posted
Camber, you may be doing some detox already but if not, it would help. I didn't take this seriously for a long time after I started treatment and that was a big mistake.
I feel for you as I know what you are going through. The brain stuff is the scariest. I truly hope you can find something that works and that you can tolerate. Hang in there, it does get better.
Sapphire
Posts: 495 | From KY USA | Registered: Dec 2004
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So your LLMD wanted you on biaxin + plaquenil but again your stomach is still an issue and it would appear from the very quick worsening of your brain symptoms that you may be having a known side effect of quinolones which is brain toxicity. If so that will also occur if you try taking cipro instead of the plaquenil.
A better option for bartonella that would avoid quinolones entirely might be adding Bactrim to something else say zithro. Now of course zithro could also upset your stomach and you may need some acid reducer meds for that but either biaxin + bactrim (or rifampin but bactrim seems better tolerated by most folks) or zithro plus bactrim should get good attack against Bart, and decent brain/cns penetration for Borrelia and avoid the chloroquine/quinolone class of meds altogether.
If all goes well with that then adding cyst buster like flagyl can be added very cautiously at a later date.
what is bactrim and what is it for? Im handeling the Plaq every day.. I think.. well nothing has gotten way worse than before i started it. How come i only get the brain toxicity when i add the biaxon to it? i mean its confusing. I still most days have the dissociation issues with the exceptions of when my whole body goes into auto pilot anxiety mode , if i dont sleep.
Im taking GSE
Is the plaq alone not enough to tackle the bartonella?
whats another abx i could add as biaxon acting back with me and i think i tried zitro allready.
My pain is worse than ever now.
Posts: 92 | From ri | Registered: Aug 2009
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quote:Originally posted by sammy: Maybe you should drop the Biaxin and Plaquenil combo for now. Let your stomach heal.
Is your GP willing to prescribe Bicillin LA shots? If you have medicaid or any insurance they might be willing to cover the shots with no copay if they are administered at your doctor's office.
This might be worth a try because Bicillin LA is long acting. You could take 2 to 3 shots per week and give your stomach a rest.
Once your stomach is healed you can ask your GP for a cyst buster (Plaquenil, Tindamax, or Flagyl). Most people pulse the Tindamax or Flagyl, taking them only a couple days per week so maybe one of these will be easier for you.
What are bicillin shots? What do they treat?
If im handleing the plaq every day should i try to do every 3 days instead. i mean the pain is intolerable, and my mental issues have gotten out of hand and im not sleeping but i cant say its def casued by the plaq. It could be life circumstances.
Posts: 92 | From ri | Registered: Aug 2009
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quote:Originally posted by Beachinit: Your were off biaxin four months and during that time your neuro/psych symptoms got worse or recurred. I am guessing these brain symptoms started not long after you stopped the biaxin, if so the Bart or B.L.O. was a likely cause.
So your LLMD wanted you on biaxin + plaquenil but again your stomach is still an issue and it would appear from the very quick worsening of your brain symptoms that you may be having a known side effect of quinolones which is brain toxicity. If so that will also occur if you try taking cipro instead of the plaquenil.
A better option for bartonella that would avoid quinolones entirely might be adding Bactrim to something else say zithro. Now of course zithro could also upset your stomach and you may need some acid reducer meds for that but either biaxin + bactrim (or rifampin but bactrim seems better tolerated by most folks) or zithro plus bactrim should get good attack against Bart, and decent brain/cns penetration for Borrelia and avoid the chloroquine/quinolone class of meds altogether.
If all goes well with that then adding cyst buster like flagyl can be added very cautiously at a later date.
Hope you find peace soon.
Beachinit
might i mention the toxicity of my brain has not gotten worse from the plaq, well not noticely worse, only some. but got extreme when i added biaxon to it. So is this in the family of quinolones? I dont know...
what kind of drug is Plaq... Is it doing any good on its own? I mean i am taking gse with it as a subsutition for biaxon tell i can try what you metioned.
'why do i want to avoid the quinolones? Maybe thats not it as i mentioned it only got more severe when i tried the both. I am allready feeling like my brain was frying before i started either, and before i started the gse.
I do have to mention i do get high off it... just that its tolerable and not too bad of a differnce. I just dont know if its doing any good....
Posts: 92 | From ri | Registered: Aug 2009
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