posted
After seeing my PCP and telling him what my LLMD said, he talked me into taking another WB test from his lab to compare the results found from Igenx. The test from Igenx was done late January and was Igenx positive but not CDC positive.I have been on Doxy since then, My new lyme tests were taken last week and tested at Mayo, elisa and WB both came back totally negitive. that does not add up??
Posts: 17 | From wisconsin | Registered: Feb 2010
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posted
Mayo tested negative for Lyme for me, but LabCorp and Quest Diagnostics Western Blot tested positive.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Did you actually see the test? My doc tried to tell me mine was neg. when it said Pos.
I would also take Mayo's with a grain of salt.
I do not know why they keep trying. For 25 years now they have not been able to get it right, no reason to start now..
If you are symptomatic treat.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Mayo "undiagnosed" me without even seeing me or knowing me! No kidding!
My cousin went to Mayo because he probably has LD. He told them about his cousin(me) having LD. They diagnosed him with some really rare unheard of genetic disorder that has no treatment; and told him they were 99% sure that his cousin(me) did not have LD. They said since he had this genetic disorder, I probably do too. No one else in our family has a rare genetic disorder!
So I say Hold the Mayo too!
Anyway, LD is a clinical diagnosis, and the reason it is, is because of the horrible inaccuracy of the test.
Also, did you actually see your last test? Or, are you just taking their word for it? Always get a copy of your test results.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
hey, what's the name of Mayo's commercial lab again that runs these? Fairsomething? I was helping out a patient in Minnesota but missed the name of the lab
-------------------- Symptom Free!!! Thank you all!!!!
posted
not sure of the mayo lab name, but how could the labs test so different? What could Igenx be doing differently?
Posts: 17 | From wisconsin | Registered: Feb 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Mayo Medical Laboratories ♦200 First Street,S.W. ♦Rochester, MN 55905
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
As far as I know, Mayo has never diagnosed anyone with LD. They are obviously making money by ignoring it as a possible diagnosis.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Igenex just has a better microscope and the people they hire are half-blind. KIDDING.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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quote:Originally posted by 1hunter: not sure of the mayo lab name, but how could the labs test so different? What could Igenx be doing differently? [/QB]
I would say they have perfected their process so that your blood gets a fair shake at revealing there is Lyme Bb there.
Mayo does NOT want to dx Lyme .. and they won't treat it even IF they were to find it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You asked: "What could Igenx be doing differently?"
Igenex tests for many bands that your other labs just ignored. Igenex just has better tests, better equipment, better procedures. They also test samples that have not been sitting around over the weekend. You can't say that of all labs.
You do not need more tests but, sadly, the less professional ones will be in your file and probably hamper your care.
I'd find a new GP who at least has a basic understanding of lyme.
Your local lyme support group may help. But, I see from another post of yours that you are actually doing well with just one minor symptom. That's great. But stick with your LLMD until he says you are clearly out of the woods. Don't assume anything and continue excellent self-care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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