posted
Went to LLMD on the 12. He wants me to see a rheumatoid for my Joints.
Also, he want me to see a Nuro, can you have Parkinson and Lyme at the same time? My LLMD say's it possible....OK I'm confused now!! I though it was Lyme induced?
What do you guys think?
Posts: 200 | From Nevada | Registered: Dec 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
No the Parkinson's thing is theory here as many other guesses. A lot of reference back to the Alan MacDonald study of a whole 10 brains. I'm not saying it's not a link. I"m just saying on Lymenet, everything is Lyme almost. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I appreciate when LLMD's don't always attribute everything to lyme. I think it is absolutely appropriate for him/her to refer you to other specialists in some cases. Whose to say something else isn't going on OR that in some cases, some of us may not be dealing with Lyme disease at all but something else.
Obviously I'm not familiar with you specific case so I can only make a general opinion.
Parkinson-like symptoms can somtimes truly be lyme but it is unlikely that everyone who has Parkinsons, has lyme. Unfortunately we just don't know what causes Parkinsons.
Unless you are paying out of pocket to meet with these doctors, I don't see the harm in ruling out (or in) other possible factors/issues.
Posts: 561 | From mass | Registered: Jul 2007
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My former LLMD sent me to a Neurologist and it turned out I had another very serious condition that had nothing to do with lyme.
In that case I was very happy for the referal.
If your LLMD is concerned about Parkinsons unrelated to Lyme then I would most certainly want to see a NL for that. TG
Posts: 376 | From New Jersey | Registered: Jun 2009
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posted
I would be wary of going unless the specialists were Lyme literate, knowing I do have Lyme.
Are there Lyme literate neurologists and rheumatologists?
Because if not, how can they separate what part is Lyme from what is not, if they don't know about Lyme or they don't believe you have it?
That is why it might or might not be helpful.
It is certainly possible for you to have more than one illness at a time--Lyme doesn't protect you from any, and makes you more likely to get certain ones.
But on the other hand, if you know you have Lyme, it is also possible that every symptom really does come from that.
If we don't have the choice of going to Lyme literate specialists, then I guess we have to make do with what's available.
You could get the specialists' opinions, and then discuss the results with your LLMD.
LLMDs are not specialists in everything--probably why yours wants to send you to specialists--but they know something about all the different symptoms that Lyme can cause.
I did have a couple of relatives who had Parkinson's, and as far as I remember, did not have any other symptoms that sounded like Lyme, so probably Lyme is not the only thing that can cause it.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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posted
I went to a Nuro a couple of years ago and he didn't understand why I was having symptoms that where not PD. And he didn't bother to find out why.
On my IGx results, he said if you delute something enough you will get the results you want...Ugh
Posts: 200 | From Nevada | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sounds like my doc when I told him I was super pos on 31 band and 83-93 band. He said well, I don't
know what that is but you are neg....It may be to your advantage though to see how much damage he
thinks you have vs what can be cured..In the long.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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