posted
Once again I have added Diflucan to my protocol (was on it once before for 30 days).
Since starting it, I have been so much more irritable than usual (which is horrible to begin with), extremely jumpy, panicky, weepy, and anxious.
Also...MAJOR craving for sweets, which I have not been eating any of for the last 2 months (due to the fact that when I eat anything "sweet" I just go CRAZY and can't stop - I could eat a whole sleeve of oreos without blinking an eye).
I find old feelings of paranoia creeping in, and major brain fog and just a BLAH feeling.
Granted, I am also on Mepron, Amox and Minocycline and supplements.
When my LLMD put my 6 year old on nystatin, she told me that I would know for sure that she has yeast if she became a raging, miserable brat for about 4-5 days once starting the nystatin.
Sure enough, my daughter's moods were OUT OF CONTROL while on nystatin, for the first week.
So, I am thinking this is what's happening with me on the Diflucan. I am tempted to stop taking it, but I have been dealing with yeast for so many years...
I have read on here that Diflucan won't touch the yeast as long as I am on antibiotics, so of course there's THAT to consider.
My poor family, I don't know how they deal with my moods.
posted
I am a diflucan protocol follower. This took me from being bedridden within 3 days. The doctor that stumbled upon this (Dr. S) protocol was very clear that FLUCANAZOLE (DIFLUCAN) should NEVER be taken in combination with antibiotics. Follow this link to read:
posted
I am a diflucan protocol follower. This took me from being bedridden within 3 days. The doctor that stumbled upon this (Dr. S) protocol was very clear that FLUCANAZOLE (DIFLUCAN) should NEVER be taken in combination with antibiotics. Follow this link to read:
posted
Doesn't Schardt say that CERTAIN antibiotics shouldn't be used? (As opposed to any?)
Posts: 386 | From Southeastern PA | Registered: Oct 2007
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Many on Diflucan take it w/abx. Right now a good friend of mine w/Ld is doing very well on Zith and Diflucan. She said adding Diflucan helped a lot.
Diflucan can possibly hit LD and you may be herxing from getting rid of yeast or killing Ld.
posted
Hi, I am a big fan of Diflucan but I had a huge herx when I started it. This was before I knew I had Lyme and what a herx was. Ended up in the ER thinking I was having a heart attack. With that said, I felt better days later. The ONLY time it made me irritable and anxious is when the pharmacy changed the generic brand. I have to have it from IVAX in Florida I believe it is or the brand name. I cannot take any from India or other companies. We are soooo sensitive so please don't rule it out yet just look where its coming from. Not all Generics are the same. Praying for you, Truesun
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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posted
Hi Julie, sorry to hear you had such a reaction and going through such a tough time. I would definitely call your doc and tell her your sx, as they seem very severe.
I'm no expert, but I don't think it's such a great idea to be on mino and amox at the same time as diflucan.
When you were on the diflucan previously for 30 days, were you on abx at the same time? Did you have the same extreme reaction you are having now?
At one point my oldest daughter was put on high doses of a few different abx and what seemed to be 1000 supplements. It was so awful, she had to stop taking them all.
The Schardt protocol, from what I understand, rotates diflucan with a penicillin. There's two threads going on diflucan, probably on page 2 at this point with some good info, as well as some links posted here.
Currently my oldest is just on the diflucan, mepron, artemesia and a few other meds/supps. She was on abx for a very long time, with limited improvement. Her improvement since beginning the diflucan is remarkable. It happened in days, and with no herx. But, that doesn't mean it's the magic pill for everyone.
I have never heard of any reaction to nystatin that your doc describes. My kids and I have all been on it, and noticed no difference in behavior whatsoever (but of course we're all different). I'm starting to think that nystatin hits yeast the way a toothpick hits a skyscraper. The misleading thing about nystatin IMO is that b/c the dose is like 50,000 units, you think WOW...this is powerful stuff. From what we've seen, it's 50,000 units of nothing much.
Is there any possibility other factors could have contributed to your daughter's behavior that week that she began nystatin? At that age, there can be friend/school issues (girls can be awful...even at that young age), fear/concern about her own illness as well as yours. When mommies are sick, it's very emotional for kids.
Sometimes little ones don't know how to verbalize these things and instead throw tantrums over silly things and/or become cranky and irritable. It took me a long time to realize that a current tantrum might have nothing to do with what's really going on inside a kid's head.
I have always found that bedtime is when kids are most likely to share their feelings and concerns. I am sure you are exhausted, but try to lay down with your daughter a good half hour before her bedtime and have a heart-to-heart conversation with her. Ask her what's on her mind, how school is going, what she thinks of her teacher, what's going on at recess, how she's feeling physically, what her thoughts are about your illness, etc. You might be surprised to find out what's on her mind, and find that the nystatin has nothing to do with what she's going through.
Remember too that it is so very important for you and your little one to take probiotics to help with yeast (florastar, VSL3, theralac for instance).
And, I know it's hard, but try to get rid of as much sugar/white bread/cookies/cake as possible. This just feeds the yeast. There are some good substitutes out there, and you can think of creative ways to explain why you're using something new. Sometimes kids don't even notice food changes (you'd never know dreamfields pasta is whole wheat, for example).
I wish you luck. I know it's a hard road, but there are lots of us here who are going through what you're going through now.
You will find that this forum is a great source of comfort, support and knowledge.
Posts: 214 | From where ticks flourish | Registered: Dec 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I am kind of obtuse when it comes to noticing what causes what, but since I am currently not on any antibiotics, I can't help but notice this one.
I have been taking Diflucan for 3 days for ringworm. Today, I could not wake up. Normally, I would chalk this up to my typical herx; but I am not on any antibiotics. I am talking cemented to the bed. Could not even wake up my son for school. Slept until 9:30 pm.
I can't help but wonder if it was the Diflucan....though it could be anything, I guess. Just wondering if anyone has had this happen.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy, I don't think you and your family have gone through enough
Don't quite know what to make of your reaction to Diflucan. How much longer do you thing you'll be on it? Would be interested in seeing if you see any positive results in a day or two.
It would be a lot easier if there were just a couple of things that worked for us all.
Keeping you and your family in my prayers.
Posts: 214 | From where ticks flourish | Registered: Dec 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
It may have nothing at all to do with the Diflucan, maybe I'm just having a couple bad days. I'm having a low grade fever, spine pain, sleeping almost round the clock, extremely fatigued, nauseous, weak...in all honesty it feels more like parts of the meningitis I just had than anything else, without the severe headache.
Which it best NOT be, because I see the LLD on Monday with every intention of getting in for my next round of IVIG ASAP and hoping to feel better from it. Nothing is to stand in my way.
Just a couple bad days, I guess, which stinks because I was starting to be able to get up and do a few things for an hour or two a day. Today the home health aide had to shower me.
Oh well. Can't wait to get to my Lyme doc finally on Monday and see what he wants to tweak so I can get back to the IVIG. I called the Cancer Center and they will do it via heplock since I have no PICC line now.
I still need to get into the Vascular Surgeon ASAP too....but was too exhausted and out of it to call yesterday or today. At least I know they will place a heplock for it there. Just wanna get there and get the IVIG!!!! Without the part where I end up with Meningitis this time, please!!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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