posted
the dr at igenex ask me for my sample number, you will not get him at first, i get a lady then she give me his voicemail, i call the number on his voicemail, i got through to him and we spoke,
he looked at my lab work through the sample number that i gave him, he said that my lab work is 70% NOT LYME, the 30% should be follow up with DNA/whole BLOODWORK serum.
he also stated that the dr that i am seeing is a well known knowledgeable llmd dr....im seeing the PA thou.
its me, its me, its me oh lord standing in the need of prayer.
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- 70 % of the way to your answer - may be what he meant (as I'm familiar with his use of that phrase) - getting closer but, still, it's just a test and they cannot diagnose any patient.
No one here - or at the lab - can tell you for sure.
This will take a while to figure out. If your PA works with that LLMD, yes, your PA is also excellent or he'd not be there.
I know this is very hard for you but your LL PA is the best person to talk with. You've not even spoken with him yet about his interpretation of the tests, combined with his clinical evaluation.
Your LL PA has to be the one to talk to you about how it all fits - or doesn't. No one else can tell you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
well keebler i needed this, thanks..my llmd is the only one that can and would say what we will be doing next....
i thank you for your thoughts and good wisdom..
he has me on drops,the new one that i started taking monday when i was in the office is call TEASEL ROOT... 20 drops in the mornig...20 drops at night... something is making me sick like a dog, i am using humaworn too.. i have 4 days
left of the humaworn...do you know any thing about the teasel root...should i discontinue using them till i talk with dr. i would love to hear your opionion..thanks keebler
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Did your doctor know you are using humaworm when he gave you you the other supplements?
We can't tell you what do, exactly. You need to get that from your doctor. However, generally, if something is just too much, it's helpful to back off a bit and talk with your doctor about how to better manage symptoms and how to handle that sort of thing in the future.
Never start someone else unless your doctor has reviewed it with you. Also, I hate to be the one to mention this but with any chronic infections, it can take a long time to feel better so it's best not to expect a miracle. But each day, we get a day closer.
Also be sure all elements of your self-care are in place. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
no, the dr didnt know about the humaworn....this board intruduce me to humaworm before i saw the llmd... and i didnt mention it to him, even thou i saw him. it wasnt on my mine.
the center also treat patients with cancer, chronic fatigue symdrome, lyme, etc..
keebler if you want to check out the place i can give you a link to the place... let me know and ill send you the link...
im not given up, if i dont have lyme, i have something because i have alot of symtoms that the dr already saw, and took notes of.
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It is very important to follow your doctor's instructions.
If you want to add anything, talk FIRST with your doctor. This is very important. Hold on to the humaworm, take in a label for your next appointment for him to review but it's not good (and could be harmful) to just toss that into what your doctor already has given you. It would be too much for your body to process all at once.
The two things your doctor gave you have value at this time. (I've taken both - SpiroNIL and Biotox Elim - so I know they are good.) That's probably all your body can do right now - in addition to any nutritional supplements (vitamins, etc.) and diet suggested by your doctor. Remember to drink plenty of good water. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
street, you are not a very patient person are you? You may find it's much better for your sick body right now if you didn't hit the panic button.
Calm down. Don't going throwing the kitchen sick at yourself right now. Be patient and do one step at a time.
There are many people trying to calm your fears by telling you to follow the LLMD lead. You are in line as a patient. Yes, lyme patients are very needy people. Lots of problems.
The doc will get with you ASAP. Calm and patience. Practice street.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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WildCondor
Unregistered
posted
Please listen to Map! Calm down and stop making unnecessary phone calls until you actually have a follow up with your LLMD. You have the best care, you should know that by now and be grateful for it. Indeed there is a long line of people waiting for care...so try to not panic here.
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Can you tell me what brand, company etc that you got the Teasel Root from.....is it an anti-microbial.
Can you reply private message as well so I don't forget were this was. Please and Thank you.
Dr.Dave
Posts: 41 | From Pa | Registered: Jan 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I think you are on the right track. The IND's would
be enough for me to seek treatment knowing the immune system may be shut down and not making
enough antibodies. If you did not challenge, I suspect you are like I was. I drank homemade
antibiotic for 3 mths. to get my pos. If you are sick, I would say it is Lyme.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Street... actually is is OPTIMAL to go to the bathroom at least 3 times a day. The humaworm is doing it's work. A healthy person would "go" 3 times a day. Meal in... meal out pretty much.
I agree that you need to try to be calm and patient. You do have great care, even with the PA.
Sounds to me like you are having a herx reaction to the teasel and I wouldn't stop it if i were you but you need to let your LLMD know from now on what exactly you are taking.
I find it helpful to write a list of what I'm taking, what my symptoms are, what has gotten worse and what has gotten better with dates... and I take it with me to my LLMD so I won't forget anything. It makes it easier on both you and your doctor and that way you won't forget to mention anything.
I just write everything down and hand it to my LLMD who then goes over it with me then puts my notes in my chart. I suggest you start doing the same
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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