posted
I have been in treatment about 6 months and I've seen improvement. However, I've never really had the monthly flares? I keep track of my symptoms and I really do not have a cycle.
Am I the only one? I have good days and bad days, but I see no pattern.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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posted
I spent about 2 hours tonight going over 6 months of journal entries to see if I could find a pattern.
Honestly I can't really see one either unless you call the below a pattern.
*31 days of "good"- very little fatigue/symptoms
*41 days of very bad-night sweats, major fatigue and host of other symptoms
*66 days of moslty "good" although during that time I had very little fatigue but I did have a horrible acid reflux (9days), bladder issues for 2 days and then a bad cold for 10 days. So not sure I can say the 66 days were all "good"
*26 days and counting... of feeling very BAD. Horrible fatigue, night sweats, headaches, leg aches etc. This has been my worst flare yet and it is not over
That really doesn't look like a "cycle" to me but I guess it is kind of cyclical. I seem to have 1-2 months good then 1-2 months bad.
When I feel good I really think I am well...but it always comes back
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I have kept a very detailed journal since Sept. I have had times when there seems to be a cycle, but I feel awful most of the time, so its really hard for me to say that I have a definite cycle.
For me pain has improved about 30%, brain fog about 50%; but fatigue is still just as horrid! I think due to the fatigue being so awful, it is hard to pick out a cycle.
If it were just the pain and if I went back and just looked at the pain, I might be able to pick out a pain cycle. Does that make any sense???
Posts: 4035 | From Mississippi | Registered: Jul 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I was cycling with lyme. My flares coincided exactly with the full moon. An eclipse was horrible! That is pretty much under control so on the full moons I might just have a few spasms and my arm hurt a little.
Bartonella has no cycles that I have noticed.
I read on here that babesia can cycle every 7 days or every 14 days. I do notice that this is the case with me too.
So you might be experiencing a coinfection.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I just keep reviewing my journal as well, and am puzzled that there is no cycle. Some people say they have a flare every 4th week...I see nothing like that. Just good days and bad days.
Nefferdun, I do think I am mostly dealing with coinfections.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I also see no cyclical pattern, other than I seemed to have one for the first two or three months of babesia treatment initially.
-------------------- Symptom Free!!! Thank you all!!!!
posted
Nope, no pattern here either. And I have kept a symptoms journal for 14 months.
Posts: 228 | From Mass. | Registered: Feb 2009
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
No pattern with me either, have kept journal for almost three years.
Well, I take that back, when I first started bicillin, I got a herx, when I doubled Mepron dose, got a herx, and recently started ketek and got a herx.
So, seems like when I started certain meds, I got a herx or two, then nothing....
We are all different
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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quote:Originally posted by sutherngrl: [QB] I have kept a very detailed journal since Sept. I have had times when there seems to be a cycle, but I feel awful most of the time, so its really hard for me to say that I have a definite cycle.
That's how it was with me. I noticed no real monthly cycle until the bacterial load had been knocked down...took over a year or so to get there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- never - same most of the time. flares from overdoing. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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