damage and are now on disability. One was a Pharma sales rep the other was a comp. programmer for a fortune 500 now both are invalids living with their parents.
Most of the people on these other forums aren't lucky enough to have measurable damage and if not working are unable to obtain disability.
Those of you that want to play russian rulet with your bodies have at it. I just believe before you pop a pill you should have all the information not just what the DR's think they know about a drug.
I am sorry, but I am very compassionate about this and have talked to many people whose lives have been screwed up by these drugs and no one can do anything to change it.
People with lyme are allready dealing with enough. Educate your doctor by sending them to the sight www.fqresearch.org .
I know the difference b/t a ADR and a herx and I am just posting this to warn others of the possible damage.
Dr.Dave DC
Posts: 41 | From Pa | Registered: Jan 2010
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posted
I will agree with you the Quinolones can be very toxic.
However, after reading all your posts, I do not necessarily think you were floxed.
If it a bacteria such as bartonella, you weren't herxing for 22 months. However, the nasty bacteria may have been wrecking havoc for 22 months. Believe me, after they get disturbed, they get mad. They release endotoxins when they die, and in my case, I think they took areas around my brain, heart, and GI for safety. So yes, I felt worse, even after the herxing stops.
I am not defending quinolones by any means. I have made posts about my concerns about their toxicity as well.
I have just come to a realization that in my case, quinolones probably had little to do with my situation. Try a drug that doesn't target bartonella and see if you get the same effects. Doxy is active against bartonella, and I have much trouble tolerating it as well. Then try any drug or herb that touches bartonella and see how you feel. If you are not floxed, I would imagine you would have trouble on Rifampin as well. That is not a quinolone, and in my opinion, is safer. It is hard on the liver, but as long as your enzymes are checked, it shouldn't be a problem.
Maybe you were floxed, and if you are, I hope you recover.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
Kday I have been following some lyme and quinolone toxicity cases for more than 10 years now. Although things in your case are probably how you believe they are, because you are the one that knows all your history and symptoms best, one fact shows how elusive and uncertain are all aspects concerning our ailments.
According to the extremely detailed research avalaible, your case could also fit as a floxing. Many many people when get floxed have the ongoing symptoms for years after cessation of the quinolone treatment. If you were floxed the (anxiety, panic attacks, irratibility, psychotic like behavior, hypothermia and all sort of neuropathies would last for months or years, with some cycling in between (slow recovery followed by violent relapses). Thereafore, if by a chance your case was one of quinolone toxicity, the symptoms of being floxed would be present irrespectively of what one does to tackle them, because they are intractable symptoms. The main mistake concerning quinolones toxicity is consider that the symptoms one has many months or some years after a floxing are due to anything else, and can be, but unfortunately they do not usually are.
Posts: 94 | From canada | Registered: Nov 2006
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quote:Originally posted by lymeflox: Kday I have been following some lyme and quinolone toxicity cases for more than 10 years now. Although things in your case are probably how you believe they are, because you are the one that knows all your history and symptoms best, one fact shows how elusive and uncertain are all aspects concerning our ailments.
According to the extremely detailed research avalaible, your case could also fit as a floxing. Many many people when get floxed have the ongoing symptoms for years after cessation of the quinolone treatment. If you were floxed the (anxiety, panic attacks, irratibility, psychotic like behavior, hypothermia and all sort of neuropathies would last for months or years, with some cycling in between (slow recovery followed by violent relapses). Thereafore, if by a chance your case was one of quinolone toxicity, the symptoms of being floxed would be present irrespectively of what one does to tackle them, because they are intractable symptoms. The main mistake concerning quinolones toxicity is consider that the symptoms one has many months or some years after a floxing are due to anything else, and can be, but unfortunately they do not usually are.
Maybe so. Then I guess I would have bartonella and be floxed.
But then again, looking back at my history, my anxiety and panic hit me hard after doxycycline alone, and it lasted weeks. As far as I know, you can't be floxed on doxy.
The cognitive impairment may have been do to Cipro. I guess I can't know for sure, but that symptom slowly improved.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
Thanks for everyones input I truly appreciate you all.
I believe I did get floxed and maybe I herxed also and opened a can of worms at the same time.
I do get a big increase in symptoms 2-4 days after rifing that has put me in bed the last 3 times. So unless rife frequencies cause reaction to floxing then I would say I have Lyme. BTW my wife does not react to the machine assuming she doesn't have lyme.
I posted this info in hopes that others take head and do not have to deal with both floxing and Lyme as I have.
There must be other ABX's that don't have a documented track record as these do that are safer to use.
I know for me that I will be ABX free thru this healing process unless nothing else works.
Blessings Dr.Dave
Posts: 41 | From Pa | Registered: Jan 2010
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posted
Would it help to try any good essential oils? Some can be taken internally and some can not. It is just an idea.
Posts: 140 | From Illinois | Registered: Jul 2009
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posted
Sorry if you mentioned this already, but did you test positive for Bartonella? And if not, did you retest after you took the quinolone?
As others have mentioned, many of your symptoms could be due to active bartonella. And side effects from meds is a possibility too. It may be both. You wouldn't have a 22 month herx from past meds, but you certainly could have active lyme/ehrlicia/bart, etc. causing symptoms the whole time.
You could try ceftin or omnicef, which mostly just hits Lyme and see how you react, if you want to try something that won't attack Bartonella.
Determining if your symptoms are side effects or from tick illness symptoms can be really difficult. When I took Bactrim for 6 days, I really felt like I was dying and it was due to side effects from med. And it probably was to a certain extent -- but the majority of my symptoms also matched Lyme/Bart/Babesia too.
And it wasn't until I took higher doses of Doxy that my Bartonella symptoms started. I think the Doxy just got Bart mad, and for months afterwards (and even now) I have sore heels/shins. But that is a disease symptom, not a drug side effect.
Posts: 584 | From NY | Registered: Feb 2009
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