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» LymeNet Flash » Questions and Discussion » Medical Questions » dysautonomia

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Author Topic: dysautonomia
Jocelyn S.
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Could it be dysautonomia dysfunction when heart rate flies and blood pressure goes low? 100 heart rate and 90/55 for blood pressure.
Can lyme disease have anything to do with this? Has anyone had this and when treating lyme will it treat this as well?
Jocelyn

Posts: 25 | From south Florida | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
WildCondor
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Yes, sounds like it.

Lyme disease causes this quite often. It is also called Neurally Mediated Hypotension (NMH)

The bacteria and resulting inflammation mess up the vagus nerve leading from brain to heart and cause these symptoms. You have to get a tilt table test done by a cardiologist to determine what meds, and what doses to take for it. The TTT has to be done right and include the challenge part. Antibiotics do make it calm down over time provided the doses are strong enough.

www.wildcondor.com/bp

There aren't any good LLMD's in Florida, are you traveling out of state for care? If so, I know a good LL-cardio in NY.

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LittleLymie19
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Hi Jocelyn, I have dysautonomia too, and you've described here exactly what I experience. Last night was particularly terrible for me, where my heart rate was swinging from 55 to 125. My blood pressure dipped to 80/60.

WildCondor, thank you for educating us on this. I was wondering, did you also have a narrowed pulse pressure? I feel the worst when my blood pressure numbers squish together. It's frightening. Last night they were 20 points apart, so my pulse pressure was very narrow. 80/60ish.

Thanks for helping us on this.

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WildCondor
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Yes, mine used to go to 80/30 quote often, scary times. It used to get worse after a hot shower, prolonged standing, hot weather, etc.

I was treated with beta blockers, florinef and zoloft, the combination was key.

I would absolutely get a Tilt Table test, sent you some info. [Smile]

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LittleLymie19
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Wildcondor, I'm sorry! My PM box was full. Would you mind sending it again? Thanks for the help!
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seekhelp
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WC, you say there are no good LLMDs in FL? What about big names like Dr. C and the expert Dr. S?
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WildCondor
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I am not allowed to say anything on this forum about that, if you want to know you have to PM.

But yes, there are no good LLMD's in FLorida.

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WildCondor
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Try reading this post about dysautonomina Jocelyn...


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/92098

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runningshoe
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check out potsplace.com for more info and other links about dysautonomia
Posts: 37 | From ma | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
   

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