posted
do you actually have to sleep during a sleep study?
i don't think i could fall alseep in that position...
i just wish everything wasn't so expensive. there are so many tests i'd like to have done!
Posts: 220 | From Kansas | Registered: Mar 2010
| IP: Logged |
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
well, I wasn't allowed to take sleep meds, but I think it was because I was doing the narcolepsy test the next day.
I think "maybe" if you are only doing the apnea test, you can take whatever you need to take to get to sleep.
During my second overnight study, when they were calibrating things, they let me take Ambien and Xanax. They really just need you asleep for a few hours, I believe. Though you may want to check.
I think it would be pretty expensive without insurance, so if you are uninsured.....that could be tough.
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
posted
i honestly can't sleep anywhere besides my own bed. i have been awake for 56 hours straight while travelling once because of this issue... even though i took meds that would have normally made me drowsy.
i just know my body, and i think it'd be HIGHLY unlikely for me to sleep... i'd be too uncomfortable and anxious :/
i do have insurance... but it's lousy! i pay $160 to see a doctor for something as simple as a cold... so i imagine a sleep study wouldn't be covered.
i really think i just need a higher dosage of thyroid medicine. right now i'm on the low end of the normal range. i believe my body would function sso much better on the higher end... but doctors won't listen. *sigh*
my LLMD says i have myxedema, which from my understanding is from hypothyroidism... yet my other doctor says my thyroid is "fine" now. i still have ALL the symptoms though... arg!
before thyroid meds i slept 17 hours a day on average... after meds i now sleep 12... so thyroid meds have helped my energy level... just not enough!
i wish i could write my own prescriptions Posts: 220 | From Kansas | Registered: Mar 2010
| IP: Logged |
Still looking for the most experience doctor to properly treat me so I don't feel I'm just indefinitely suppressing symptoms. Main problem is extreme fatigue, and the foggishness that lack of energy causes (And of course sleep problems)-
Can anyone PM with a specific doctor or route to research this treatment?
Is there anywhere I can get a tilt table test done with insurance?
Posts: 15 | From New York, NY | Registered: Feb 2010
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Haustic
Herb Pharm makes Eleutherococcus (Siberian Ginseng)
You will start to feel a difference almost immediately.
Take it for 30-60 days then take 2 weeks off. Continue with this rotation until you feel your immune system has bounced back.
Eleutherococcus is a big time adrenal support. It's an adaptogen and has immune benefits.
Powerful stuff
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Eleutherococcus - and all the other adaptogens - are discussed in the ARENAL LINKS in this thread: ----------------
Topic: NATURAL SLEEP - Links to articles & supplements -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Haustinc,
The most important thing is to have a good LLMD.
Treating infection is the top priority. Supporting the body (adrenals, liver, kidneys, heart, nerves) also matters greatly but treating infection is the key, along with support.
Before a Tilt Table Test would be ordered, you may want to study the posts here: ------------------
Topic: How to find a LL ND (naturopathic doctor), acupuncturist, etc.
Includes how to find an ILADS-educated LL ND, an Acupuncturist, a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, etc.
Includes many articles and books on complementary / integrative methods - & RIFE links. -
[ 10-04-2010, 06:39 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I talk a lot about liver support. But that may not be enough to compensate for "Fatty Liver disease" that can accompany any number of chronic infections.
It's a vast topic but this I have learned: if the liver is stressed at all, fatigue is inescapable. Over time, and with support some damage can be reversed but it's not a guarantee.
So often, I'm quick to talk about adrenal support, and liver support but it's also important to search "Fatty Liver" and find out how that affects energy -- and what can help.
Even skinny people can have "fatty liver" - anyone can. But there are things that can help (diet, supplements, Tai Chi) . . .
Hepatitis (which causes fatigue) affects about 20% of lyme patients, according to this author (who also details so many other considerations of fatigue): -------------
Fatigue is a hallmark of porphyria, a set of liver enzyme disorders (or deficiencies) that can be worsened by infection - and there are things that can help: ----------------
PORPHYRIA -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- One more consideration regarding fatigue: vestibular involvement.
Lyme/TBD, certain Rx, and liver stress can really clobber the inner/middle ear (vestibular) system. Here are just some of the ways that can affect not just our ears, but our vision and our balance. When any of that is off kilter, fatigue follows. ----------
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Just popping in to say, "YES" on the fatigue issue being #1 symptom.
Yes, worse a couple weeks before period and right before/during.
All hormones were "off enough to treat" and some were way off, including estrogen, testosterone and cortisol. Progesterone, too.
Thyroid meds haven't helped. Fatigue comes and goes withing a few weeks. Provigil didn't help AT ALL on those fatigued days.
Cymbalta has helped a little (I think)
Yeast can be a big issue in fatigue, too. And maybe other viruses that are secondary to lyme, but their main thing is to make you tired...like EBV. Answers sometimes don't help, but nice to know you're not crazy.
Hope you find relief.
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Razz]](tongue.gif)
Printer-friendly view of this topic