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» LymeNet Flash » Questions and Discussion » Medical Questions » Vitamin D Question

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Author Topic: Vitamin D Question
RPM2
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I understand that some people with Lyme also have Vitamin D regulation issues, and if that's the case, does that mean that 25-D levels would not go up with supplementation? does it mean that if your 25-D levels successfully increase, you don't have regulation issues?


my Vitamin D level was at 8 and now it's at 38, and for a while now, I haven't really gone out much at all, plus live in the north, so it made sense....but now that my level has gone up, i assume i don't have any regulation issues


I'm just curious as to why some people do and some people don't

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laurisabelle222
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http://lymemd.blogspot.com/2009/12/vitamin-d-retraction-i-got-it-all-wrong.html
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RPM2
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interesting link

I've been reading a lot of Vitamin D topics on here and it seems like there's always a lot of comments/debates...it seems like Vitamin D has a LOT to do with the immune system, so I'd just assume it'd be a great thing if you were TRULY deficient in Vitamin D (not having regulation issues like some people do)...for about a week and a half

I feel like I've been having a herx for a little over a week(pinching/prickly/insanely itchy skin, yet no rashes or anything on the skin) and all that I've really taken recently is D...so if I'm not having regulation issues, and my Vitamin D level has actually gone up, I'd think that'd make sense and it'd be like a jumpstart to your immune system

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sutherngrl
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After having a great deal of trouble keeping my D up, I am now on prescription D for the second time since becoming ill.(I take 50,000IUs 2x a week).

The first time was before I knew that I had LD; but after 3 months on mega doses of D, I was beginning to feel like I was in remission(had FM diagnosis at that time). As soon as my D got up, they lowered my dose and within 2 months I was very ill again.

I have now been on prescription D for 4 weeks. I have been reading a lot about D and I think it is an amazing hormone. It is a natural antibiotic and is believed to have the ability to kill bacteria. It is also an immune modulator.

I have been having herx like symptoms for the last 2 weeks so I am beginning to think that the hormone D has huge possibilities.

I think if only they had let me stay on it longer a few years ago that maybe I would have not relapsed.

Also a good fact to know. You need to be off D for a whole week before getting blood drawn to check your D levels in order to get an accurate reading.

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RPM2
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you do? i had taken D a few days before I had the bloodwork done...oh well, either way, it still went up so I'm curious about the first few posts

[ 03-08-2010, 11:53 PM: Message edited by: RPM2 ]

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ohio29
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I didn't know D was related to lyme for certain. Can anyone direct me to more info? I went to the dr. to be diagnosed with lyme or so co-infection but instead got told i had a vitamin d deficiency and that was it, take some vitamins and my symptoms will go away... wrong! took all of my vitamins, now continue taking some on my own non-perscription and symptoms have been back. worse, waned again, back again, blah.
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bill+1
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I to have D deficiency .1 more symptom that fits the lime profile . I have not been diagnosed yet but my lyme panel was shipped off to IgenX just today . The more I read and study the more this mess of symptoms I have is going toward Lyme .

--------------------
Wishing us all well !

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RPM2
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http://www.prohealth.com/library/showarticle.cfm?libid=15039


interesting link...


* Vitamin D plays an important role in activating the immune system, fostering the ``innate'' immune response, and controlling over-reaction of adaptive immunity, and as such may help control autoimmune diseases such as multiple sclerosis, psoriasis and rheumatoid arthritis.

* Cathelicidin can profoundly boost the innate immune system, and could form the basis for new therapies to combat pathogenic infections.

* The regulation of cathelicidin by vitamin D, a unique biological pathway for the function of vitamin D that could help explain its multiple roles in proper immune function, is so important that it's only known to exist in two groups of animals - humans and non-human primates - and has been conserved in them through millions of years of evolution.

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