TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
f13girl.....
How are you doing now??!! I hope much better. If you still visit Lymenet, please come back on. I have had an almost identical reaction. You describe me the best that anyone has so far!
You wrote: "As a result of taking a few drugs and downward spiral in November- I now have severe neuro symptoms-numbness everywhere almost, jerking, twitiching total insomnia,unberable nerve pain and stuff going on in head/brain/eyes, gait, balance, coordination, burning etc etc etc ( I did not have 90% of this in november before my crash-altough I had some symptoms and was declining)
Are there others out there like me with chemical sensitivites and all these other issues that have treated successfully with abx? I'm terrified given the cascade the drugs put me in (flagyl/diflucan fungal cleanse-hairbrain idea of mine not by doctor-autism docs use this)."
Did you get help from Dr. H?
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TNT,
The last post by f13girl was May, 2010. You might Google that screen name and see if the same poster is on another discussion board. That sometimes happens.
And you might find TF as she treated successfully, after some searching, with a full protocol that was strong enough after other weaker programs failed. And it took her just one year once she finally found a LLMD with enough skill.
Still, for some with MCS / Porphyria or drug sensitivities, I suggest exploring RIFE along with key support supplements. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
LL Naturopathic links here, too, for solid guidance for support methods along with rife. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As there are at least eleven variations of PORPHYRIA - and maybe more - glucose may be helpful in more types than those listed here.
are treated initially with the administration of carbohydrate/glucose.
This therapy has its basis in the ability of glucose to decrease porphyrin biosynthesis in the liver.
Glucose can diminish excess excretion of heme precursors, which, in turn, can prevent an attack or can hasten recovery from an attack of the acute porphyrias.
Therefore, it is suggested that when patients cannot consume carbohydrates due to nausea or vomiting, glucose should be administered intravenously.
Some physicians have prepared a standing order for patients who are prone to attacks to help facilitate intravenous glucose in the emergency room.
Often this prevents further hospitalization Most patients are knowledgeable about the deleterious affect the wrong drug can have on their bodies and are consequently careful about the medication they ingest,
but some do not understand the
importance of carbohydrates for prevention and treatment of a Porphyria attack.
Because it is a simple therapy, many patients ignore the significance of their carbohydrate (sugar) intake to suppress disease activity.
When the Atkins Diet, which was a high protein/low carbohydrate diet, became popular a number of years ago, many Porphyria patients who adhered to this diet became ill.
It soon became apparent that their severely reduced daily carbohydrate count exacerbated their Porphyria.
In fact, complying with the Atkins plan precipitated attacks in some previously undiagnosed and non-symptomatic individuals.
-----
ALSO SEE DETAIL IN previous posts about SPIRULINA.
Search at Google and also at YouTube for: porphyria, spirulina
--
& for those with concerns about how to manage candida if you also require some dietary glucose:
Treatment of porphyric convulsions with magnesium sulfate.
Sadeh M1, Blatt I, Martonovits G, Karni A, Goldhammer Y. Author information (at link)
Abstract
We report a 16-year-old girl with acute intermittent porphyria who had abdominal pain, generalized tonic-clonic and simple partial seizures, and inappropriate antidiuretic hormone secretion.
Because most antiepileptic drugs are contraindicated in porphyria, she was treated with magnesium sulfate i.v.
Soon after starting treatment, seizures stopped, returned, and then again responded in several trials with discontinuation and reinstitution of i.v. magnesium sulfate.
Our experience encourages the use of magnesium sulfate for treatment of seizures in patients with porphyria.
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