LymeNet Flash: Do you or did you have POTS

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Do you or did you have POTS

UBBFriend: Email this page to someone!

Author

Topic: Do you or did you have POTS

runningshoe
Member
Member # 24384

posted

Hi
If you had pots or have pots from lyme - have you gotten any better? What lyme meds helped the most (I know about the pots meds). Any recommendations would be great. thanks

Posts: 37 | From ma | Registered: Feb 2010 | IP: Logged |

beths
Frequent Contributor (1K+ posts)
Member # 18864

posted

I had POTS really badly. I also had lyme, bart and babs (or still do). Treating all of them, helped it go away.

It took a while..but you too will get there. I think treating bart helped the most (bactrim/zith combo is what I used.

I never used any POTS meds...my LLMD didn't want to muddle the picture..I could barely walk 10 feet. I now exercise daily..that includes walking 3-4 miles.

Posts: 1276 | From maryland | Registered: Jan 2009 | IP: Logged |

abbriggs
Member
Member # 21809

posted

That was my first diagnosis. I got POTS with my pregnancy with my daughter 3 years ago. I HAVE to take medication to control it or I can hardly function. I just saw a LLMD last week and am beginning on antibiotics now. How long have you had it?

Posts: 56 | From Austin, Tx | Registered: Aug 2009 | IP: Logged |

ninjaphire
LymeNet Contributor
Member # 18234

posted

I have POTS.

Have you tried Tocopherol-free Tocotrienols for the POTS. Just throwing it out there.

Ceftin, Bactrim, Quina, GSE worked well for me.

Posts: 330 | From Colorado, USA | Registered: Nov 2008 | IP: Logged |

mcaringella
LymeNet Contributor
Member # 24848

posted

What are POTS?

--------------------
Blessings to you!

Posts: 141 | From Southern California | Registered: Mar 2010 | IP: Logged |

ninjaphire
LymeNet Contributor
Member # 18234

posted

POTS= Postural Orthostatic Tachycardia Syndrome

http://www.dinet.org/pots_an_overview.htm

Posts: 330 | From Colorado, USA | Registered: Nov 2008 | IP: Logged |

runningshoe
Member
Member # 24384

posted

Thanks for the feedback. I have had POTS for 3.5

years. I begged for western blots when it first

started but you know how that goes. After my

daughter got sick with lyme I found myself in an

office with a dr who understood lyme and pots and

said you better get on my appointment list. My

Igenx test was positive. So I started doxy and

levaquin. I did two months and then there was a

glitch in the system at the dr's office (too many

patients and the NP who was following my case

left). So now I am two months without treatment

and fearing that I will have to run the first mile

of the race again. I was very sick during 6 weeks

of the doxy. POTS was not controlled by usual

methods. I welcomed the break but 8 weeks on 8

weeks off doesn't make sense. So even though I

have an appt with the dr coming up, I am preparing

myself that she won't be ready to got the distance

with me so I am searching for the right dr. I live in MA but am willing to travel.

So if you had pots - did you do any IV stuff??

Thanks

Posts: 37 | From ma | Registered: Feb 2010 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/