momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
I have a copy of my blood tests ordered and noticed I'm being for tested for it.
I did a search on here and see it mentioned many times and I googled it but still cannot figure out what it is.....
Posts: 1408 | From Tx | Registered: Nov 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Timaca has posted on this, I know. I'll look for some stuff of hers in my computer file and return. -
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- HHV-6 is a virus, a kind of herpes. Many with lyme and "CFS" are found to also have this. It may be that it's dormant but when lyme adds to the stress in our bodies, dormant infections also can wake up, so to speak. It's good that your doctor is a step ahead with this as it's extremely helpful to know if this is a player.
There are many of these kinds of "stealth" infections that are important to consider. Stealth means, hidden, hard to detect and very devious in how they work.
For further education on HHV-6, this may be the place to begin:
Focus is owned by Quest, so if you are lucky and have a Quest lab near you, you can ask that lab director if they will take care of Focus' billing.
I see two ID doctors. They are wonderful. If you can find one to help you with the testing and treatment that would be awesome.
Chlamydia Pneumonia will make you feel worse on antibiotics if you have it.
While I am not yet well, I am feeling the best I have in 6 years...and this is after treating HHV-6, EBV, VZV, HSV1 and enterovirus. We are still working on enterovirus, HSV1 and Cpn.
Good luck, Timaca
==============================
Adding to that:
As mentioned in Timaca's post above, Cpn is also a common stealth infection that those with lyme, CFS, MS can have. For more about that:
Mycoplasma Pneumonia, too, is another chronic stealth infection to consider. It's often just referred to as mycoplasma but there are different strains.
The Institute for Molecular Medicine - research on Mycoplasmas -
Posts: 48021 | From Tree House | Registered: Jul 2007
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
Yes, I saw all of that before. I still don't get it.
I know I'm a little slow these days on my comprehension. I read all of those things, but still don't understand what it is, how you get it, etc.
Is it related to Lyme or something that could be wrong other than Lyme, but it appears to have a lot of the same symptoms as Lyme?
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It is not related to the lyme bacteria. It is a virus. It could be passed by a tick, although not necessarily.
Yes, it has a lot of the same symptoms as lyme. But treatment is totally different.
HHV-6 FOUNDATION -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I wouldn't be too concerned about viruses. Everyone has them and there is not much that can be done to treat them. For example anyone that has had a cold sore has the herpes virus, which is pretty much everyone.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
i have alot, and you can take scripts to keep them at bay..i have most if not all the above, they can get active in the body, and make you sick like me... i have these viruses.
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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WildCondor
Unregistered
posted
HHV-6, EBV, etc., are very common and most of us have had it at some point. Do not panic, these viruses become activated when your immune system is low because of Lyme disease. Your body is busy fighting infections so the viruses come out to play. They will go back to dormant once you knock out the bacterial infections. Some patients need Valtrex.
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posted
I was positive for HHV6a too. I don't think it's my main problem though.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Please do not underestimate HHV-6. Read up on it. If present, treating it can make lyme treatment work better. In some cases, the lyme may not be causing all the symptoms but HHV-6 could be.
While HHV-6 common, when it is active, it needs to be addressed just as while CMV is common, it can become dangerous for patients with compromised immune systems.
In addition to anti-viral meds, Allicin or andrographis might also be explored. -
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Viruses will not necessarily go dormant. I know people who had only HHV-6 infection who were very ill (bed ridden). They had to undergo treatment to get well.
As I've said many times, test for lots of pathogens and treat what looks most obviously wrong.
I had HHV-6 infection (among others). Valcyte helped me a lot. I have Coxsackie B3, B4 and B5...treatment for that has helped a lot. If you don't test for and treat these pathogens you can remain sick, thinking it's lyme or a tick borne co-infection.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
I'm sure if I was tested I'd be positive for a whole soup of things. So far everything I've been tested for I was positive to. So far EBV, HHV6a, Lyme,and Bartonella. But I don't think that anyone has figured out what the main underlying problem is. Figure that out and treat it, and I think I'll get better.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
aiden424~ You have to look closely at the antibody titers. Just because a test reading comes back "high" or outside the reference range doesn't mean that active, chronic infection is present.
I've seen improvements in my health because I've treated HHV-6, EBV, VZV, HSV1 and enteroviruses along with treating bacterial pathogens. Until they know how to fix the immune system, our only option is to go after the pathogens. All of them.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My LLMD is of the opinion that Keebler expressed - HHV6 is an important factor that needs to be addressed. It can cause many symptoms similar to lyme - burning skin, fatigue, brain fog, comprised immunity, etc. She feels that if we get the viral load down, it will help us get over the Lyme faster.
I was tested and my titers were somewhat high. Since I don't do well with antivirals, she put me on homeopathic medicine, ProBoost, and lauricidin. Treating my adrenals with Isocort also helped. I moved off a plateau that I had been on a year. I work full time, and I function close to 90% on most days.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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