LymeNet Flash: Denial?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Denial?

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Author

Topic: Denial?

Moonchild
Member
Member # 23147

posted

So... I was on x b's for about 10 weeks after I could barely walk... the doxy worked after 10 weeks...starting running again and getting back in shape- was good for about 2 months...now I feel spasms throughout my body.... twitching...knee pain.... random sciatica and other symptoms which I know are lyme residuals...
I'm scared... what can I do at this point to help myself? I feel like I'm denying that it's starting to happen again...
meh...help!

Posts: 15 | From NY | Registered: Nov 2009 | IP: Logged |

LightAtTheEnd
LymeNet Contributor
Member # 24065

posted

Have you got an LLMD? If so, call.

If not, post in "Seeking a Doctor" and find one ASAP.

--------------------
Don't forget to laugh! And when you're going through hell, keep going!

Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009.

Posts: 756 | From Inside the tunnel | Registered: Jan 2010 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
Sorry to hear of the bumpy road. I hope you can get back with your LLMD and get on the right track. This will get better.

you might get the book below as it details what helped get over bumps. The author is doing rather well these days:

Some libraries carry this book. Here's the Amazon link:

http://tinyurl.com/5crsjv

Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

Author's website: http://www.cureunknown.com

=================

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - 2007

" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."

==========

However, for some treatment can takes a few years. So much depends on how many infections are present, the shape of the liver and adrenals, etc. The strain of lyme, etc. also matters.

==========

Aerobic exercise may have come too soon. If there is still infection, aerobics can damage the heart. Mitochondrial damage, too, is frequent with lyme and exercise has to be approached carefully.

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Joseph J. Burrascano, Jr., M.D.

* Page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

* Pages 31 - 32 for LYME DISEASE REHABILITATION and specifics in coordinating a rest / work-out schedule and Physical Therapy.

===============

www.ott.zynet.co.uk/polio/lincolnshire/library/uk/post-me.html

or http://tinyurl.com/33rxy8

From Dr. Bruno's "Fainting and Fatigue" in the Spring 1996 CFIDS Chronicle

Post-polio expert Dr. Richard Bruno points out that physical over-activity is the biggest cause of post-polio symptoms. [3]

Excerpt:

``when mice infected with Coxsackie B3 were forced to swim in a warm pool, the virulence of the virus was drastically augmented.

In fact, viral replication was augmented 530 times. This did horrendous things to the animals' hearts. We all know that to play squash with the flu can lead to heart attacks.

Much the same danger can be courted by undertaking hard exercise with M.E. (CFS).'' - End quote.

============

I hope you can go back to your LLMD and get back on track. Were you assessed for coinfections?

Do you have good liver support? Adrenal support? Magnesium?

Good luck.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

I would start treatment.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

trigal2
LymeNet Contributor
Member # 20578

posted

Sounds like you were on the right track but may not have hit all the lyme.

Go see your LLMD and get back on tx if deemed appropriate.

It is not uncommon to relapse like that after a few months of feeling well off of abx.'s. I had the same experience a few years ago.

Stop tx., felt great, back to life and training and racing again and then BOOM - I was hit hard.

Best bet to see your LLMD and let her/him assess the situation. TG

Posts: 376 | From New Jersey | Registered: Jun 2009 | IP: Logged |

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