Topic: Is it possible to have these Igenex results and it NOT be Lyme?
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I'm asking because I always hear that docs won't treat on a blood test alone. But let's so you have these results- Can it be anything else? (this is hypothetical, these are my result and I do have symptoms but just curious if it is possible to be something else)
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
i would say for sure yes (im no dr by the way)
you will have the antibody bands for life so there is no current way to tell, at least with a western blot, if the infection is past or present.
hypotheticly you could of at one time had lyme, beat it off and now something else is causeing you problems though you still have the antiboties for lyme.
for example people who have at one time had mono will have those antibodies for life, doesnt mean they have a current infection of mono.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You got a CDC positive for IgM (which an IDSA doctor would challenge but Dr. C explains is very relevant for chronic active lyme). So, yes, it sure appears that you have your work cut out for you. And, congratulations for having a clearer picture now so that the work can begin.
I'm no expert on what the specific numbers mean but I would say with your symptoms (which you obviously have or you'd not even have done the test) and the test results - that you should be working with a very good LLMD.
Are you all set up with one now? You may now need to get tested now for coinfections.
So that you can read for yourself, Western Blot bands are discussed here: -------------------
Dr C's Western Blot explanation -
Posts: 48021 | From Tree House | Registered: Jul 2007
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Thanks Keebler-
Yes I am seeing Dr. M in NYC and I am on day 6 of treatment with Amoxicillin 3,000 mg a day
Have followup in a few weeks.
I don't feel any different since starting treatment.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'd say yep too. 39 plus and 41 plus is a sure sign, at least that's what i've been told.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
im sorry i must have misunderstood the ?. i thought you were asking if its possible to have sympotoms of lyme with positive WB. if thats the ? then the answer has to be yes, its possible.
if your asking if thats likely i would or you should persue other posibilities i would say for sure not. you have symptoms plus this WB treat the lyme.
i didnt notice much improvemen trom my treatment either. if there has been much improvement its been VERRRRYYYY gradual.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- St.O.
I am so sorry to be the one to break the news to you but you will not likely see substantial improvement for some time. You may get a sense that you are on the right track but this will be a process.
If you take good excellent care of yourself and have good liver support, you may be able to tolerate the protocol very well.
Good luck to you, indeed. Feel healing happen. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Even if you are convinced you have lyme, you could also have other tick borne pathogens, and other reactivated pathogens (like EBV, HHV-6, Cpn, enteroviruses).
I had a WB very similar to yours from Igenex. Some would say I have lyme. Some would say no. But I have lots of doctors convinced that EBV, HHV-6, Cpn and enteroviruses are a problem for me.
Get tested for lots of things. Treat all that look wrong, starting with what looks most obviously wrong.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
That's a pretty positive test result. Can't look at that and not see the writing on the wall.
Sure you could have several other infections, bacterial, viruses and protozoa going on. Gingivitis isn't going to reflect all those bands.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
not everything is always Lyme. SOme folks have Lyme blinders on.
It is ALWAYS good to rule out other ilnesses!
But your test is suggestive of lyme for sure (not a doc)
Posts: 3905 | From USA | Registered: May 2007
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quote:Originally posted by BackinStOlaf: I don't feel any different since starting treatment. [/QB]
I never felt any better or worse on amoxy. For me, it was like drinking water.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Lyme is a clinical diagnosis! The test are used to back up that clinical diagnosis.
Some ppl do not herx, some herx immediately, some herx in 2 weeks to 4 weeks. Unfortunately there is no standard for herxing.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
BackinStOlaf, Dr. B mentions using probenecid when using Amoxy to keep concentrations up. Perhaps you could try this as well...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
You have Lyme specific bands...
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I had an IgM similar to yours, and I am pretty convinced I have Lyme. Also tested positive for babesia duncani and bartonella henselae through non-specialty labs.
Then, when I got the Stony Brook testing done, it showed all the same bands on the IgM that Igenex had shown, PLUS band 23, which was negative on my Ignenex.
I thought it was strange that I had so many of the Lyme-specific bands (including 39) on Igenex, but not 23, so when I saw the Stony Brook, that cleared it up for me...SB came back with 18, 23, 39, 41, 66. I showed 93 on Igenex (not sure if SB tests that one, and don't think they test 31 or 34).
I also had IND's on my IgM where there weren't +'s, and many IND's on my IgG. But anyways, I think yours is probably positive....I had more faith in Igenex once Stony Brook came back with a similar result.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I was so used to being critical of all the test results and doctors opinions that when i got a CDC positive for Lyme, I was still like, "hmm... maybe not" Being critical is exactly what got me so far. It got me diagnosed when everyone told me it was impossible i had Lyme. But there comes a time when you have to accept a diagnosis and a treatment if you are going to get better. It looks like you have Lyme, and I would get ready for a LOOOONG treatment. Don't expect a rapid recovery, but you will get better, and there are lots of people ready to support you.
Posts: 19 | From Oakland, CA | Registered: Feb 2010
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