MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Hi all, My LLMD prescribed me Tindamax instead of Flagyl and it's working wonders. However, I didn't actually fill the prescription- I got some from another friend, so I don't have my own LLMD's directions on the bottle. I'm taking it the same way the friend was, but I'm wondering how most LLMD's prescribe it, and I don't want to call my LLMD and bother him with this question.
Do you take it pulsed or do you take it straight through and long-term?
Is it thought to protect against C Diff infection the way that Flagyl is?
Thanks.
-------------------- Symptom Free!!! Thank you all!!!!
posted
My combo is Tindamax (500mg twice a day, every day) and Ketek (400 twice a day). I am on it for at least three months...time between LLMD appointments, and probably longer. I had been on Flagyl a few years ago, and never wanted to do it again, so Tindamax was the alternative.
Best wishes!
Ann
Posts: 287 | From Northern California, USA | Registered: Oct 2000
| IP: Logged |
Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I was RX'd it for a month only. 500mg 2X per day for 10 days 250mg 2X per day for 10 days 125mg 2X per day for 10 days
With Alinia to start after the first ten days. I'm also on mino.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
| IP: Logged |
posted
Do you still have the written prescription or was it called in? I would call as it can be taken many different ways.
I took it one week per month.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I was told to take it two days a week. Doesn't your doctor give you written back up instructions? If not, call the pharmacy and asked them how he called it in.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
well, he called it in, but it was a couple of months ago, and I actually asked for it in an email, so I wasn't at an appointment where I got written instructions. I'll check what the pharmacy says if they still have it on file.
Incidentally, what are you guys paying for it? I found it through this place which I've used for Rifampin and some other antibiotic in the past:
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I'm at this point with my LLMD where I'm exploring more hard-core combination therapy than he likes to prescribe. He's OK with it as long as he knows the research behind it (ie burrascano, etc)- he just tends to jump right to Bicillin and then IV if things aren't working for patients like myself. He's also more into supplements than I am or can afford to explore. I'm sort of forced into this combination therapy stuff by finances.
I couldn't afford the Bicillin and I assume that my problems are mostly cyst-related based on how I relapse when off drugs, so I'm kind of charting my own course based on hitting every form of the bacteria, with his approval.
I'm not doing anything too unusual (other than that I treated babesia with EVERYTHING at once- mepron+biaxin, alinia, artemesinin, and cryptolepsis).
-------------------- Symptom Free!!! Thank you all!!!!
posted
I started Tindamax 500 mg and Cipro 250 mg twice daily about a month ago. I had been on other abx (doxy, zith, biaxin, flagyl, levaquin) on and off for about 18 months and got about 80-90% better.
The Tindamax Cipro combo has gotten me to about 95% so far. My sore soles stopped hurting about 2 weeks ago, which is probably the Cipro working to get rid of Bart.
Also, I just noticed yesterday that the sore spots and knots between my ribs are gone!
What is great about Tindamax is it is an antiprotozoal, an antibiotic, and an LD cyst-buster.
According to LymeMD's blog, Cipro is effective against Bart but also helps to shuttle the other abx into the cells and can raise tissue saturation to levels rivaling IV abx.
I would be 100% except I am still having some fractionated sleep issues, but not nearly as bad as before where I would wake up 4-5 times per night. I usually only wake up once per night now, take a restoril, and then sleep another 3-4 hours.
My remaining sleep issues could also be a side-effect of the Tindamax, but I will gladly trade off a full night's sleep for the benefits I have seen with Tindamax Cipro combo.
I just had a sleep study that confirmed what I already knew, which is that I am not getting sufficient stage 3 or 4 sleep and that I do not have sleep apnea.
You need deep sleep because that is when the body repairs itself. I return to the sleep doctor in a couple of weeks and will probably get Xyrem to help reset my body's sleep clock.
That is a great price for tindamax from canadadrugs! I pay more than that with a co-pay.
My llmd uses the Burrascano guidelines and I take 500 mg. twice a day, no pulsing. It needs to be coupled with zithromax (600 mg.), or something like that.
Then, after a month, mepron is added.
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I BEGGED my ID doc just to do Biaxin/Plaquenil and Malarone or ART and was told no way Jose. He said his first oath in medicine was to do no harm. He said there's no literature on treating Babesia WA-1.
quote:Originally posted by MariaA: I'm not doing anything too unusual (other than that I treated babesia with EVERYTHING at once- mepron+biaxin, alinia, artemesinin, and cryptolepsis).
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Frustrating. There is most certainly literature on treating b microti that way (well, with malarone, not sure about plaquenil). There's no reason to believe it'd be any different with duncani, other than that patients report it's more difficult to get rid of.
Art you can just buy yourself- you wouldlnt' be getting it from a doctor anyway. Be sure to pulse it a few days on, a few days off, because your body builds up an enzyme that gets rid of it, so taking a couple of days off is done so as to reduce levels of that enzyme (and no, it's not just an issue of taking grapefruit juice like with some other drugs whose levels you want to 'tweak'). The babesia books by He Who Shall Not Be Named gives very good info on using it and about other treatment options.
-------------------- Symptom Free!!! Thank you all!!!!
posted
500 mg twice a day two consecutive days per week--this is for a child, not sure if this would be the same protocol for an adult.
Posts: 648 | From northeast | Registered: Feb 2009
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Maria, I'm curious - did you kick your babs? If so, how long did you take this protocol? Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
oh sheesh, it's a frustrating issue. I worked on babesia for about 11 months last year and thought I had it licked. I put myself in the Success Stories forum with info on everything I did- it's useful. I stopped Bactrim DS in December, and substituted it for some other antibiotics that don't cover babesia, and all my symptoms came ROARING back at me in a month. I hadn't been in perfect health before stopping the Bactrim- they just seemed like Lyme/bartonella symptoms rather than babesia.
I fought the bugs again with heavier doses of Bactrim (not everyone can do this!) in January, Alinia, cryptolepsis in high doses, and artemesinin in standard doses, and it knocked down the wasting/anorexia/sweats/air hunger again. I'm controlling it with just Bactrim and the other Lyme drugs I'm on right now. will probably start other herbs for it again soon, I'm just changing drugs/herbs one at a time right now.
-------------------- Symptom Free!!! Thank you all!!!!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic