posted
I just started on factive. i took my first pill 24 hours ago. Around three hours ago i started to feel really dizzy.
i am assuming this if from the factive as it's the only new thing i am taking. i feel pretty spacey, an even worse disconnection with myself, and like i'm being pulled to the left (for lack of a better description).
I'm on this for bartonella. i was on rifampin last month and didn't have any weird feelings like this. I have also taken rifampin in the past and felt no improvements on it.
could this be a good sign (wishful thinking) that the bartonella is being targeted. this feeling is very scary and i am working very hard not to let it turn into an anxiety attack.
thanks!
-------------------- Misdiagnosed and untreated from 1993-2008. - iGenex positive western blot for LD: 9/08 - Clinical diagnosis for Babesia: 2/09 - Positive blood smear for Bartonella: 3/09
Started treatment: 1/09 Posts: 91 | From New Hampshire | Registered: Jan 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
hmmm, don't know. But I will say those of us with Bart are reporting feeling 'spacy' on the 'quin' drugs, which i believe that Factive is as well?
All of us but Hoosiers who have started this class of drug recently has had the same reaction...
to me that says 'yes we are on target'. If you can ride it through, the 'spaciness', it does get better as the days go on. Might also try dosing down for a few days until you adjust to the med.
Oh yes, forgot to mention, I also have a feeling of incoordination, or as you have described 'pulling to the left'....don't know if that is good or bad.
My doctor has told me to try and stick it out. If it becomes intolerable, STOP.
Just my experience. Tt your doctor if you are concerned....safe is always the best option.
Best, feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I did 2 5 day on and 5 day off pulses of Factive in November/December. I had BAD Bart herxes while on it: hyper, anxiety, very revved up, worse insomnia, etc. And, I got ligament problems in my thumbs (not good!) and double vision--freaked me out!!
BUT, many of my neuro sxs: horrible balance, feeling like I was on a boat all the time, bad brain fog totally vanished after the first day on it. And stayed that way!?! Unreal!
So, if you can hang in there, it may well be worth it. But, of course, check with your doctor. Everyone is different. It was like a miracle for me, except for the darned side-effects and herxes (herxes are time-limited, however).
Posts: 3771 | From around | Registered: Mar 2008
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posted
thank you for the words of encouragement. this morning i'm feeling less freaked out. still have that "pulled to the left" feeling, but i can live with that if the end result is beating some of my most dreaded symptoms.
when you say brain fog, do you mean depersonalization? i know some people have different ideas of what brain fog is to them. i live with an incredible sense of depersonalization and would suffer any number of herxes/side effects if i knew in the end it would go away.
thanks for the responses!
p.s. i am on a five day pulse too. tonight will be my third night. i started at night because that is when i picked it up from the pharmacy. is that when you guys took it?
-------------------- Misdiagnosed and untreated from 1993-2008. - iGenex positive western blot for LD: 9/08 - Clinical diagnosis for Babesia: 2/09 - Positive blood smear for Bartonella: 3/09
Started treatment: 1/09 Posts: 91 | From New Hampshire | Registered: Jan 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I take Factive first thing in the morning. It has only made me feel better. No noticeable side effects.
Maybe it would be helpful to try taking it at another time with your next pulse? It's worth a try if you can feel better.
Posts: 5237 | From here | Registered: Nov 2007
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